Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

26,358 members • 27,732 posts

All posts for January 2019

Is your glass half-full or half-empty? 6-year-old HU thread about MJF’s sitcom about PD causes controversy.

Some are harshly critical, felt the program was in bad taste, that it’s offensive to create humor about PD, while others thought it was exactly the right...

Some are harshly critical, felt the program was in bad taste, that it’s offensiv...

MBAnderson

•6 years ago

9 Replies

Hopelessness shouldn’t be part of the news

https://vtcynic.com/opinion/hopelessness-shouldnt-be-part-of-the-news/

Farooqji

•6 years ago

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Four Neurology Studies to Know

https://www.medscape.com/viewarticle/907682

Farooqji

•6 years ago

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Disturbing facts.

Well we are now into chasing after sinamet after finding mum deterioration due to, her drug being swapped unbeknown to us! Turns out been giving mum a generic...

Well we are now into chasing after sinamet after finding mum deterioration due t...

Adrian54

•6 years ago

11 Replies

Mannitol

Please can anyone tell me how to take mannitol powder? Do you just eat it or mix with drinks? Also if you are diabetic, can you take it?

Please can anyone tell me how to take mannitol powder? Do you just eat it or mix...

Jumex2017

•6 years ago

13 Replies

How’s everyone feeling?...

How’s everyone feeling?

starlove1995

•6 years ago

2 Replies

Doc is adding Mirapex to Sinemet ...

Husband is in Sinemet 25/100, 4x/day since diagnosis 4 years ago. At recent visit with movement neurologist, he said movement is stiff and could be improved...

Husband is in Sinemet 25/100, 4x/day since diagnosis 4 years ago. At recent visi...

Mjm012649

•6 years ago

21 Replies

Must Watch (Sugar is a problem for most of us) Watch the whole video for vital information for Parkies. AMYLOIDS

"Parkinson's sufferers produce amyloids that are responsible for much of the damage in the brain. Parkinson's is classified as an amyloid disease. Amyloids are...

"Parkinson's sufferers produce amyloids that are responsible for much of the dam...

Erniediaz1018

•6 years ago

2 Replies

Design 4 Parkinson's - Sydney

As a fundraiser for https://shakeitup.org.au/pause4parkinsons/ I am looking to organise an event in April that involves the design community interviewing...

As a fundraiser for https://shakeitup.org.au/pause4parkinsons/ I am looking to o...

robhea87

•6 years ago

1 Reply

Dyskinesia in PD

Hi all This is a link to my vlog about dyskinesia in PD. https://www.youtube.com/watch?v=07LbxkB5VnM Cheers, Ian

Hi all This is a link to my vlog about dyskinesia in PD. https://www.youtube.com...

Ianfrizell

•6 years ago

2 Replies

L-Serine may slow Neuro disease progression up to 85% says Botanist.

http://fortune.com/longform/alzheimers-disease-cure-breakthrough/

Cons10s

•6 years ago

7 Replies

LEVODOPA VERDICT: Start Early/Late = Same Outcomes

"Doctors often delay prescribing levodopa, or L-dopa, to Parkinson's patients for fear that the drug might have toxic effects that produce jerky involuntary...

"Doctors often delay prescribing levodopa, or L-dopa, to Parkinson's patients fo...

PDConscience

•6 years ago

30 Replies

A Bear of very little brain

I failed my urine test last week, and had to resit it this week. This was one of 4 things that nearly got me kicked off the trial at Toulouse The others were...

I failed my urine test last week, and had to resit it this week. This was one o...

WinnieThePoo

•6 years ago

13 Replies

Any Update on Dr. Costantini?

I hope that all is well with him.

Skydome

•6 years ago

5 Replies

Swallowing?

The past few nights, I have been woken up by my swallowing reflex. I have had PD symptoms for the past six years and was diagnosed in early 2015. I became more...

The past few nights, I have been woken up by my swallowing reflex. I have had PD...

shanaandbear

•6 years ago

11 Replies

Image of our new kitchen.

Almost finished just need to put up 2 ceiling fans paint 3 doors and put bulbs and globes on light fixtures. Image of our almost complete kitchen

Almost finished just need to put up 2 ceiling fans paint 3 doors and put bulbs a...

Bailey_Texas

•6 years ago

12 Replies

Root cause

Have you seen this documentary? About links between root canals and chronic illnesses. We have a holistic dentist I'm going to see.

Have you seen this documentary? About links between root canals and chronic ill...

Pats68

•6 years ago

8 Replies

Abnormal skin sensation

Hi All I’m 71; have had PD for about 10 years; currently on C/L 25/100 faithfully every 4 hours for the past 2 years. Two days ago in the evening I noticed...

Hi All I’m 71; have had PD for about 10 years; currently on C/L 25/100 faithfull...

Grasss1973

•6 years ago

2 Replies

CrossFit for Parkinson’s

*New class coming soon to the West Midlands!!* Helping you to reach your 2.5 hours a week of high intensity exercise – the recommended dose to help you to...

*New class coming soon to the West Midlands!!* Helping you to reach your 2.5 ho...

OTEB

•6 years ago

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information ...

Good evening I am sick with Parkinson's disease. I would like information on therapy with vit B 1. Thank you

Good evening I am sick with Parkinson's disease. I would like information on the...

ildestinoaltrove88

•6 years ago

5 Replies

Feeling Better Than Last Year!

I saw my neurologist last week and he was pleased to see how well I was doing. At my previous visit (8 months prior), he said, "You must be doing something...

I saw my neurologist last week and he was pleased to see how well I was doing. A...

jujulini

•6 years ago

34 Replies

Tiamine ob Vitamine B1

I'd like to try

tiberoda

•6 years ago

1 Reply

Weather and worsening of symptoms

Anyone experience worsening symptoms related to the weather. Mine gets worse when it's humid and raining.

Anyone experience worsening symptoms related to the weather. Mine gets worse whe...

Prakash1

•6 years ago

3 Replies

Doctor Costantini

A group member reports that Doc. Costantini is temporarily out of service.

Hidden

•6 years ago

8 Replies

Is anyone aware of MS being successfully treated with high dose thiamine hcl? It has helped me with PD. I have 2 friends with MS.

Multiple Sclerosis and HDT

mannp

•6 years ago

4 Replies

Choking

Hi everyone, my husband has started to choke when he takes his medication. Does this happen to anyone else? I think he will have to have his sinemet tablets...

Hi everyone, my husband has started to choke when he takes his medication. Does ...

64sa8ndF

•6 years ago

8 Replies

Parkinson's unusual 'off' times. Wearing off begins, but medication kicks back in before taking next pill.

My Mom was diagnosed a few years ago with PD, but it has progressed a lot in the past year. She got into a stable routine with C-L(25-100), although she...

My Mom was diagnosed a few years ago with PD, but it has progressed a lot in the...

filmor14

•6 years ago

12 Replies

LOW dose thiamine.

Eighteen months ago, having been sent an article about Dr C, I began to take B1 as a 1x 100mg sublingual tablet daily. Naturally, like most of us here, I was...

Eighteen months ago, having been sent an article about Dr C, I began to take B1 ...

Dap1948

•6 years ago

128 Replies

Itchy

Anyone experience itchy skin? I woke up last night itching.

cshamb

•6 years ago

6 Replies

Has anyone seen this?

https://www.terapiaparkinson.it/en/

Theyakin

•6 years ago

22 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for January 2019

Is your glass half-full or half-empty? 6-year-old HU thread about MJF’s sitcom about PD causes controversy.

Hopelessness shouldn’t be part of the news

Four Neurology Studies to Know

Disturbing facts.

Mannitol

How’s everyone feeling?...

Doc is adding Mirapex to Sinemet ...

Must Watch (Sugar is a problem for most of us) Watch the whole video for vital information for Parkies. AMYLOIDS

Design 4 Parkinson's - Sydney

Dyskinesia in PD

L-Serine may slow Neuro disease progression up to 85% says Botanist.

LEVODOPA VERDICT: Start Early/Late = Same Outcomes

A Bear of very little brain

Any Update on Dr. Costantini?

Swallowing?

Image of our new kitchen.

Root cause

Abnormal skin sensation

CrossFit for Parkinson’s

information ...

Feeling Better Than Last Year!

Tiamine ob Vitamine B1

Weather and worsening of symptoms

Doctor Costantini

Is anyone aware of MS being successfully treated with high dose thiamine hcl? It has helped me with PD. I have 2 friends with MS.

Choking

Parkinson's unusual 'off' times. Wearing off begins, but medication kicks back in before taking next pill.

LOW dose thiamine.

Itchy

Has anyone seen this?

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