An Unusual Parkinson’s Case – Your Thoughts

Here is an email I shared with a neurosurgeon friend. I hope it offers a renewed sense of hope

I also wanted to share with you a rather unusual case, which we had already discussed, and on which I would very much appreciate your opinion.

For the past three years, I have been providing daily support to a friend diagnosed with Parkinson’s disease in 2018. Over time, I have implemented various approaches and techniques—mostly empirical—and the results have been quite remarkable.

If we focus solely on the typical motor symptoms of the disease, setting aside the psychological aspects, the following improvements have been observed:

• Near-complete disappearance of resting tremors

• Fluctuating rigidity now well controlled

• Complete restoration of sleep

• Significant improvement in constipation

• Approximately 70% reduction in bradykinesia (outside of rigidity phases)

By the end of the first year, we had already achieved:

• The disappearance of a debilitating dystonia in the front of the right foot

• Motor recovery of the right hand, currently 85% functional

• Elimination of intense daily fatigue, previously close to exhaustion

The care remains a daily commitment, but paradoxically, the amount of time I devote to it is gradually decreasing, without any negative impact on my friend’s health status.

Despite this sustained clinical improvement over the past three years, the neurologists we have consulted have shown no interest in analyzing the case or attempting to understand the underlying pathophysiological mechanisms.

[RBDNoPDYet]

interesting. What are you doing?

[Hidden in reply to RBDNoPDYet]

I am a scientist and a trained dentist, and I had the opportunity to work within a university neurosurgery department in Brussels for eight years.

My friend, a neurosurgeon specializing in deep brain stimulation (DBS), allowed me to be closely involved with many patients suffering from Parkinson’s disease. This close contact taught me a great deal, both clinically and personally. As he often reminds me, Parkinson’s disease is extremely complex and requires deep, comprehensive knowledge.

Regarding the protocol followed by the patient I’m assisting: she takes Prolopa 250 mg, half a tablet, six times a day. That is her only medication.

In addition, she follows a strict organic (bio) diet.

It’s important to note that a DaTSCAN, performed in August 2022, unfortunately confirmed the diagnosis as positive.

When I began working with her, she could barely walk 500 meters, needing to sit down twice along the way to rest. Eight weeks later, she managed to walk 20 kilometers — of course, following a carefully planned, gradual training program.

The full account of her progress has been shared in a letter I sent to my neurosurgeon friend.

My therapeutic approach is based primarily on a combination of very gentle cranial osteopathy, fasciatherapy, and other techniques I’ve developed specifically for her condition.

All I can say is that no neurologist has been able to explain this “miracle” — not even the one who has been following her since the diagnosis in 2018 and who has conducted multiple clinical tests, which you are surely familiar with.

I should also emphasize that the regression of her symptoms did not occur in a linear fashion; we had to overcome several complex challenges along the way.

But today, the results are clear and indisputable — and ultimately, that is what truly matters.

[JayPwP]

This is extremely interesting but I am not sure why the post is so ambiguous...

Would you please share the exact protocol your friend is following with your help.

Consider every PwP here as your friend and help them.

[Hidden in reply to JayPwP]

There is no ambiguity in this account.

I am a scientist and a trained dentist, and I had the opportunity to work within a university neurosurgery department in Brussels for eight years.

My friend, a neurosurgeon specializing in deep brain stimulation (DBS), allowed me to be closely involved with many patients suffering from Parkinson’s disease. This close contact taught me a great deal, both clinically and personally. As he often reminds me, Parkinson’s disease is extremely complex and requires deep, comprehensive knowledge.

Regarding the protocol followed by the patient I’m assisting: she takes Prolopa 250 mg, half a tablet, six times a day. That is her only medication.

In addition, she follows a strict organic (bio) diet.

It’s important to note that a DaTSCAN, performed in August 2022, unfortunately confirmed the diagnosis as positive.

When I began working with her, she could barely walk 500 meters, needing to sit down twice along the way to rest. Eight weeks later, she managed to walk 20 kilometers — of course, following a carefully planned, gradual training program.

The full account of her progress has been shared in a letter I sent to my neurosurgeon friend.

My therapeutic approach is based primarily on a combination of very gentle cranial osteopathy, fasciatherapy, and other techniques I’ve developed specifically for her condition.

All I can say is that no neurologist has been able to explain this “miracle” — not even the one who has been following her since the diagnosis in 2018 and who has conducted multiple clinical tests, which you are surely familiar with.

I should also emphasize that the regression of her symptoms did not occur in a linear fashion; we had to overcome several complex challenges along the way.

But today, the results are clear and indisputable — and ultimately, that is what truly matters.

[ghoegap in reply to Hidden]

If you want comment or input you could simply post the letter you sent to the neurologist. It is of course your right to not share what has worked for this person. Then I have to wonder why you posted on the forum?

[JayPwP in reply to ghoegap]

👍👍👍

[JayPwP in reply to Hidden]

So she's on 750mg Prolopa per day... That's about the standard dose for moderate PD severity.

[TealWater]

I concur this is a miracle for a remission of symptoms! Could you share in greater detail what was done? Based on your original post and your reply, your friend with Parkinson's achieved these results via the following:

- Prolopa 250 mg, half a tablet, six times a day

- a strict organic (bio) diet

- a carefully planned, gradual training program (for walking)

- gentle cranial osteopathy

- fasciatherapy

- "other techniques I’ve developed specifically for her condition"

Could you please elaborate on some of these things? Does the diet include meat? Is there a greater emphasis on good fats, clean protein, or carbs? Grains or no grains? Fruits or no fruits? I don't understand what you mean by "bio". Did the training plan include just walking or were there other strengthening or flexibility exercises involved? What was the nature of the fascia therapy - massage, block therapy, e-stim, yoga, heat? Could you please share some of the other techniques you developed specifically for her condition?

You said there is a daily regimen that must be adhered to. I take it that if it is not, symptoms return? For past three years has she been doing all of it? Or was there an introduction of the various interventions at certain intervals? Were there interventions that were tried that were unsuccessful?

There probably isn't one person on this forum that isn't both shaking their head AND not at all surprised at the neurologists' lack of interest. The medical professionals and pharmaceutical companies do not want to comment or listen to you because there is no money to made by them!

[Edge999 in reply to TealWater]

Agree, please give more details especially on diet

[Hidden in reply to TealWater]

Dietary Regimen:

We adopted a balanced diet that includes a variety of foods without specific exclusions. The focus was on moderate sugar intake, eliminating salt (replaced by spices), and maintaining daily hydration of 1.5 to 2 liters. All products were sourced from organic farming, certified by recognized European labels. To assist in our choices, we used the Yuka application and regularly consulted the French monthly magazine “UFC Que Choisir.” These tools allowed us to avoid products potentially harmful to health, not only in food but also in areas such as household products, clothing, and cosmetics.

Medical Background:

Before our meeting, my friend had consulted five neurologists and undergone treatments with at least six different physiotherapists, without significant results. Her condition had deteriorated to the point where she had considered euthanasia in November 2022. Our collaboration marked a decisive turning point in her journey.

Therapeutic Approach:

My approach involved maintaining her medication regimen while adopting a radically different strategy from previous methods. Given her background as a former athlete, her muscular condition did not require strengthening but rather relaxation, particularly of the posterior chain muscles.

Contrary to conventional recommendations advocating for a gradual improvement in walking and physical condition, I opted for an intensive method, which I call the “bulldozer method.” This approach involved intensive training that, in her case, proved effective. It is important to note that this method may not be suitable for everyone and should be individually tailored.

Observed Results:

Several symptoms have completely disappeared, including sleep disturbances, constipation, lack of dexterity in the right hand, episodes of extreme fatigue, dystonia of the right foot, and almost all tremors. However, variable rigidity persists, which we combat daily with specific techniques and stretching exercises performed each morning. Bradykinesia, though present, is minimally disabling and significantly decreases in the absence of rigidity. Occasionally, difficulties in initiating walking occur, but they subside after gentle manipulation of the lumbar region in a standing position, accompanied by a cranial technique.

The guiding principle is to intervene at the onset of a symptom. I have noticed that in my absence, she is less active, highlighting the importance of regular support.

In an upcoming post, I will detail the different techniques I use, should this interest the forum members.

[Allypally49]

Got to agree, anything I've observed or tried and works is met with silence.

Recently observed WWP who struggles to walk even with the aid of a 3 wheeled Delta in the house and outside, manages her steps a lot better when asked to walk in a large clear room

My observations was that in the house and outside, her objective is to achieve to get from A to B whereas in the large room she has no objective thus no anxiety and no fear of falling as the room is clear of any objects in her path.

When mentioning this....no feedback was giving.

[4everhealthy]

If there's hope, please, clarify!

[Weng888]

this is encouraging to know

[Zscaleplanet]

No proof of anything! You make a lot of claims and offer zero, nada, zilch proof. I looked up your bio and your five other posts are just as ambiguous and just as odd.

You also stated — “The full account of her progress has been shared in a letter I sent to my neurosurgeon friend.” Did you send your so-called neurosurgeon friend the exact protocol in your letter???? Doubtful.

Either post the full protocol or we’ll need to have a moderator examine your posts as being some sort of a rouse or eventual scam.

[ByeByeChocolate]

Can you share what you have done to help your friend?

[ByeByeChocolate]

I have now read through the other comments and am very intrigued. I do NOT have a diagnosis as of yet, but I am quite sure that I have Parkinson’s. I would love to have you reach out to me and offer some aaaistance. I will tell you at that time what I have done so far!

[Allyn]

When I was first diagnosed in 2013 the neurologists never mentioned exercise. It was shortly after that it seemed the docs finally caught on to what John Pepper had been preaching for years.

[LAJ12345]

I don’t think this is such a surprise. You have covered the pillars of better health. Exercise outside in the daylight, diet, companionship and a sense of working together for a purpose, relieved anxiety by being a support has stopped them feeling doomed. Given hope.

[Leest2023]

I am ultra skeptical of anecdotal reports of miraculous improvements, especially when the sample size is one person and the description of what was done is so vague. Not only are placebo effects and confirmation bias enormously powerful, but Parkinson's disease is so highly variable that even if everything you say is true, maybe it won't apply to almost anyone else. This post smells like a scam to me and I wonder when the next post arrives with you trying to sell something.

[Hidden in reply to Leest2023]

I fully understand your reaction — especially since I myself ask some of the very same questions you’ve raised, almost daily.

Coming from a medical background, I’m not someone who subscribes to miracle theories or feeds false hope. Sadly, such hope often fades quickly, either during the review of the medical history or after a thorough examination by a competent neurologist.

I waited three years before sharing this account, precisely out of concern that the symptoms might return once any potential placebo effect wore off. And yet, one of the many neurologists who treated my friend was so deeply puzzled by the clinical picture that he asked a DaTSCAN specialist to re-examine the images to make sure we were indeed dealing with Parkinson’s disease.

Moreover, the title speaks for itself: I have never claimed this case could be generalized — quite the opposite. I’m simply reporting what I have been observing for the past three years.

Finally, your implicit suggestion that I might somehow be profiting financially from this surprising story is unfounded. On that point, at least, there is no ambiguity.

As for the rest, to quote the great biologist Jacques Monod:

“I seek to understand.”

[Zscaleplanet in reply to Hidden]

21 days ago you replied to a post from member Armyman about dry voice. In your reply you stated. “My wife, who is affected by the disease, does it every day, and this symptom has completely disappeared.”

Yet here today, you have started a new post about your female friend with Parkinson’s. So, does your wife know about this friend you are treating??? Or are you referring to your wife as this friend. If I ever referred to my wife as my friend, Parkinsons would no longer be something I was worried about, as DEATH would be my biggest concern.

I think you are a fake and are gearing up to either announce a book you are peddling, a clinic you are trying to start, or you are going to prey on some poor desperate woman suffering from Parkinson’s who may very well put her trust in your shenanigans and lose her life savings to a con man.

You claim to be a dentist - I want you to post your full name and your practice address / country of practice, etc. That way I and all of the members can look you up and validate who you are. Same with your claim to be a scientist !!!

Folks - especially the females suffering from Parkinson’s, please-oh-please be very very leary of this individual. The vague statements, and multiple other clues should have already raised flags in your mind. I smell a fake.

[kevowpd]

Adequately medicated PWP's dentist friend goes online to advertise (vague details of) yet another inevitably irreplicable supposed recovery/reversal.

There's certainly a book to be written about what you don't know about PD, that much is unambiguous.

[Esperanto]

I completely understand the skeptical stance that some members take. I attribute the somewhat peculiar language and the simultaneous use of "wife" and "friend" to a possible translation from French. Still, the so-called success stories continue to fascinate me, and I strive to uncover the potential (real) causes behind the remarkable improvements some individuals claim to have experienced.

So, Gerar04577, I was willing to give you the benefit of the doubt, but you are now Hidden… Unlike many of those "miraculous" cures, there is no mention here of monotherapies involving Jesus, fast walking, herbal concoctions, or supplements. Instead, the broad holistic approach applied here might have broken the negative spiral. By alleviating a few symptoms, one could enter a positive flow. However, it's challenging to articulate this phenomenon.

I have personally experienced a similar escalation of PD symptoms, but coinciding with the onset of peripheral neuropathy, I stumbled upon a possible issue with my B6 balance. That "luck" amidst misfortune led to a comparable recovery, and I certainly didn't wait three years to share my experiences.

Therefore, if even the use of a simple B-complex can mask the underlying cause of the decline, it remains crucial not to throw in the towel too quickly when faced with unexplained worsening of symptoms. Optimism without hope. 🍀