Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

25,866 members • 27,168 posts

All posts for May 2018

Are these behaviors typical and can they be repaired? freezing, walking backwards, can't dress oneself; difficulty getting in/out of bed...

I am 60 years old and just 2 years since diagnosis, which began with slight occasional typing tremors. Next came the foot & leg freezing; walking backwards...

I am 60 years old and just 2 years since diagnosis, which began with slight occa...

Nippermcc

•6 years ago

13 Replies

Is anyone taking Mirapex / pramipexole? Based on this early phase trial with good results I wanted to try it.

P2B001 combines low-dose pramipexole and rasagiline, sold under the brand names Mirapex and Azilect. The trial included these two drugs: pramipexole 0.3 mg...

P2B001 combines low-dose pramipexole and rasagiline, sold under the brand names ...

p-oui

•6 years ago

9 Replies

Marty hinz amino acid protocol for Parkinson's. How successful is it?

if you have tried it would you like to share your experience. how long have you been on it, how did it help? We want to know all the negative comments. We...

if you have tried it would you like to share your experience. how long have you...

parkie13

•6 years ago

17 Replies

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Bed/sleeping suggestions

New here and apologize if this has been covered multiple times already. The PwP falls out of bed, has extreme difficulty getting into bed, and sleeps across...

New here and apologize if this has been covered multiple times already. The PwP ...

meadowlark6581

•6 years ago

15 Replies

Alpha Synuclein: New Species is discovered called Pa-syn - could it be the cause of cell death in PD?

OK, Here's my (simplistic) take away: 1. PD is caused by lack of dopamine. In PD brain autopsies, we often see Lewy bodies. 2. Lewy bodies are at least...

OK, Here's my (simplistic) take away: 1. PD is caused by lack of dopamine. In P...

p-oui

•6 years ago

4 Replies

Next gen DBS

Anyone using the Vercise DBS devise? I am interested in any feedback. Also do you know any medical facilities that are using them in San Francisco Bay Area. Thx

Anyone using the Vercise DBS devise? I am interested in any feedback. Also do yo...

Jgenet

•6 years ago

1 Reply

Determining the right dose of thiamin HCI

Today, 5/22/2018; all under control now after returning five days earlier to the original four grams daily of thiamin HCI. Earlier: Initial success was at 4g...

Today, 5/22/2018; all under control now after returning five days earlier to the...

Hidden

•6 years ago

53 Replies

Parkinson's Movement Summer Newsletter

parkinsonsmovement.com - the sister site to this forum, designed and created by people with Parkinson's for people with Parkinson's and researchers has...

parkinsonsmovement.com - the sister site to this forum, designed and created by ...

CPT_Helen

Partner•6 years ago

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Research participation

www.parkinsonsmovement.com - the sister site to this forum, designed and created by people with Parkinson's for people with Parkinson's and researchers, is...

www.parkinsonsmovement.com - the sister site to this forum, designed and created...

CPT_Helen

Partner•6 years ago

1 Reply

What my emotions did to me last night.

Last night things went bad with my grandson. It is 17 and struggling with his identity. He has been wearing makeup among a few other things that his mom does...

Last night things went bad with my grandson. It is 17 and struggling with his i...

Bailey_Texas

•6 years ago

10 Replies

Update on Hinz Protocol

Hi, just wanted to wrap back around to let you all know about my mom's experience with the Hinz protocol, or amino acid therapy. My mom had to discontinue it...

Hi, just wanted to wrap back around to let you all know about my mom's experienc...

SKCW

•6 years ago

7 Replies

Brain Booster Supplement?

https://www.advancedbionutritionals.com/MLG/CIO/ABFSLGMYBSE/V1/SLHP.htm?utm_source=House&utm_medium=Primary&utm_campaign=ABFSMPJE18&utm_content=CTA&svp_cmguid=0

https://www.advancedbionutritionals.com/MLG/CIO/ABFSLGMYBSE/V1/SLHP.htm?utm_sour...

Despe

•6 years ago

4 Replies

Anyone else experience this?

When I stand up and walk I have to curl my toes, and keep my leg straight to be able to move my leg for about 2-3 minutes. Does anyone else experience this?

When I stand up and walk I have to curl my toes, and keep my leg straight to be ...

Thomaskatie

•6 years ago

2 Replies

Have you worked with or are familiar with John Gray?

John Gray reversed his parkinson's via a large selection of supplements...has anyone tried his program or is familiar with it?

John Gray reversed his parkinson's via a large selection of supplements...has an...

Nippermcc

•6 years ago

3 Replies

Have you worked with or are familiar with John Gray?

John Gray reversed his parkinson's via a large selection of supplements...has anyone tried his program or is familiar with it?

John Gray reversed his parkinson's via a large selection of supplements...has an...

Nippermcc

•6 years ago

28 Replies

Help needed

My husband has been diagnosed nearly 12 years, on Asilect, Ropinerole and Stelevo, also 4g Thiamine. He runs, plays golf, goes to a physio led gym 4 x’s a week...

My husband has been diagnosed nearly 12 years, on Asilect, Ropinerole and Stelev...

ruff1

•6 years ago

40 Replies

Stiff Persons Syndrome

I have Parkinsons and was diagnosed 12 years ago. I have posted on this site several times in the past. I have been not following the chats for awhile because...

I have Parkinsons and was diagnosed 12 years ago. I have posted on this site sev...

dboobar

•6 years ago

3 Replies

DBS, having MRI to determine if placement is correct

I had DBS 3 years ago. It is helping alot but still am on a roller coaster of off and on every two hours. The doc thinks I may not have the right placement...

I had DBS 3 years ago. It is helping alot but still am on a roller coaster of o...

jebbers

•6 years ago

2 Replies

Contact details for Dr Costantini

I know that I ought to be able to find these by searching posts, but I have searched unsuccessfully all morning and have decided to just ask. Also, how do I...

I know that I ought to be able to find these by searching posts, but I have sea...

Celtis

•6 years ago

6 Replies

More Correspondence with Dr Costantini

Yesterday I wrote to Dr Costantini explaining my situation : age 76, 80 kg, newly diagnosed, mild temor etc. I have just started very low dose of Ropinirole. I...

Yesterday I wrote to Dr Costantini explaining my situation : age 76, 80 kg, newl...

wriga

•6 years ago

55 Replies

Sharing information

Firstly, thank you so much to everyone who corresponds with Dr Cosentini. and generously shares his responses with the rest of us. It’s so helpful. In the...

Firstly, thank you so much to everyone who corresponds with Dr Cosentini. and ge...

stevie3

•6 years ago

1 Reply

Update about my gambling problem.

About my recent bout with gambling. I am doing good. I stopped the Ropinirole and i have hardly thought about gambling. I have bought 2 lotto tickets in the...

About my recent bout with gambling. I am doing good. I stopped the Ropinirole a...

Bailey_Texas

•6 years ago

8 Replies

SoPD blog post: A vaccine for Parkinson’s – the AFFiRiS update

The recent update from AFFiRiS (as reported in iqbaliqbal's recent thread) has triggered a substantial post on the SoPD blog....

The recent update from AFFiRiS (as reported in iqbaliqbal's recent thread) has t...

jeffreyn

•6 years ago

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Post DBS Surgery

It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I...

It has now been five months since my DBS surgery. My brain is healing, the pro...

annmariebaird

•6 years ago

2 Replies

Post DBS Surgery

It has now been five months since my DBS surgery. My brain is healing, the proof of which is that I am again reducing my meds. It is a balancing act - I...

It has now been five months since my DBS surgery. My brain is healing, the pro...

annmariebaird

•6 years ago

3 Replies

Books Written By Parkinson’s “Experts” Are Like Bad Lawn Mower Manuals

I really appreciate this site with all of you caring people offering helpful, realistic advice. Maybe I’m just bitter, but I just read a book by a well known...

I really appreciate this site with all of you caring people offering helpful, re...

jimcaster

•6 years ago

21 Replies

Mischley's Parkinson's Progression Survey

I am sure many of you are aware of Laura Mischley's Chart with regards to Parkinson's disease progression:...

I am sure many of you are aware of Laura Mischley's Chart with regards to Parkin...

alexask

•6 years ago

16 Replies

SIDE EFFECTS

I have read in several different sources that levodopa /carbidopa side effects are/could be severe. Am wondering what everyone's take is. I read somewhere...

I have read in several different sources that levodopa /carbidopa side effects a...

ranger6970

•6 years ago

10 Replies

My correspondence with Dr Cosentini

Sharing this in case it can be helpful to anyone. I wrote to Dr Cosentini for advice on Thiamine dosage this morning. He responded in about an hour! Here it...

Sharing this in case it can be helpful to anyone. I wrote to Dr Cosentini for ad...

bassofspades

•6 years ago

44 Replies

Thiamine

Does anyone know Dr. Constantine’s email address

Antonette61

•6 years ago

1 Reply

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for May 2018

Are these behaviors typical and can they be repaired? freezing, walking backwards, can't dress oneself; difficulty getting in/out of bed...

Is anyone taking Mirapex / pramipexole? Based on this early phase trial with good results I wanted to try it.

Marty hinz amino acid protocol for Parkinson's. How successful is it?

Bed/sleeping suggestions

Alpha Synuclein: New Species is discovered called Pa-syn - could it be the cause of cell death in PD?

Next gen DBS

Determining the right dose of thiamin HCI

Parkinson's Movement Summer Newsletter

Research participation

What my emotions did to me last night.

Update on Hinz Protocol

Brain Booster Supplement?

Anyone else experience this?

Have you worked with or are familiar with John Gray?

Have you worked with or are familiar with John Gray?

Help needed

Stiff Persons Syndrome

DBS, having MRI to determine if placement is correct

Contact details for Dr Costantini

More Correspondence with Dr Costantini

Sharing information

Update about my gambling problem.

SoPD blog post: A vaccine for Parkinson’s – the AFFiRiS update

Post DBS Surgery

Post DBS Surgery

Books Written By Parkinson’s “Experts” Are Like Bad Lawn Mower Manuals

Mischley's Parkinson's Progression Survey

SIDE EFFECTS

My correspondence with Dr Cosentini

Thiamine

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