Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

25,769 members • 27,083 posts

All posts for July 2019

High Dose Sinemet

My 97 yr old mum was finally given a diagnosis of atypical Parkinson's after a DAT scan. She's been treated for 8 years. A few months ago she was given...

My 97 yr old mum was finally given a diagnosis of atypical Parkinson's after a D...

heidle

•5 years ago

8 Replies

Thiamin for high dose

Is thiamin hydrochloride the type I should purchase for high dose process?

Mjm012649

•5 years ago

2 Replies

Interesting ebook. Nature’s pharmacy.

https://hto-web-resources.s3.amazonaws.com/2019/5g19/bonus/registration/GreenMedInfo-5g19_natures_pharmacy_e-book.pdf Im about to start reading it as it...

https://hto-web-resources.s3.amazonaws.com/2019/5g19/bonus/registration/GreenMed...

LAJ12345

•5 years ago

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Gastroparesis, motility and slow digestion

Hi all! Has anyone experienced motility issues related to slow gastric emptying and/or gastroparesis? If so, any information on treatment? Thank you!

Hi all! Has anyone experienced motility issues related to slow gastric emptying ...

MissRita

•5 years ago

5 Replies

Source for Thiamine HCL Injectable?

McGuff Compunding Pharmacy in Santa Anna CA just informed me that they no longer compound Thiamine HCL for injection. Anyone know of a good source? The...

McGuff Compunding Pharmacy in Santa Anna CA just informed me that they no longer...

reedboat2

•5 years ago

11 Replies

Medical Disability Retirement

Hi there friends, Just wondering if any one has retired with a medical disability retirement with their PD. I’m going to see how the next school year goes...

Hi there friends, Just wondering if any one has retired with a medical disabi...

Kwinholt

•5 years ago

28 Replies

APL-130277 still without FDA Approval: Why?

Apomorphine is a somewhat strange Dopamine Agonist (non-egoline DA Parky B!) that required subcutaneous injections. It certainly hasn't been a mainline DA...

Apomorphine is a somewhat strange Dopamine Agonist (non-egoline DA Parky B!) tha...

sharoncrayn

•5 years ago

5 Replies

Dyskinesia or Tremor??? I nod my head like saying “Yes” and side to side like saying “No”..............

If I’m in front of people, the nodding starts slow but then increase speed until I can no longer control it, then when I’m by myself it stops. At first I...

If I’m in front of people, the nodding starts slow but then increase speed until...

Chicafromchitown

•5 years ago

25 Replies

Treatments for Tremor

My husband's movement specialist has said that none of the medications for Parkinson's work for tremor. Is this true, and if so, why has nothing been developed...

My husband's movement specialist has said that none of the medications for Parki...

merne

•5 years ago

49 Replies

Small Study Finds CoQ10 Effective For Relieving Orthostatic Hypotension, Including OH due to Multiple System Atrophy

This is a small study - only 7 people. However, P = .007 shows the results in this group were highly significant. I put more stock in a study like this than a...

This is a small study - only 7 people. However, P = .007 shows the results in th...

park_bear

•5 years ago

5 Replies

Dry Eye

I have had PD for 17 years, I have sever dry eye & now am scheduled for cataract surgery in both eyes. Read a few horrific post of dry eye being worse after...

I have had PD for 17 years, I have sever dry eye & now am scheduled for cataract...

flacat

•5 years ago

5 Replies

Mannitol

A big thank you to all you Mannitol uses that made me aware of its magnificent benefits! Since January I had gone from constipation to not even being able to...

A big thank you to all you Mannitol uses that made me aware of its magnificent b...

Stevenmast

•5 years ago

45 Replies

Alone in the house

Hi, I’d like to know what everyone does to stay safe while alone, either living alone or while a partner or other housemate is away. I’m fortunate to have mild...

Hi, I’d like to know what everyone does to stay safe while alone, either living ...

Lionore

•5 years ago

12 Replies

Focused Ultrasound

Good morning all, I came across some research articles and videos on focused ultrasound. Any thoughts or information on this? Thanks!

Good morning all, I came across some research articles and videos on focused ult...

MissRita

•5 years ago

11 Replies

Trial GZ/SAR402671

Anyone have any views on this trial GZ/SAR402671 dat scan and spinal tap worries me. I can get on the trial but unsure , Thanks

Anyone have any views on this trial GZ/SAR402671 dat scan and spinal tap worries...

Theyakin

•5 years ago

7 Replies

Effects of Simulated Horseback Riding on Balance, Postural Sway, and Quality of Life in Older Adults With Parkinson's Disease

The purpose of this study was to determine changes in balance, postural sway, and quality of life after 6 wk of simulated horseback riding in adults diagnosed...

The purpose of this study was to determine changes in balance, postural sway, an...

Farooqji

•5 years ago

1 Reply

REPORT: Completed 35 days of GJ Testing...

Hello, everyone, After 35 days of GJ testing, I'm now up to 250ml of GJ first thing in the morning and have no more the rest of the day... My "ON" time after...

Hello, everyone, After 35 days of GJ testing, I'm now up to 250ml of GJ first th...

TheLordsWeapon

•5 years ago

22 Replies

Levodopa and CYP3A4, but probably not Grapefruit juice... The next steps

The next step in my research will be to help set up a "Proof of Concept" trial, hopefully with an international team of experts in pharmacology,...

The next step in my research will be to help set up a "Proof of Concept" trial, ...

wriga

•5 years ago

15 Replies

Weight loss

My husband has lost nearly 4kg in weight since January, he only weighs 64kg and is 185cm tall. Any tips for healthy meals / snacks that he can eat that won’t...

My husband has lost nearly 4kg in weight since January, he only weighs 64kg and...

ruff1

•5 years ago

10 Replies

How a gut infection might spark Parkinson's

A new study examines how a gut infection with the presence of Autoimmune reaction may have a role in occurrence of PD . " As expected, the early-life...

A new study examines how a gut infection with the presence of Autoimmune reactio...

Abdiqani

•5 years ago

6 Replies

Does Magnesium, especially L-Threonate cancels out levadopa effect?

Hi, My PD friend has leg / foot cramp and I suggested Magnesium, but she said it cancels out levodopa (c/l). Any suggestion please? Thanks.

Hi, My PD friend has leg / foot cramp and I suggested Magnesium, but she said it...

TL500

•5 years ago

34 Replies

No motivation to vlog.

Hi all This is a link to my vlog about my current lack of motivation. https://youtu.be/xF56I2FGCZ0 Cheers, Ian

Hi all This is a link to my vlog about my current lack of motivation. https://yo...

Ianfrizell

•5 years ago

6 Replies

It begins in the gut, new clues

https://www.medicalnewstoday.com/articles/325803.php?utm_source=newsletter&utm_medium=email&utm_country=PF&utm_hcp=no&utm_campaign=MNT%20Daily%20Full%20%28non-H

https://www.medicalnewstoday.com/articles/325803.php?utm_source=newsletter&utm_m...

Xenos

•5 years ago

2 Replies

Fighting fatigue in Parkinson's, especially during the hot weather

https://www.fightingparkinsonsdrugfree.com/2019/07/19/fighting-parkinsons-and-fighting-fatigue/ Howard's post on fighting fatigue

https://www.fightingparkinsonsdrugfree.com/2019/07/19/fighting-parkinsons-and-fi...

parkie13

•5 years ago

1 Reply

Blue glasses replacing red light therapy

https://www.hindawi.com/journals/pd/2019/1906271/

Farooqji

•5 years ago

4 Replies

Grapefruit Juice dosing, another perspective

Yesterday I had a rather extensive conversation with my acupuncturist regarding the use of grapefruit juice. Two weeks ago I shared with him the N=1 study...

Yesterday I had a rather extensive conversation with my acupuncturist regarding ...

reedboat2

•5 years ago

27 Replies

Parkinson Therapy Center in Italy

I highly recommend the Parkinson Therapy Center located in Northern Italy, in the spa town of Boario Terme, in a scenic valley of the lake region, at the foot...

I highly recommend the Parkinson Therapy Center located in Northern Italy, in t...

Pa-zzi69

•5 years ago

6 Replies

Functional movement disorders: Successful treatment with a physical therapy rehabilitation protocol

Background: Functional (“psychogenic”) gait and other movement disorders have proven very difficult to treat. Objectives: Describe the Mayo Clinic functional...

Background: Functional (“psychogenic”) gait and other movement disorders have pr...

Farooqji

•5 years ago

5 Replies

pd plus fibromyalgia

recently diagnosed with pd. have had fibro and chronic fatigue for more than a dozen years. i'm feeling lost. don't know what way to turn. looking for others...

recently diagnosed with pd. have had fibro and chronic fatigue for more than a d...

nadine111

•5 years ago

12 Replies

CBD, THC - alone or combo - is it odd that my tremors are worse?

Hello all! Looking for thoughts or experiences on using CBD, THC alone or in combination. I have found that when I have used different strains of many...

Hello all! Looking for thoughts or experiences on using CBD, THC alone or in co...

MissRita

•5 years ago

17 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for July 2019

High Dose Sinemet

Thiamin for high dose

Interesting ebook. Nature’s pharmacy.

Gastroparesis, motility and slow digestion

Source for Thiamine HCL Injectable?

Medical Disability Retirement

APL-130277 still without FDA Approval: Why?

Dyskinesia or Tremor??? I nod my head like saying “Yes” and side to side like saying “No”..............

Treatments for Tremor

Small Study Finds CoQ10 Effective For Relieving Orthostatic Hypotension, Including OH due to Multiple System Atrophy

Dry Eye

Mannitol

Alone in the house

Focused Ultrasound

Trial GZ/SAR402671

Effects of Simulated Horseback Riding on Balance, Postural Sway, and Quality of Life in Older Adults With Parkinson's Disease

REPORT: Completed 35 days of GJ Testing...

Levodopa and CYP3A4, but probably not Grapefruit juice... The next steps

Weight loss

How a gut infection might spark Parkinson's

Does Magnesium, especially L-Threonate cancels out levadopa effect?

No motivation to vlog.

It begins in the gut, new clues

Fighting fatigue in Parkinson's, especially during the hot weather

Blue glasses replacing red light therapy

Grapefruit Juice dosing, another perspective

Parkinson Therapy Center in Italy

Functional movement disorders: Successful treatment with a physical therapy rehabilitation protocol

pd plus fibromyalgia

CBD, THC - alone or combo - is it odd that my tremors are worse?

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