Hello all, I’m recently diagnosed with renal cell carcinoma for the second time in 9 years. I’m scared. Any uplifting thoughts, stories if encouraging would be greatly appreciated. I hope i can be a positive support back to this community as well!
Christina
Hello Christina, I am so sorry you are facing this again. What got you through last time I wonder? Positive thoughts always help and the encouraging words of family and friends.
You are not alone, all the professionals are behind you and the love of others can spur you on.
Are there any of our members out there that can give Christina the positivity that she needs please, come on folks - don't let her down.
My thoughts are with you Christina,
MAS Nurse & Moderator
Yes positivity played as huge roll, and i had a great support group which I still do. I think I’m just more scared this time as it seems to be back bigger. But I’m strong. I’ll beat this, just may take a while! Thank you for reaching out. So sweet
Hi Christina,
That's great that you have a good support network - it's so important, and that you are determined to beat this. Anytime that you need extra support, this community is here for you.
Is anyone able to offer some help or advice for Christina to help her on this difficult journey? Let's use this community to guide each other through these times.
Best wishes,
MAS Nurse and Moderator
I have he same cancer. It was discovered in my kidney in 2017. A tumor on kidney. I had kidney removed. It was studied and labelled a stage 1, grade 1 tumor. I was told I only had a 3% chance the cancer would return. In April of this year it was found it was back. In my bones. It ate two vertebrae in my spine almost completely (I felt no pain), a large tumor in leg (no pain) and 4 small tumors in pelvis (had pain which led me to the doctor and ultimate discover. RCC once spread has very limited treatment options and NONE of them are a cure. I had a spinal fusion operation (remains of vertebrae remove and replaced with metal braces), a hip replacement (to get tumor out of leg), and two rounds of radiation. I am schedule this very day to begin getting a medication called Keytruda to slow (but not eliminate) the spread and growth of remaining tumors. Keytruda was just approved this year for such treatment. I have done my best to not let this take away my mind, and my usual life as long as it remains. So I have some understanding of what you have already faced repeatedly. You do not say where the RCC is. If in your kidney, can it be removed (the kidney). It if has spread, to where? Best of luck.
Pregnancy with stage 4 kidney disease
Just had a kidney biopsy
kidney failure dialysis
