I am 29 from India. I was weighing 86 kg in June 2016. I used to enjoy ice cream and chocolates everyday. Chicken biryani was my favourite dish. Still, suddenly I started loosing weight but I was happy as I am loosing the same. I also was urinating a lot but thought that it might be because am always in AC rooms. I nearly lost 20 Kgs.
In January 2017, while working in office and enjoying my sugary tea, I suddenly felt that I am going to fall and some strange things are happening with me. I rushed to the company health care clinic and told my condition to the GP, he checked my blood sugar and it was 600. I asked doctor what is the normal range for the sugar , he told me it should be 90 and then I realised what happened to me. I was rushed to the nearest hospital because of DKA and very high ketones in the urine. Things started changing after that.
My HBA1C was 14, I was in ICU for 3 days and it took 2 days to clear the DKA and remove all the ketones from the body via urine. Was discharged after 5 days. When I tried to get up and walk to the reception desk for paying the bills I suddenly felt that I am getting pushed to one side and felt rocking sensation, the same sensation which we generally feel when we get down from a train or a boat.
When I came home I was not even able to eat due to rocking sensation, was totally frustrated, at 27 when you have such health disorders in place it is really irritating and depressing. I started having 60 units of Insulin per day as my fasting was 340 and PP was 500.
I went to doctor after 1 week due to rocking sensation and balance problem I was having. Nuero told me that my balance nerves are damaged due to high sugar and because of this I am having a balance issue. Life was never the same after this.
I nearly went through all the balance tests like MRI , ENG VNG VEMP but nothing came positive. Then after a lot of googling, I found my symptoms are much similar to a neurological disease called MDDS. And was shocked to read that there is no cure til date for MDDS.
Today it has been 2 years , I am off from insulin and having MF 1500 mg per day. My last 5 HbA1Cs are below 6. This is because of the LCHF diet. I got lot of help from the Internet communities like HU and lot of people to support me online and offline. because of these communities I was able to control my BS to such an extent.
At World Diabetes day today, I would like to thank each one of you for being part of my journey and to help me in every case I raised in HU forum. May we all help each other with our experience to keep our BS in control and stay healthy. Thank you!