Hi, just wanted to wrap back around to let you all know about my mom's experience with the Hinz protocol, or amino acid therapy. My mom had to discontinue it because every time they tried to increase levels she had vomiting. Ultimately, she lost ten pounds, and it didn't appear that the magical balance was going to be obtained. As a possible caveat, after starting the protocol, a neurologist who is well known for PD in San Diego, CA, felt her diagnosis should be changed to Dementia with Lewy Bodies, an atypical Parkinson's that doesn't always respond well to Levadopa therapy. I did feel that her gait improved substantially with the introduction of Mucuna (the more natural form of Levodopa), but exercise was also increased at this time too. It was disappointing, but I took away from it two things, one: the possible efficacy of Mucuna as a dopamine replacement and two: the wish for people to be aware of the diagnosis of Dementia with Lewy Bodies when facing Parkinsonism symptoms, as well as the med intolerance that can go with it. It seems not enough is really understood about all the variations, but the fact that DLB might be considered a kind of hybrid of Parkinson's and Alzheimer-like issues, introduces the need to potentially focus on acetylcholine supplementation, as well.
Warm Wishes of Healing and Help to All,
Sarah
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SKCW
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Hello SKCW, first of all, how are you and your mom doing.
Sorry I'm late here, but just in case it may still be useful I'm sharing with you the following information regarding the Hinz Protocol I have since very long:
According with the formulators of the Hinz Protocol:
"If we can catch the disease in the early stages, when enough dopamine neurons remain, restoration of functions with balanced amino acid precursors can occur. Please note, when Parkinson’s progresses to late stages, there are too many dopamine neurons in the brain that are permanently damaged. No amount of amino acids or drugs will be able to restore proper function. Those with advanced disease are not candidates for this approach."
PERSONAL NOTE:
ACCORDING TO RESEARCHERS:
LITHIUM OROTATE (A MINERAL, NOT A DRUG) causes the release of neurotrophic factors that induce neurons to repair themselves and grow rather than die off when they're under stress. That causes an increase in gray matter.
ACETHYL L-CARNITINE ARGINATE stimulates the growth of new neurites in the brain by an astounding 19.5% which is almost 4 times better than ALC.
Just for curiosity, was your mom prescribed antipsychotic drugs. These drugs appear to block dopamine, acetylcholine, noradrenaline, or serotonin receptors.
As for acetyl l-carnitine arginate, I'm trying to avoid sharing any kind of information that sounds promotional, but just do some research you'll find plenty on your search engine. Good luck.
Thank you for your wishes. My mom was not on any antipsychotics. The experience with the Hinz Protocol was just not good. I still think Mucuna could be very promising, but then I don't know how a person is supposed to know how to navigate the unregulated supplement industry to make sure what you're getting is a clean, pure form at the strength/dosage advertised. I know for her melatonin, we get USP verified, to at least get some sort of spot testing of a company's supply. There is a study in Canada that tested various melatonin supplemental products. It was crazy, some of them were twenty times the strength advertised, others had serotonin in them. So that is something else for the community to balance. My mom is now on Rytary, which has been such a great shift from her original Sinemet. Instead of wearing off at an average of 90 minutes, it lasts five hours! There is some thought that there is a connection between all the on-offs of Sinemet and the medication caused dyskinesias. My mom had quite a pain in her leg that disappeared after going on the Rytary (causal connection between the lack of on-offs, maybe??) She is also on the Excelon patch, which I think has been helpful. She still struggles with being able to fully express all of her thoughts. They want to add Namenda, but I am uncertain what to think of this. Anyhow, wish you well,
If I were a healthcare provider I wouldn't prescribe anything without previously trying to identifying and as much as possible understanding PD causative factors, instead of just adding med after med and adjusting dosages but without knowing what exactly causes and exacerbates such a terrifying symptoms, in first place.
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