Ckd : Hi I’ve never posted on here for... - Early CKD Support

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Vonnie10 profile image
7 Replies

Hi I’ve never posted on here for ckd, so I’m looking for some advice had a call from my rheumatology department today I have RD , she informed me my number was 45 it’s never been this low and to avoid the usual drugs naproxen’s which is a live saver but aside from that what should I avoid and what can I do to improve .Thanks you . Yvonne

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Vonnie10 profile image
Vonnie10
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7 Replies
Bassetmommer profile image
Bassetmommer

HI Vonnie,Stay away from all ibuprofen. Unfortunately, they do help with pain, but they destroy the kidney. Tylenol will help but too much of that will ruin the liver. Talk with your Rheumatologists to get on a treatment plan to get the RD under control and lower your inflammation. That impacts everything. Believe it or not, making sure that you are hydrated will also help with the inflammation. Try to work through the pain as much as you can until they set up a treatment. I know it is frustrating.

Vonnie10 profile image
Vonnie10 in reply to Bassetmommer

I'm.under my rhem for my ra I'm on toclizimab weekly injection it kinds of helps but not always its hit and miss is it a case of wait & watch for the kidneys no one as refereed me to any department re the kidneys I assume it that's alls can be done ?

RickHow profile image
RickHow

Yes NSAIDS (Naproxen) should be avoided with CKD. Occasional use will NOT destroy the kidney, nor even harm it. Tylenol as an alternative to NSAIDS is usually recommended but here too should only be taken occasionally as it bothers the liver. But again, occasional usage is NOT harmful. I see 5 doctors of different specialties (heart, kidney, cancer, general, urology) and they all tell me it takes long term frequent usage to hurt the kidney. Unfortunately, a lot of medications for inflammation, with long term usage will hurt the kidney. Prednisone too can be harmful, but ask your doctor about low dosage of 2.5mg or less for occasional relief.

Vonnie10 profile image
Vonnie10 in reply to RickHow

Hi im so sorry to hear about your illnesses such a lot to deal with feel awful moaning when you are in a worst position than me sorry...I haven't used naproxen long term my kidney issue started back in 2007 no one told me I found out by accident about 3 years ago I was diagnosed with ra 4 years ago and for 3 years I had a shed load of steroid injection can't tolerate oral send me loopy as do injection long story i thought it was the ra drugs that's made me very anxious and horrendous anxiety/ ocd triats ..It was all trail and error I finally settle on toclizimab but like I said I had 3 years of steroid injections could this have made me kidney worst . I won't have any steroid drugs ow would rather struggle on.

UniqueCKD profile image
UniqueCKD

Acupuncture works great for pain! I'm happy to share more about this if you would like. I have been in clinical practice as an acupuncturist for 22 years. If you want to email me we can set up a zoom call. Drgeoffd at Gmail

Rkgaither1954 profile image
Rkgaither1954

Avoid dairy and high protein foods, processed foods and chocolate. Eat lots of fruits and vegetables, small amounts of lean meats and fish. Stay hydrated.

panda22 profile image
panda22

The best advice I can give is you should not take anything with anti inflammatory in them. They really do affect your kidneys

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