Type 1 diabetes

[Jouba93]

Hello everybody

My grand-daughter has been diagnosed, one month ago ,with type 1 diabetes.She is only 22 months old,it's not hereditery,and i read that if it's not hereditery the cause of this disease must be environmental like a virus, a parasite, a microbe, an allergy, and if we can detect the cause may be we can cure her diabetes and the beta cells of the pancreas can regenerate. I ask if someone knows what lab tests we shall do to detect the true cause of my grand-daughter's diabetes. Her birthday will be in 2 months and i hope i can do her a present with your help, of course, I will be thankful if you can help me. Thank you so much.

[Hidden]

Hi there, I dont have the answer to your question but just to say i am in a similar situation. My 28year old daughter has just been diagnosed as type 1 diabetic even thou there are no hereditary factors in her case. I too, would love to know what could have caused the type 1 to develop. She is currently on insulin once a day and metformin tabs twice a day. How are you and the family coping with emotions and the management of the illness in someone so young? I am still shocked as is my daughter.

[suramo Star]

Jouba93

It's a sad moment to hear that such a young kid has type 1 diabetes. But don't get discouraged. Pay your attention to strict diet control. Check for her thyroid status. Give as less carbs as possible say around 1 g per kg per day or less. Keep a watch on her nutritional needs. Give enough proteins.

Explore the possibility of stem cell therapy.

Our blessing to your child.

[cure Administrator]

Jouba93 really sad to note about your grand daughter...

May be Hidden or suramo will be able to guide you about tests...

For other things you may take advice from our respected admin., Activity2004 .

[Activity2004 Administrator in reply to cure]

Thank you, cure for saying this.

[Jouba93]

Thank you sooo much everybody,idon't even know from what country you are and where is your place on this earth but i already feel this link between us that i give the name of

"HUMANITY"

Your replies are so comforting,now i feel better thanks to your support.

I will do my best to save my little baby,may be nutrition will be the solution

and as Hippocrates said"Let your food be your medicine,and your medicine be your food"

i believe in that.But before that i will give an other chance to lab tests.

Thank you ,keep in touch i still need you.jouba93

[oceantragic in reply to Jouba93]

Luckily for Hippocrates he didn't have Type 1, if he did he wouldn't have lasted very long as insulin was not available.

Food may be the best medicine for anyone without Type 1, for anyone with it the best medicine is always Insulin.

[HOBIEONE]

Hello & I am very sorry to here but if there was a cure I would be right on the case ! T1 your pancreas does not work unlike T2. I have been T1 for more than 50yrs & never been unemployed in my life. Pls keep asking as there are a lot of info out there. Have a look at NUK diabetes web. Newcastle uni web site who are looking for a cure. A really positive bunch of Drs that I know.

[ShooterGeorge]

Hi,

I am a layman as far as medical/health field is concerned. But all the same, I was T2DM once but not any more, by hook or crook.

Do you have the following test results:

1. FBS

2. PPBS

3. HbA1C

4. FSI

5. ESR

6. TG

7. HDL

If yes would you share it here?

[Jouba93 in reply to ShooterGeorge]

Thank you shootergeorge. No, I don't have them. I was just asking what kind of lab tests we must do to détect the cause of my little Granddaughters' diabetes. She is only 23 months old. Should we do the tests you mentioned?

[Jouba93 in reply to ShooterGeorge]

Hi shooter George

I Will send the lab tests you asked for very soon,but îs there any thing to do to save my Grand daughter,something ĺike a diet for exemple?thank you

[Activity2004 Administrator in reply to Jouba93]

Jouba93 ,

Has your Graddaugher's doctor talked to you and her parents about carb counting?

[Jouba93 in reply to ShooterGeorge]

Hi ShooterGeorge

Here are the test results that you asked for:

FBS :1.25g/L

PPBS:3.40g/L

FSI:<0.20 mUI/L

ESR: 4mm

TG: 38.82 µg/L

HbA1C: she has been diagnosed with type1 diabetes only 2 months ago.

These are the test results of my grand-daughter who is only 2 years old.

Thank you ShooterGeorge.

[Jouba93 in reply to ShooterGeorge]

Hello ShooterGeorgeI

I sent you the lab tests of my Grand daughter you asked for,what do you think about them?have you any suggestions?

Thank you so much.

[ShooterGeorge in reply to Jouba93]

Hi @Jouba93,

I did see your report. The units are to be converted to the ones familiar to me to interpret. I was busy with some other personal matters. Please wait.

As far as HbA1c is concerned, everyone will have a value at all points of time, irrespective of whether one is diabetic or not, or when did one turn diabetic.

[Jouba93 in reply to ShooterGeorge]

Hello

Thank you Shooter George for your reply,i am so gratfull.i live in Morocco (North Africa)and the units used here are the same used in France ,after searching i find the following results:

FBS:125mg/dl or

6.94 mmol/l

PPBS:340mg/dl or

18.8 mmol/l

FSI: inferior to 0.20mUl/l

ESR: 4mm

TG:38.82ug/l

Tank you sir,i am so gratefull.

[Jouba93 in reply to Jouba93]

I Forget To say that my Grand daughter is 2 years old and has been diagnosed with type1 diabetes almost 3 months ago.thank you.

[ShooterGeorge in reply to Jouba93]

Thank you@jouba93 for the partial set of results.

FBS & PPBS are as expected, on the higher side.

Fasting Serum Insulin is much below the anticipated value.

Triglycerides is unexpectedly low. More over I couldn't utilise it in the absence of HDL Cholesterol value; you missed it probably by mistake! Triglyceride wirh HDLC and C-Peptide numbers & HbA1c would have given a clearer picture.

Do the baby still take breast milk? Is the baby lacto-intolerant by any chance?

[ShooterGeorge in reply to Jouba93]

Now the baby must be taking at least semisolid feedings. If you could get the missing numbers, I would like to suggest some dietary modifications.

[Jouba93 in reply to ShooterGeorge]

Hello sir

Thank You for the precious time you spend to help us.i am so gratfull.

The baby is not breastfeeded,Her mother works and stopped breastfeeding When the baby was only 3 months. Now She drinks cow pasterized milk and She eats solid foods (meat,chicken,végétales,bread ...).Now She Lives with Her other grandparents and sees her parents only at weekends and i am afraid this stresses Her.i don't think she is lacto-intolérant.

[ShooterGeorge in reply to Jouba93]

Why asked about breastfeeding and lactointolerance is: dietary modifications of mother would have helped the baby very much. Mother can eat and digest things babies cannot and take the advantages through breastmilk. Severe stress is a sufficient condition to trigger Diabetes. My mother became diabetic on the sudden demise of my father when I was just 9 and was the third of seven!

[oceantragic]

Sorry to hear this about the recent diagnosis but please don't be taken in by talk of diet being the best way forward. Insulin is the first and only key treatment for people with Type 1, diet can help a lot, as can exercise but insulin always comes first. Dietary advice for a young child with Type 1 is something better handled by the experts so please talk with your hospital.

[ShooterGeorge in reply to oceantragic]

My newborn grandson (just 2 days old) recovered from a hypoglycaemic coma ONLY BECAUSE I was aware of it and literally fought with the nursing staff of the tertiary level hospital to summon a doctor. Baby was instantly moved to the ICU and he is an year old now.

[Jouba93 in reply to ShooterGeorge]

As for the lab tests you asked for i Will send them as soon as possible.i plan to correct Her nutrition and i need your help.Thank you so much.

[Jouba93 in reply to Jouba93]

Goodmorning Shooter George

I want To ask you if i can give my diabetic baby of 2 years old some bone broth (Small doses of course)and what do you think about camel milk?

Thank you

Have a nice day

[ShooterGeorge in reply to Jouba93]

Hi Jouba93

An assimilatable/digestible quantity of bone broth may be a good idea but I wonder how will it help the T1DM condition!

In my state camel is not at all seen/reared and have no idea about its milk.

You may have to ask somebody from Rajastan or the Persian Gulfcountries.

[cure Administrator in reply to ShooterGeorge]

here are two links about discussions held in DI group earlier about camel milk...

healthunlocked.com/diabetes...

healthunlocked.com/diabetes...

[Jouba93 in reply to ShooterGeorge]

Hi ShooterGeorge

My grand daughter diagnosed one year ago with type 1 diabetes is now 34 months old,yesterday her HbA1C is 9.The docter increases her dose of insuline,i worried about her and ask help,thank you.

[ShooterGeorge in reply to Jouba93]

I was trying to get a clear picture of the problem and status. It got stuck somewhere, unfortunately! Now let us continue.

The food supplements given from 3rd month onwards could be one of the reasons or the reason.

The psychological shock and/or load imparted by the separation from mother could be one or another one reason.

Now knowing the reason may not be of any use to THIS CHILD.

Can you get the HDL Cholesterol, Triglycerides, Fasting Serum Insulin and Fasting C-peptide from the same Blood sample test?

[Jouba93 in reply to ShooterGeorge]

Hi Shooter Georges

!i asked the parents of the child for the tests you asked for and they give me the following results:

_Leukocytes :8000/ml

_ Hematies erythrocytes:< 1000/ml

_Sodium:135 mmol/l

_Potassium:3.5 mmol

_Chloride:118mml/l

_Reverse alkalin<5mmol/l

_glycemia:3.8 gr/l

_Creatinine:6.6mg/l

_phosphorus:14mg/l

_ Glycated hemoglobin: 8.5%

_ HbAc1c:9.7

Thank you

Have a nice day

[Jouba93 in reply to Jouba93]

Hello ShooterGeorge

Here are some other results of tests of my grand daughter:

Total cholesterol : 4.31 mmol/l

LDL cholesterol : 2.30 mmol/l

Triglycerides : 0.65 mmol/l

HDL cholesterol : 1.70 mmol/l

Glycated hemoglobin : 9.70

Thank you

jouba93

[ShooterGeorge in reply to Jouba93]

Hello Jouba93

Thank you for sharing the results.

Now you have to locate the food grain with Botanical (or Scientific or Latin) name "Triticum Dicocum". This is one of the oldest form of wheat.

Inclusion of this in my diet, appropriately, is what cured my Type 2 Diabetes in 3 years. There is no guarantee that this will help your child but is worth giving a try.

This wheat is known by different names in different languages. Emmer, Long, Pedda, Samba, Jave, Khapli, Suuji etc are some of those.

What I did was to swap with Rice as well as Common Wheat to prepare different dishes.

In my experience and opinion it is approximately at par with Rice and Wheat, with regard to food value.

The daily quantity I was consuming was 2 grams of it per kilogram of body weight, to prepare the starchy part of my diet. (That means if the patient weighs 8 kilograms, use 16 grams of dry grain or powder to prepare starchy part of 2 meals of a day. There is no harm in continuing the third meal as earlier/present.

There is no harm in taking more than the quantity specified above.

From the lab report it is felt that fat intake may be increased marginally.

Regular monitoring will help fine tuning things.

These are my opinions/suggestions based on my personal experience. You may decide what to do and how to go about.

Hope to hear good news from you.

[Bloomfield1655]

Sorry to hear the above mentioned problems with your granddaughters diabetes. I have joined into the conversations as a type 1 diabetic of some 37 years standing. And was one of the first 1000 patients placed on human insulin in the uk. Over the years my knowledge of diabetes has grown and my advice would be do not be lead in the direction of self healing diatery advice as in the main they do not work. Concentrate on a healthy normal diat that will help the girl develop in a normal way, the main problem of how she developed the condition was probably stress related but once diabetes has developed things have already gone to far. The chance of a cure is probably years away and as for a transplant of a healthy pancreas or the reversal of the damage already done via geAn therapy is remote to say the least. I know this all sounds very negative but reality needs to be given instead of vague threads of hope that we all know about and have seen in the press over a number of years. You need to come to terms with the hard fact that your granddaughter is a type 1 diabetic and as her grandmother just help to her to grow in as normal environment as is possible is the best you could do. Robert F

[Jouba93 in reply to Bloomfield1655]

Thank you Robert.I am interested in nutrition and it s impact on health.i have a blog in french on the same subject.I believe in the power that Allah gives to the body to heal itself (i am muslim).That machine which is the body is perfectly created To do its job at a Perfect way,but we don't know how to take care of our bodies, i am ont in the search of a miracle but through m'y readings and m'y researchs i understand the mechanism of the body and being trilingue (i speak arabic, french and english)permits me To widen the range of m'y researchs.i am not pessimistic and i believe that Allah Will help me To find a solution,i Will not accept observing m'y little baby growing with this disease and do nothing to help her.i believe strongly that there is a way to do something for Her.i see Her in m'y dreams asking help from me.i appriciate your comment Robert ,even pessimistic,thank you and keep in touch.