Update and medication:
Hello all! Hope you’re enjoying the snow ( in the uk)!...
Ways to Reduce Cyclosporine Toxicity
Does anyone have any new information on this life-saving intervention, or has anyone tried arginine supplements and survived to tell the tale...
Recently diagnosed with Psoratic Arthritis, psoriasis out of control and now on cyclosporine 😣
I’ve just joined here as I’m fed up with consulting Dr Google and would much prefer to hear real peoples experiences! Ive had psoriasis since...
Hi is anyone taking or has taken cyclosporine ( neoral ) at all and if so did it work. I have been taking it for the last 6 weeks and am find...
Alternative Therapy to Preserve Renal Transplants
I had a live-donor renal transplant 13 years ago, but I'm well aware that such transplants usually only last 15 years so I am looking for way...
I’d like to hear my responses regarding prednisone. I’ve been on it since July of ‘ 17....
Road to a BMT... oops just got there (Day+10)
1 ( normal range is 1.5 - 8 ), WBC is a 1.0 - this has been and will continue to be his toughest week....
Road to a BMT... oops just got there (Day+26)
We were finally discharged today and very happy to be home. Here are the details from our consultation with the Dr.: 1 ) BMT/blood work - ver...
Thyroid eye disease and both hashimotoes and graves antibodies
I am on cyclosporine and steroids to try to combat at the moment but would love to know if there has been success in the treatment of TED...
Starting cyclosporine on top of mycophenolate
Hi All, Having a really bad flare up this time that is really taking its time to resolve. Consultant is thinking of adding on cyclosporine on...
I am excited to join this community where us kidney transplant recipients are able to discuss the problems and frustrations that we encounter...
Road to a BMT... oops just got there (Day +50)
The reason being that CLL is a slower and more aggressive leukemia and takes longer to breakdown....
Methotrexate Oral Tablet vs Metoject.
I am currently on week 13 of the Methotrexate vs Cyclosporine clinical trial in the UK(25mg a week ). I have been feeling nauseous from the s...
Cyclosporin side effects
Hi does anyone on here find that cyclosporine gives them mild depression and anxiety. Im 51 and have been on these tablets for 2 months now a...
Hi all !
Just wanted to say Hi to everyone again I am back ,Iv been offline for a long time mainly to learn to live with all the illness’s and get my ...
Drugs to Avoid with CMT
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy ...
I have SLE ,SS, Hypo thyroid and Myeloma Cancer all diagnosed August 2015 - my question is those with lupus and /or Sjorgrens do you all take...
Cyclosporine ,Pain and fatigue
I feel so down hearted today , I was diagnosed with SLE ,Sjogrens hypo thyroid and early stage myeloma cancer last August and I feel I have b...
Hi all Does anyone suffer with atopic conjunctivitis aka giant papilliary conjunctivitis? I don't wear contact lenses which I've read is some...
I am concerned about taking it as the side effects sound horrendous and I haven't heard of any other lupies who may be on it ....
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