Hello Friends, My 11 year old daughter diagnosed with T1, May-2012, on Huminsulin 30/70

[vinodbachu]

Hello Friends, My 11 year old daughter was diagnosed with Type 1 Diabetes in May'2012, and she is on Huminsulin 30/70 since then, she eats very moderate (limited quantity) typically 2 - chapathies, 4- Idlies as eg. we tried Chapathies cutting down Rice, but did not observe any change in the BS levels, her Fasting reading will be around 150+ (Even after having 34 units of insulin in night and dinner of 2 rotis) her Post lunch are very high generally around 250+ (Morning Insulin 32 units). HBA1C is over 8. While visiting doctors, we are really frustated, as they are saying...Fasting is some X so increase 2 units of insulin, and PPL is some XX increase 3 units of insulin, but, we are not getting any answers like why her sugar levels are this high even after 30+ units of Insulin and proper diet. Can some one please help with some enlightenment so that she can manage her T1D properly and also, any alternate medication if available, preferably for pediatrics. I am from Hyderabad.

Regards,

Vinod.

[vinodbachu]

Her physical activity is normal, she goes to school and actively takes part in the games at school and I take her for a Morning walk for over 30-40 mins, and she never complains of tiredness by Gods grace.

[vinodbachu]

Yes, I am absolutely fine, as we rarely come across any site, which discusses and educates about T1D

[vinodbachu]

Thanks Med, for your reply and details, Yes, infact that is what I am trying to find out from this forum, good information about managing T1D. Also, she is not Over Weight and never was, currently her weight is 48 (Under weight for a 12 yes) and Height is also normal compared to her peer group

Will surely start maintaining Log as per your suggestion, can you suggest a good counselor/ Educator who can help with proper guidance in Hyderabad.

[paul2204 in reply to vinodbachu]

Hi Med free. Please do not misguide in saying about metformin for a Type-1 patient. Other points well taken

[marajar in reply to vinodbachu]

Hi vinod

I share my experience with you

My daughter also diaognised with T1D in the year 2006 and still now managing and now she is 15 years old.

We also experiencing same problems as you highlighted.

It is very difficult to restrict diet

We are using human insulatard and human actrapid using BD short needle syringe.

Morning insulatard 20 and actrapid 10 and evening 6.00 pm Insulatard 15 and actrapid 15.

we are regularly monitoring BS levels in the morning and we are ensuring within limit(around 90)

Regular exercises definitely reduces insulin intake.

Once sugar levels increases beyond 400, need more actrapid insulin to bring back to normal.

In my experience taking fruits daily normal quantity is ok. But oily food and junk foods are very dangerous(sugar levels increase rapidly).

Please contact me,if you need any further assistance.

Thanks

[vinodbachu in reply to marajar]

Thanks a lot Marajar, can you please help with more information. Please mail me on [e-mail]

[paul2204]

Hi, Can you share your phone no. It is difficult to control a Type -1. But will guide you. Rgds...Paul

[marajar in reply to paul2204]

you can mail to me. [e-mail]

[vinodbachu]

Thanks a Ton Indi, This is much helpful information. Appreciate your response. one quick doubt, once attaining Puberty, is there any study done or research done if there can be any regularization in the BS levels? or if one needs less Insulin?

[paul2204]

Hi Marajar,

See your mail

[peepin]

Vinod babu

Ask your daughter to try the broken wheat. This has done lot of magic in controlling my sugar. Ask her to skip rice. She can have it once in a week. This broken wheat can be cooked just like rice and you can have it with dhal, sambar or curd. It will be equally tasty like rice. She is not going to lose anything by trying this. I am sure that this will bring down her sugar level. In night she can have any veg salads. Wish her all the best

seshadri

[Jayendrachaudhary]

Readings are not that much higher to worry.

I think some oral antidiabetic and one more shot of insulin should be included.

You can change your drugs like following:

18 unit 30:70 insulin in morning before breakfast

6 unit of regular insulin before lunch

1 tab of acarbose 50mg during lunch

16 u of 30:70 before dinner with 1 acarbose 50mg

Most importantly 200ml milk of low fat before bad

You can start above regime under diabetologist....and strict observation is must during initial

Start with low in every dose to prevent accidents,preferably

[vinodbachu in reply to Jayendrachaudhary]

Jayendra,

Initially Doc put her on Acarbose, after taking it for almost 2/3 months, she was advised to stop as she was complaining of Stomach Pain, Not sure if Acarbose was a reason, but after stopping she has never complained. Not sure, if there are are findings if Acarbose is leading to this pain. And now she is only on 32 - Morning and 34 - Night of Huminsulin 30/70.

[Jayendrachaudhary in reply to vinodbachu]

I know that acarbose is having side effects like stomach pain,diarrhoea,etc.,but generally it disappears after specific time usage.

But if you want strict control then it can't be achieved by only 30:70 insulin unless you modify diet schedule strictly according to release profile of insulin.

[paul2204]

Hi Medfree This is a review by a Prof of Pharmacy. Its clearly mentioned off label. There are no muticentric blind folded studies conducted till date. When I make a comment I am pretty clear being in the diabetes field for 22 years and have been regularly updating on latest happenings in the field of diabetes. Till date no doctor uses tablet for Type-1 patients. Moreover its dangerous to suggest off label usage in public forums.

[Peace7]

Indiacratus, my heart goes out for the 11 year old and your suggestion of a club is wise. I have read that Jayendrachaudhary who is a B.Pharm student is also Type 1 and is a volunteer on the forum. He may be able to help towards this cause.

[somkar]

When the elders are affected we can live with it, but when the children are affected, it is not a happy situation. I would suggest to try homeopathy, as it may help to have a better control at least, hopefully. Doctors are the best judges when it comes to treatment and better to go according to their advice.

[Jayendrachaudhary]

Obviously ppbs around 250 and fbs around 150 are not that much higher to worry..and specifically in case of your suggestion of HbA1c below 5,please follow yourself.it may be very dangerous incase of type 1 patients..upto 7 is well controlled state.Everyone may not have facilities like Dr.Bernstein, specifically in India

[Peace7]

Yes, I am, but a little disappointed due to unavailability of long wheat in my area. I started the regime but am unable to continue as the only shop which used to have them is no more selling because of lack of demand for the wheat.

[Jayendrachaudhary]

I don't know how to form a club in this forum,but we can create group either on Facebook or whatsapp.

[ajit1234]

four to five round of surya namaskar(a group of aasana) will solve your problem. please try it and monitor bs.

[Peace7]

This is a good suggestion but the problem with me is I do not know many people in this area and then asking this sensitive question to an unknown person whether they are diabetic can back fire. Yes, the long wheat really helped me to keep my parameters within limits.

[amarpuri]

Hi Vinod, Breaking her dinner into two small meals would definitely help. Have One chapati in the evening say at 6:30 Pm and one or little more than that at the time of dinner, then closely monitor her fbs level with this change. Repeat the same for lunch as well. You may have to decrease the insulin after a weak. Make a log of her sugar levels and what is being eaten by her. You will get the solution yourself after a week by watching the logs.

[ranj]

You can not start a sub forum under a forum Diabetes India but you can start a new forum for Type 1 DM by clicking the link "Start a Community" at bottom of the healthunlocked.com/diabetes...

[Jayendrachaudhary in reply to ranj]

Yes...I have applied there for another community namely 'young diabetics of India' for type 1 pts....waiting for their reply

[Jayendrachaudhary]

I also believe in low carb diet but I'm not agree with high fat....one should take every component in balanced manner.high fat leads to utilization of fat as energy source instead of glucose for routine energy requirements and hence leads to DKA,which may be fatal for the patient.

[Peace7]

Thank you, I shall definitely try this method of approach.

[Jayendrachaudhary]

What I'm telling is based on personal experiences....and if you are not type 1,I don't want to be bothered anymore

[HOBIEONE]

Hello Vinod. Kids ! Diabetes is a weird illness at times. I eat a wide variety of food inc Porridge every morning( slow release of carbs) I could eat Seafood for England (little carbs) & when at work all sorts. Pls look after your Daughter but carbs do the damage at times. There is no perfect answer without being there. Good luck !