Road to a BMT... oops just got there (Day+10)
1 ( normal range is 1.5 - 8 ), WBC is a 1.0 - this has been and will continue to be his toughest week....
Road to a BMT... oops just got there (Day+26)
We were finally discharged today and very happy to be home. Here are the details from our consultation with the Dr.: 1 ) BMT/blood work - ver...
Starting cyclosporine on top of mycophenolate
Hi All, Having a really bad flare up this time that is really taking its time to resolve. Consultant is thinking of adding on cyclosporine on...
Methotrexate Oral Tablet vs Metoject.
I am currently on week 13 of the Methotrexate vs Cyclosporine clinical trial in the UK(25mg a week ). I have been feeling nauseous from the s...
Road to a BMT... oops just got there (Day +50)
The reason being that CLL is a slower and more aggressive leukemia and takes longer to breakdown....
I have SLE ,SS, Hypo thyroid and Myeloma Cancer all diagnosed August 2015 - my question is those with lupus and /or Sjorgrens do you all take...
Hi is anyone taking or has taken cyclosporine ( neoral ) at all and if so did it work. I have been taking it for the last 6 weeks and am find...
Drugs to Avoid with CMT
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy ...
Cyclosporine ,Pain and fatigue
I feel so down hearted today , I was diagnosed with SLE ,Sjogrens hypo thyroid and early stage myeloma cancer last August and I feel I have b...
I am concerned about taking it as the side effects sound horrendous and I haven't heard of any other lupies who may be on it ....
Glandular fever & Cyclosporine
Hi.. Was wondering if there's ever been a link between having had glandular fever when younger, and Thyroid issues or even having had a stem ...
Psoriases took over my life
I have had psoriases for 5yrs now. Till this date neither me nor the doctor knows what triggers it but I was covered head to toe within three...
Our Dog has Chronic ITP
Hi Everyone, Just wanted to tell the story of Izzie, our loving, faithful, and sweet dachsund who has been diagnosed with ITP. We take her ba...
Severe Head Pain From GCA, Etc
We have posted before and thank you all so much for your advise and encouragement. My wife, a GCA patient, had two flares a couple months ago...
Behçet and rheumatoid arthritis
I am sixty-two years old have been fighting against the Behçet disease for thirty-five years. I had inflammations in the eyes which were trea...
Cyclosporine side effects
Hi just wondering does anyone who takes this suffer with tummy pains and eggy burps since starting taking this medication I have suffered wit...
Quick update , , had Stem Cells rocket up line this morning , , now having 2 bag red cells but just had another temperature episode @ 39degre...
Just been diagnosed
Hiya all I've just been diagnosed with Behçet's disease and was basically looking for help and advise I've been put on dapsone tablets and st...
Hey guys, My psoriasis has been crazy lately... I can barely straighten my elbows and knees because it hurts so bloody much....
Husband returning to treatment
After 10 months of well-managed anemia ( PRCA ), using cyclosporine, my husband's WBC is rising, and he's likely to need CLL treatment again ...
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