Stiff Persons Syndrome

[dboobar]

I have Parkinsons and was diagnosed 12 years ago. I have posted on this site several times in the past. I have been not following the chats for awhile because my health issues have been quickly evolving. I was recently tested for autoimmune problems (I also have vitiligo, an autoimmune condition of the skin) and they found that I have Anti-Glycine Receptor Antibodies in my blood. This directly correlates to me now, more than likely, having an additional diagnosis of Stiff Persons Syndrome. (SPS); it has very similar symptoms to that of Parkinsons (muscle stiffness, pain, anxiety, etc.). The doctors are still looking at a few things including doing nerve testing (EMG) and checking my spinal fluid (CSF) for anti-GAD65 antibodies. The best place to research this SPS is in the following place: thetinman.org/.

The question now is: do I have both diseases? Does anyone have experience with this disease?

I hope someone out there can provide me with some guidance.

[Dragona]

I am wondering if you would benefit from CBD oil amazing results are being obtained from this oil

[Hidden]

Talk to your doctor about using Tacrolimus for SPS. There is one study suggesting it can be effective for some.

Art

[Richter]

All i can add is that i had DBS 5 months with great result exept for a new symptom: stiffness and leg cramps.