Could it be back so soon??: Hi ladies, I... - Endometriosis UK

Endometriosis UK

72,903 members53,260 posts

Could it be back so soon??

fudgecake21 profile image
6 Replies

Hi ladies,

I had a lap to remove endo and insertion of a mirena coil in July this year. I have been getting right sided pain that ranges from sharp stabbing to a dull tightness (like someone has blown a balloon up inside me) for the past 6 weeks. I have my post op in November. I have also been bleeding/spotting continuously since June. About 4 days ago I was doubled up with what felt like endo pain. Is 3 months too soon for it to come back? My consultant said the endo would quickly come back once the mirena has been removed, my fatigue is creeping back too. Has anyone suffered severe headaches/migraines with the mirena? Seem to be getting them a lot recently.

Should I persist with the coil? Feeling a bit frustrated and down about it all, I just want to be 'normal' :(

Thanks in advance x

Written by
fudgecake21 profile image
fudgecake21
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Ppdotter profile image
Ppdotter

Hi there

I know endo can return quite quickly as every bit of bleeding you have feeds it. I have the mirena am on my second one now. I'm a severe migraine sufferer and do still have them regularly with or without the coil. What they usually say is if you don't normally suffer migraine and you suddenly develop them with mirena you should see your doctor as it may be unsuitable for you. I find all hormonal treatments difficult because of my migraine but mirena works best for me. I would have a chat with your gynae. Bear in mind also the mirena can take up to 6 months to settle down.

Take care

hellipops profile image
hellipops

Hi

We sound very similar situations, I have endo and I had my lap in May and also had the mirena fitted since then I have also the same pain on both sides exactly how you described it! I've had nothing but migraine headaches and my period is gone back to last for 2 weeks and then start again one week later. I think I've decided to have the coil taken out next week as I haven't felt any benefits from it x

I know what your going through and it just seems to be never ending with us endo sufferers x

Let me know how you get on! Take care Helen

carla1973 profile image
carla1973

Hiya ive had the mirena coil fitted back in march it took around 5 months for ot to settle down so keep with it im also having prostap injections every month and that helps alot x x x

butterfly95 profile image
butterfly95

Hi, I had the mirena coil fitted 5 months ago, and have had nothing but problems with it! I get the same right handed pain that you're describing which is absolutely debilitating! I have been to the doctors four times to ask for it out or for a scan to check that the coil Is positioned ok but all the docs say is 'take ibuprofen' Grrrr! I think it's worth going to the doctors or if you can waiting til your post op and explaining everything to them, as ppdotter said, the coil might not be for you! Hope everything gets sorted soon xxx

Takethat101 profile image
Takethat101

I had the coil few years back and had same right handed pain it got so had I couldn't stand up straight (previously had implant in arm) soon as I went my gp he told me to get it removed immediately as it's clear it's not right for me apparently my body won't accept foreign bodies xx

persil profile image
persil

Hi

The Mirena to my understanding does cause cysts which if uncomplicated just burst and the pain you are feeling sounds very familiar as this has just happened to me.

Do stick with it and see how you get on but might be worth mentioning it to gynae specialist

Persil xx

Not what you're looking for?

You may also like...

Could my endo be back so soon?

Hi all, I had my first laparoscopy on 7th December last year to diagnose and treat endometriosis....
Sammyh54 profile image

Mirena coil, don't be afraid of trying it.

Hello ladies, I hope you are all well? I just thought I would write this post as I have mainly only...

Has anyone had endo come back with the mirena coil?

I had my first laproscopy 2 years ago and I'm now on the mirena coil and have been for 8 months but...
B-w94 profile image

I’m so fed up :(

Background story - diagnosed with endo 4 years ago after 7/8 years of pain. Minimal endo found and...
MegVarny profile image

Excessive back pain and chronic fatigue, is it possible Endo isn’t the only cause??

So last month I had my second laparoscopy with incision of mirena coil. I know it’s too early to...
Deluminum profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.