Im 34, only diagnosed 8 months ago via laparoscopy but suffered for many years. I have no children sadly and am losing hope I ever will, I have tried birth control pills, the Mirena (horrid experience, 2 weeks it stayed in, and even that was a miracle, bloomin thing was put in wrong, threads cut way too short, and it embedded in my cervix but my uterus was still trying to push it out - ouch) and also the depot injection (my 2nd time on it, was on it when early 20's but long term history of anorexia meant missing my periods ironically wasn't my best option for risk of bone loss!!) and anyway, am due to see consultant in January (if I can wait that long) and I don't know what to suggest now. I am in severe pain daily, worse at period time obvs, am concerned the peritoneal inclusion cyst is back too, in March at op they found it had grown from a couple of cm's, to the whole of my pelvis, front to back, all my left side and near to the middle too) she drained it but it feels like it's back judging by the pain intensity, I can feel a round hard ball lower left which as it's feelable from the skin by pressing down. I know there are the GnrH or whatever they are called, but I already know you can only be on them for 6 months, so what would that leave then? ANY suggestions etc would be so appreciative, I don't know if this makes any difference but from memory they found endo on both ovaries (ehich she left!!), peritoneal wall, bowel. Adhesions were that thick she had to cut away lots before she could even see what the mass was ie the peritoneal inclusion cyst, and a loop of bowel had adhered to the ovary, fallopian tube and uterus. No kids as I say. Already on slow release and normal morphine plus pregabalin for nerve related pain.
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