New to endo and confused after MRI results...kissing ovaries

[fionalouise20]

Hi all,

I have just received my MRI results from my gynae and it has shown suspected endo with 'kissing ovaries' so my ovaries are pulled together with what they assume is endo.

I have been prescribed norethisterone for 3 months to see if this helps my symptoms but due to giving birth 8 months ago and under going corrective surgery in January my consultant doesn't want to put me through a laparoscopy at this point. This has me worried as understandably with the endo being on my ovaries I am worried about my fertility. Has any one been in the same position and if so did you request a lap or have success with hormone treatment?

Many thanks in advance

Xxx

[Hidden]

"Kissing ovaries" means that your ovaries are touching each other with adhesions. Adhesions happen because of inflammation, infection, previous surgery, trauma and endometriosis

I have had endometriosis for 20+ years and have always suffered with chocolate cysts on my ovaries. I am very lucky to have had three children.

Hormonal treatment is very individual and a lady will get on well with one treatment but this treatment will be hated by another lady.

Some Types of treatment are:

Combined pill

Progesterone only pill

Mirena coil

GNRH drugs.

The only way to diagnose endometriosis is by a leparoscopy.

Good luck and welcome to the forum.

X

[fionalouise20]

Thank you x

[Impatient]

Norethisterone will not solve adhesions being stucktogether - in other words it will not unstick them.

but any surgery causes scar tissue and adhesions - so another surgery to get in there and cut the adhesions while it is a temporary fix may not last long - will encourage the growth of yet more adhesions and you could be back to square one in a short space of time with various organs sticking together with the superglue like adhesions.

You need not have endo at all. But if you do norethisterone will prevent you having periods so often which will help to reduce the likelyhood of endometrium cells from the womb travelling along the fallopian tubes and resettling to grow elsewhere inside the tummy cavity.

Endo wounds can grow scarring and adhesions and once they start growing then just keep on growing.

There's no point having any surgery to cut them back unless you need that surgery for something more important. Keep the number of ops to a minimum as each encourages more scarring every time.

When you are ready for the next pregnancy - then that is the time to have a pre-pregnancy op to cut back all the adhesions and free up stuck together organs. not only will that help your chances of getting pregnant - it will also make the pregnancy itself a lot less painful as the baby grows and the body organs need to move out of the way, this is much easier and less painful if there are fewer adhesions holding everything together with superglue strength sticky strands.

You have to think of the two things as separate. Endo is one condition - and it can lead to adhesions which is a separate condition. Adhesions can be caused by any trauma to the tummy - not just endo, but even bashing the tummy against something - or even a child jumping up and landing on your tummy could trigger adhesions to develop. they are the body's natural reaction to being injured a cushion of protection against future injury. you cannot stop them growing - but your can get them cut right back, and cut through which releases bowel and uterus, or bladder and uterus, or ovaries from sticking anywhere they wish to get stuck. Normally all the organs in the tummy are free to flop about and move as an when needed, but adhesions can start for any number of reasons and continue to develop and grow and stick everything together with everything else.causing what is known as a frozen pelvis.

Your doc has given you great advice there. hold back on un-necessary surgery till it becomes necessary. and Meantime on the off chance you do have endo - stop the ovulating and having periods with norethisterone to reduce the chances of future endo spreading and possibly compromising your fertility.

[fionalouise20]

Thank you for that info its really helpful. Its not that I'm doubting my consultants decision, I think what worries me is that without doing the lap (I mean for diagnosis not surgery) we don't know the extent of it and from what I have read of kissing ovaries (and there's not much info) it seems to go hand in hand with bladder and fillopian tube endo. We want to start TTC at the end of the year so I will have to let my consultant know when we return in august.