Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

25,550 members • 26,870 posts

All posts for August 2016

Azilect - take it in the evening or in the morning?

What do you think is best - or does it matter? It is giving me more energy but I also struggle with sleepiness in the evening and especially if I drink wine...

What do you think is best - or does it matter? It is giving me more energy but ...

p-oui

•8 years ago

33 Replies

Can't handle controversy any more.

I find that any time I get even a little upset my symptoms get so much worse even though I'm on medication. I can't watch any political anything without...

I find that any time I get even a little upset my symptoms get so much worse eve...

TheresaCurley

•8 years ago

39 Replies

MJFF has recently funded several studies on treatments

MJFF has recently funded several studies on treatments for common, but often under-addressed non-motor symptoms in people with Parkinson's, including: •A...

MJFF has recently funded several studies on treatments for common, but often un...

Hidden

•8 years ago

6 Replies

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Medical marijuana

Hello all just to give everyone out there suffering with CBD my husband has it now for eleven years, we going to try medical marijuana it's the last thing to...

Hello all just to give everyone out there suffering with CBD my husband has it n...

Marg52

•8 years ago

34 Replies

A question about Azilect

I was having problems with my emotions. I would get depressed about small things. Things like it was the end of the day and i had not done any thing...

I was having problems with my emotions. I would get depressed about small thing...

Bailey_Texas

•8 years ago

13 Replies

Restless

I can't sleep,also can't just lay there resting,have a compulsion to get up,more like an oppressive urge toget up,can't fight this urge.anybody else have...

I can't sleep,also can't just lay there resting,have a compulsion to get up,more...

Palace69

•8 years ago

16 Replies

I have Parkinson’s disease (PD). How can I be considered for a UVA clinical trial involving focused ultrasound?

Email fusbrain@virginia.edu if you experience severe dyskinesia symptoms and would like to know if you qualify for our current PD trial....

Email fusbrain@virginia.edu if you experience severe dyskinesia symptoms and wo...

Hidden

•8 years ago

1 Reply

Changing Meds to balance motor fluctuation and dyskinesia - Still working on it.

I recently had my annual visit with my neurologist. The main thing I asked him to help me with was to adjust my meds to reduce off times while...

I recently had my annual visit with my neurologist. The main thing I asked him ...

Joanne_Joyce

•8 years ago

16 Replies

dopamin production

Somthing for us with parkinson? Helps with dopamin production http://www.nature.com/articles/ncomms8934

Somthing for us with parkinson? Helps with dopamin production http://www.nature...

snorre

•8 years ago

14 Replies

New meds added what to expect

Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X day, 1 rasagaline at night, and 1 clomazapam 0.5 at night. This has now...

Hi all, My husband 5 yrs dx was on stavelo x 4 a day, 6mg patch, amantadine 2 X ...

allofatremor

•8 years ago

4 Replies

Xadago

I started using this new drug recently. It is awesome! It extends the life of sinemet and totally knocks out any dyskinesias. It is a miracle and I hope all...

I started using this new drug recently. It is awesome! It extends the life of s...

rhenry45

•8 years ago

41 Replies

Lip biting

Hello my father has Parkinson's and is constantly biting his lip when he eats. He has so much pain with it and the doctors don't seem to have any answers....

Hello my father has Parkinson's and is constantly biting his lip when he eats. ...

Hawaii004

•8 years ago

9 Replies

resource - American Parkinson Disease Association

http://apdaoptimism.org/connect-resources/ The American Parkinson Disease Association nationwide network provides information and referral, education and...

http://apdaoptimism.org/connect-resources/ The American Parkinson Disease Associ...

Hidden

•8 years ago

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Balancing act -parkinson's and dehydration

Hi guy.. I worked in medicine 30 years...I have great doctors, but they all missed dehydration. I brain was slow...weak and cramps in legs..arms..and toes....

Hi guy.. I worked in medicine 30 years...I have great doctors, but they all miss...

surfgirlhj

•8 years ago

5 Replies

About Nilotinib

Yea I know, I am on hiatus, but I am rendering video files which take about 2 hours to make 1 and I was bored (blah, blah, blah....). Threads on Nilotinib has...

Yea I know, I am on hiatus, but I am rendering video files which take about 2 ho...

silvestrov

•8 years ago

18 Replies

Manufacturing Dopamine in the Brain with Gene Therapy

https://www.technologyreview.com/s/602193/manufacturing-dopamine-in-the-brain-with-gene-therapy/ “This trial is to restore the enzyme and allow them to be...

https://www.technologyreview.com/s/602193/manufacturing-dopamine-in-the-brain-wi...

Hidden

•8 years ago

4 Replies

Left side vs right side

I know my tremors are worse on my right side but my left side also has tremors. This morning while I was walking I noticed my shadow and it is my left arm that...

I know my tremors are worse on my right side but my left side also has tremors. ...

TheresaCurley

•8 years ago

5 Replies

Do you still drive with PD?

I was talking to my husband yesterday and he said he would rather not have me driving anymore because of my slower response time. I told him we should buy one...

I was talking to my husband yesterday and he said he would rather not have me dr...

TheresaCurley

•8 years ago

37 Replies

"The Wahls Protocol."

I never knew what to eat as a PD person. Now I found a protocol I think will do a world of good. Google 'the Wahls Protocol" if you are interested. The first...

I never knew what to eat as a PD person. Now I found a protocol I think will do ...

12stargate

•8 years ago

7 Replies

Is rytary the same as madopar CR?

I have just had a terrible weekend due to a hopelessly ill-informed non-specialist GP (substituting for the consultant neurologist at an outpatient appt)...

I have just had a terrible weekend due to a hopelessly ill-informed non-speciali...

pen1

•8 years ago

4 Replies

Going for walks

As of today I am back to walking in the morning. I did 1/2 mile this morning. I am exhausted but that is to be expected, I'll recover. I use to walk 2 miles...

As of today I am back to walking in the morning. I did 1/2 mile this morning. ...

TheresaCurley

•8 years ago

5 Replies

Trying Rytary again.

Will post results. First dose got 6 good hours of good time.

Bailey_Texas

•8 years ago

20 Replies

Protein Update

This is an update to my previous post about protein and PD meds. I am a 68 year old female diagnosed in 2002. I take 1 Sinemet 5X daily and 2 Rytary 3X...

This is an update to my previous post about protein and PD meds. I am a 68 yea...

annmariebaird

•8 years ago

31 Replies

HELPED AS A RESULT OF DEEP BRAIN SURGERY(NEW)

Hi My real name is Darryl and I come from South Africa .My brothers gave me the ridiculous nickname Dal Pop.Iam 63 years old but Iam young at heart and...

Hi My real name is Darryl and I come from South Africa .My brothers gave me the...

dalpop

•8 years ago

2 Replies

What are reasonable expectations for my neurologist

I have Parkinsons. I recently went in for my annual neurological checkup. After reporting in on symptom progression I expressed interest in knowing more...

I have Parkinsons. I recently went in for my annual neurological checkup. Afte...

FMundo

•8 years ago

54 Replies

I'm confused

What are the differences between Parkinson's Disease and Parkinsonism? How can they identify one from the other and is one less progressive than the other?

What are the differences between Parkinson's Disease and Parkinsonism? How can t...

TheresaCurley

•8 years ago

12 Replies

No sleep

I'm 36 and was diagnosed PD 5 years ago. Presently I'm on C/L 25/250, 1 tablet every 2 hours. I can't do anything until I take d med. Only sleep btw 30mins to...

I'm 36 and was diagnosed PD 5 years ago. Presently I'm on C/L 25/250, 1 tablet e...

Shege1

•8 years ago

12 Replies

Is this pd?

i'm new here (joined in late july) forgot to check in. I probably have pd, need much more than I got to be convinced. I have no tremors, I have a defined spot...

i'm new here (joined in late july) forgot to check in. I probably have pd, need ...

999---666

•8 years ago

13 Replies

Could dopamine be too much? Or is it a wrong Diagnostic PD 5 years ago?

I was diagnosed 5 years ago with PD , started then on levodopa carbidopa (Sinemet) , I am now on 2 tablets 4 times a day. I get Dystonia (I was told) in my...

I was diagnosed 5 years ago with PD , started then on levodopa carbidopa (Sineme...

Bouffere85

•8 years ago

8 Replies

Adding meds

I've had PD for almost 9 years. I've had nothing but Carbidopa/Levodopa 25/100,starting low with 1 1/2 tabs 3 times /daily. Now, 9 years later, I'm taking 2...

I've had PD for almost 9 years. I've had nothing but Carbidopa/Levodopa 25/100,s...

si-simary

•8 years ago

32 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for August 2016

Azilect - take it in the evening or in the morning?

Can't handle controversy any more.

MJFF has recently funded several studies on treatments

Medical marijuana

A question about Azilect

Restless

I have Parkinson’s disease (PD). How can I be considered for a UVA clinical trial involving focused ultrasound?

Changing Meds to balance motor fluctuation and dyskinesia - Still working on it.

dopamin production

New meds added what to expect

Xadago

Lip biting

resource - American Parkinson Disease Association

Balancing act -parkinson's and dehydration

About Nilotinib

Manufacturing Dopamine in the Brain with Gene Therapy

Left side vs right side

Do you still drive with PD?

"The Wahls Protocol."

Is rytary the same as madopar CR?

Going for walks

Trying Rytary again.

Protein Update

HELPED AS A RESULT OF DEEP BRAIN SURGERY(NEW)

What are reasonable expectations for my neurologist

I'm confused

No sleep

Is this pd?

Could dopamine be too much? Or is it a wrong Diagnostic PD 5 years ago?

Adding meds

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