Neuropathy

[destiny05]

Hey you guys jus wanted to introduce myself and see if i can find any similar stories or people who are going thru something similar and can offer support i am on this app after coming out of my depression hole and i am ready to talk to somebody . I am 21 years old 2 years ago i got hit by a 16 wheeler and was diagnosed with a radial tear in my L1-L5 vertebrae and after doing all types of intensive therapy for a year and no help with the chronic pain we decided to try epidural steroid injections after no help we were aiming to do a procedure where they go in and burn the nerve thats causing pain (kinda like a root canal ) i wasnt given enough anesthesia so i wokeup crying screaming while the needle was in my back i was given more anesthesia and told to calm down they finished the procedure and i went home that same day having symptoms i never had before (burning , tinging sensation from my knees all the way up my sciatic nerve to my tail bone , extreme pain while sitting , limping and leg weakness in one of my legs ) fast forward two months after having multiple test run (mri,emg,full blood panel) i was told i do not have any immune diseases causing the disorder and i was diagnosed with peripheral nerve dysfunction and neuropathy of my leg fast forward to date i have neuropathy in both of my legs and full blow symptoms in both and also starting to have symptoms in my arms . I am currently being seen at John Hopkins medical center trying to get answers . I have been dancing /cheerleading all my life and it has been really hard accepting the fact i cant use my legs how i used to . i am 21 and have to use a cane to walk through the mall i cant go on normal dates , vacations walk around the city with my friends its very hard to accept but i am dealing with it the best that i can . Thanks for hearing me out you guys ❤️

[Gambit62]

very sorry to hear about your experiences.

the neuropathy experienced by diabetics is generally the result of damage to blood vessels leading to damage of nerves - so could be quite difficult to the neuropathy you are experiencing.

There are a number of conditions that have neuropathy as a symptom.

I don't have diabetes but I do have an auto-immune condition that means I can't absorb B12 from my diet (and a strong family history of MODY diabetes). My neuropathic symptoms affected hands first and then feet and legs.

I had surgery for a broken ankle several years ago and woke up with very reduced sensation in my left foot - some nerve damage that B12 has helped with.

Hope that you do get some relief and responses to your post on other forums

[destiny05 in reply to Gambit62]

Thank you luv

[James2]

Dear destiny05

i am sorry to hear about what you have gone through;

i have type2 diabetes and chronic fatigue. i started to experiences tingling in my hands and toes, with burning sensation and all rather randomly. i had it checked out with my doctor and was diagnosed with Paresthesia this is most often caused by damage to peripheral nerves ( those in the arms and legs but i also had the burning on my face) or pressure on those nerves, which may be caused by inflammation or injury. ... Chronic fatigue syndrome is believed to be associated with inflammation, which is a potential cause of paresthesia.

i live in the uk so i dont know were you live and obviously i strongly recommend you check this out with your Doctor . i also belive rules for suppliements and viatmins are different in other countries but;

i went to see a Naturopathic practitioner

i started a combination of Alpha Lipoic acid for nerve pain and benfotiamine for nerve pain one issue with chronic fatigue is about having difficulties absorbing vitamins so i take vitamin e and vitamin c as both were recommended to help with the absorption,

evening primrose oil capsules to help coating the nerve fibres

omega 3 fish oil to reduce inflammation

i also reduced my dairy intake and other foods that are linked to inflammation.

after a month i started to notice a reduction in the symptoms . i also started to do tai chi. you symptoms sound a lot more sever than mine

i hope you feel some improvement but please go for medical advice before changing anything

best wishes

james2