Early CKD Support
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Hi everyone, im new here, I have concerns with my numbers and my Doctors says everything looks fine. I don't want him to just blow me off till things progress and then send me to a Nephrologist. Your thoughts please.

Creatinine, Urine 15.3

Albumin, Urine <3.0

Alb/Creat Ratio <19.6

Glucose, Serum 111 H

Bun/ Creatinine Ratio 21 H

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What is your GFR?

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98

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My other concern is I had some kidney issues back in 3/11/15 my urine protein was 50 - then 40.1 in 8/25/15 - then 3 in 11/17/15 - then 5.1 in 12/5/15 - then 3.5 in 12/23/16 and 3 in 12/30/16 things look good then I started seeing bubbles again. my lower left side started hurting again, but I think I found my culprit I started using kratom back in Nov stopped about 3 days ago starting to see improvements.

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With your numbers bouncing around so much and with a GFR of 98, it certainly does not sound like CKD. Mine improved from 36.6 to 54 and I was very pleased, but I know how hard I worked on diet to get there.

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Can you share your diet and other things you did?

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Through my searching, I sound a lot of information, this site, DaVita.com, and various so-called experts. I have to say that there is a lot of information out there, a lot of far out advice, some quacks (as far as I am concerned), quite a bit of out-dated information, and some sources that I am willing to follow, while at the same time trying to determine if this is the best thing for me. For the most part, anything before 2015 might be out-dated.

--Resources that have helped me:

- The doctor's kidney diets : a nutritional guide to managing and slowing the progression of chronic kidney disease / Mandip S. Kang, MD, FASN;

-Renal Diet Cookbook for the Newly Diagnosed: The Complete Guide to Managing Kidney Disease and Avoiding Dialysis

by Susan Zogheib

These were the first two books that I read and used. The first was from the library and I purchased the second.

-I have used the DaVita site, but I also check the amounts of sodium, potassium and phosphorous in the recipes, and some I decide not to use;

-Every new entree that I plan on preparing, I list the name of the entree, and then either follow it with ckd, or precede it with renal friendly or kidney friendly. This is time consuming, but I then have a pretty good idea of what is going into my mouth and through my kidney.

-One of the names that came up often through my searches is Mathea Ford, RD/LD. I have found that her books have been quite helpful. The ones that I have so far are:

-Living with Chronic Kidney Disease--Pre-Dialysis;

-Create your Own Kidney Diet Plan (which I have done in order to track sodium, potassium, phosphorous and protein, as well as carbs and calories);

-and her last book that I purchased, The Kidney Friendly Diet Cookboook.

From my various searches, I have various lists that I will get back to or that I found important. They are:

--Links regarding CKD;

--Food sites, ckd;

--New to Kidney Disease--questions to ask;

--Healthy Foods for People with Kidney Disease;

--Stopping Kidney Disease;

--Snacks for a Kidney Diet.

If you are interested, I can share these lists with you.

I hope this helps you,

lowraind

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Hi lowrain

Thank you for all the information you have given me.

I would appreciate any lists you can share.

I’m 77 at early stage 4 creatinine 2.1 after about 10 years starting at 1.5. I do watch sodium, potassium, little dairy. I feel fine with no problems at this stage. I know what will happen if I go into later stage 4. Want to maintain my level if possible.

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Hi motolas,

I will be copying and sending my lists one by one, because I cannot figure out a way to just send a master link. If anyone can advise me on this, I would appreciate it.

Just a caution: I began keeping these lists right after I was diagnosed and have not had a chance to edit and delete, so use your discretion on what may or may not help you.

1st one: Links regarding CKD

kidneyconsultants.org/?page...

davitadiets.wordpress.com/c...

labtestsonline.org/patient-...

todaysdietitian.com/newarch...

geniuskitchen.com/recipe/re...

mayoclinic.org/diseases-con...

Best site for potassium and phosphorus amounts--

renalus.com/healthy-living/...

rbitzer.com/recipe/baked-zu...

nephcure.org/

blogs.davita.com/kidney-die...

health24.com/Medical/Incont...

file:///C:/Users/Owner/Downloads/Best_Breakfast_Recipes_Cookbook-2018.pdf

rsnhope.org/world-kidney-mo...

davita.com/mydavita/diet-he...

nxtbook.com/nxtbooks/davita...

google.com/search?q=why+do+...

Dr. Andrew Levey, the chief of nephrology at Tufts Medical Center

patient.info/health/chronic...

healthunlocked.com/nkf-ckd/...

kidney.org/nutrition/Kidney...

healthunlocked.com/nkf-ckd/...

healthunlocked.com/nkf-ckd/...

kidneycoach.com/799/kidney-...

c.merriam-webster.com/medli...

renaldiethq.com/category/re...

labtestsonline.org/news/new...

kidney.org/atoz/content/Con...

labtestsonline.org/news/pat...

eatright.org/search?keyword...

healthunlocked.com/nkf-ckd/...

kidneyschool.org/mods/

drugs.com/

labtestsonline.org/conditio...

lifeoptions.org/learn-about...

kidney.org.uk/about-us/k-life/

google.com/search?q=Kidney+...

National Kidney Disease Education Program (NKDEP)

1-866-4-KIDNEY

nkdep.nih.gov

National Diabetes Education Program (NDEP)

1-888-693-NDEP

ndep.nih.gov

Michigan Diabetes Outreach Networks (MDON)

diabetesinmichigan.org

The American Diabetes Association

1-888-DIABETES (342-2383)

diabetes.org

The American Heart Association

1-800-AHA-USA1 (242-8721

americanheart.org

kidneygrub.com/i-have-kidne...

davita.com/kidney-disease/v...

rsnhope.org/kidney-101-just...

kidneybuzz.com/top-9-best-f...

Nutritional recommendations for adults with chronic kidney disease stages 3 to 4

Protein≤0.8 g/kg/day, increase plant source.

Salt<2.3 g/day (<5 g/day of NaCl).

PotassiumIndividualize to keep the serum potassium within a normal range.

Calcium1.5 g/day from both dietary and medication sources.

Phosphorus0.8 to 1 g/day or individualize to keep the value within normal range. Increase vegetable source and avoid processed foods as much as possible.

Carbohydrate/fat30 to 35 kcal/kg/day; <30% of total calories from fat and <10% of total fat from saturated fat. DASH diet pattern highly recommended.

Fiber25 to 38 g/day.

Learn more about St. Joseph Health Medical Group. Learn more about Dr. Adhye.

Resources

Mayo Clinic: Chronic Kidney Disease

mayoclinic.org/diseases-con...

WebMD: Understanding Kidney Disease

webmd.com/a-to-z-guides/und...

American Kidney Fund

kidneyfund.org

mcw.edu/Nephrology/Patient-...

renaldiethq.com/healthy-sou...

kidney.ca/blog/dietitian

kidney-symptom.com/chronic-...

renalnetwork.on.ca/hcpinfo/...

emedicinehealth.com/chronic...

niddk.nih.gov/health-inform...

Recipes

There are many resources for kidney friendly recipes. Here are a few helpful links:

•DaVita – Recipes: This website has over 1,000 renal friendly recipes and a free Diet Helperservice!

•The American Association of Kidney Patients – Kidney Friendly Recipes: A great resource with many recipes for all meals!

•The Kidney Foundation of Canada – Kidney Kitchen Cookbook: A community cookbook that includes options for beverages, breakfast, lunch, and dinner! There is also a meal plan option.

•The National Kidney Foundation – My Food Coach: Allows you to specify your diet between full renal diet, low sodium, and diabetic.

•The American Heart Association – Nutrition Center: Provides a lot of tips on dining out, cooking, and healthy shopping.

•Heart Healthy Online – Low Sodium Recipes: If you’ve been advised to follow a low-sodium diet, these delicious recipes are perfect for you – they all have 140 mg or less of sodium per serving.

•Mega Heart – Low Sodium Recipes: This site has a lot of low sodium recipes and there is even a kid’s section!

healthyeating.sfgate.com/he...

guysandstthomas.nhs.uk/reso...

ika.ie/education/renal-diet

renaldiethq.com/dairy-produ...

webmd.com has some good information on this as well as a good slide presentation to explain it to you. Some meds like Tamsulosin and others can help you if you have frequent UTI's and steady your CC level. Also, the site I use a lot to have labs explained islabtestsonline.org Give that a look and see if it helps you.

kidneyschool.org/

lifeoptions.org/learn-about...

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A little of my own background--I am 76, and was totally shocked to be identified at a GFR of 36.6. All I could think of was, "Why didn't someone tell me earlier?".

You mentioned watching sodium, potassium and little dairy. It is difficult, but since I was told that I had ckd, I cold turkey stopped eating chocolate (after a dark chocolate a day habit), bananas, potatoes, tomatoes, anything dairy (and I love cheese), all processed meats, and track everything that I do eat for sodium, potassium, phosphorous and protein. My "new" nephrologist told me that I did not to track my foods, but I find that, unless I am conscious of everything that I put into my mouth, it is too easy to get off track. This helps me, it may not be necessary for others. My "new" nephrologist may very well become my "old" nephrologist, since I want to find someone on the same wave length as I am on.

I am now in the process of examining my meds and have sent a list of drug interactions to my personal physician so that we can look at it together and determine changes that need to be made when I see her again in April.

That being said, here is a second list and I will take a break, since I am sure this is overwhelming. I am a type A over-achiever, so I will give you some time before I send more.

Food sites--ckd

eatright.org/health/disease...

wvlt.tv/home/headlines/Kidn...

myspiceitup.ca/

myspiceitup.ca/

foodcare.com/myfoodcoach/ee

gailraegarwood.wordpress.co...

file:///C:/Users/Owner/Downloads/Kidney_Friendly_Nutrition.pdf

azkidney.org/sites/default/...

hamiltonhealthsciences.ca/d...

blogs.davita.com/kidney-die...

kidney.ca/blog/dietitian

davita.com/kidney-disease/d...

davita.com/cookbook

davita.com/mydavita/dashboard#

kidneyhealth.ca/wp/wp-conte...

beaumont.ie/kidneycentre-fo...

foodcare.com/myfoodcoach/ee

kidneygrub.com/kidneygrub-s...

thekitchn.com/how-to-make-y...

kidneygrubdotcom.files.word...

myfreezeasy.com/?orid=10425...

davita.com/landing/cookbook...

davita.com/kidney-disease/d...

kidney.ca/blog/dietitian

kidneybuzz.com/daily-impact...

nwkidney.org/living-with-ki...

my.clevelandclinic.org/heal...

northshorenephrology.com/wp...

kidneysdothat.satelliteheal...

tricitiesdialysis.com/2014/...

nwkidney.org/

nephrocare.com/patients-hom...

health.govt.nz/system/files...

kidneycoach.com/1089/renal-...

kidneycommunitykitchen.ca/p...

stjhs.org/healthcalling/201...

kidney.ning.com/profiles/bl...

chop.edu/news/bag-lunch-ide...

uwhealth.org/healthfacts/di...

preventionrd.com/recipes/

consultant360.com/n411/cont...

consultant360.com/n411/rena...

renaldiethq.com/048/?doing_...

nemours.org/content/dam/nem...

rehcfl.com/kidney-disease-h...

kidneydiet.com/Best-Foods-f...

todaysdietitian.com/newarch...

kidneyhealth.ca/wp/patients...

dciinc.org/wp-content/uploa...

kidneysdothat.satelliteheal...

dciinc.org/wp-content/uploa...

2yourhealth.com/kidney-frie...

freseniuskidneycare.com/eat...

freseniuskidneycare.com/eat...

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Thank you for the extra info.

you are correct looking for a new Nephrologist. You and I are looking at the correct elements to limit.

Anything with caffeine is to be avoided. Choclate, regular coffee, special soft drinks etc. Everything you listed is not good at all, which I guess you now know,

Let me know if I can return the help.

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My first impression, when I was first diagnosed was that I could not drink coffee at all. Since then, I have found conflicting opinions. This is from the National Coffee Foundation: kidney.org/newsletter/coffe... So I do allow myself one coffee a day.

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Self serving. Suggest decaf. Would be good to talk privately if we can find a way .

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I guess I should start at the beginning . My doctor put me on testosterone for seven months till I felt really bad , long story short they never check my blood pressure or anything and my blood pressure went high and already prediabetic and the test got my HGB up to 19.8 so he put me on Lisinopril to protect my kidneys cause that is when my protein was at its highest I only took Lisinopril for a couple months because of bad reaction from it. my AC was 6.4 then it is 5.5 now

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I guess the smartest thing would be to keep an eye out with your doctor, and also, not contribute to worsening numbers by watching sodium, protein, potassium and phosphorous, fluid intake, moderate exercise, etc.--all those things we should have all been watching all along.

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My doc tells me all the time to drink more water, I have recently cut out coffee as I did abuse it and now its organic green tea. I want to thank you for your replies and the kindness and interest you've shown in my post. Thank you and God Bless you and your family.

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You can calculate your GFR by using Bun, creatinine and albumin numbers. Look up the calculator online and put your numbers in.

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