1) Don’t start Carbidopa/Levodopa or change. (I won’t say don’t follow doctor’s instructions, but most doctors are not aware of HDT and please discuss with your doctors, mine says if helps—great, and I have had her change her instructions via discussions.)
2) Read Dap1948 's book “Parkinson’s and the B1 Therapy.” The online version might be best due to links and searchable. amazon.com/gp/product/B09TZ... .
a) Join her Facebook group (Should avoid B6 issue* on Facebook). facebook.com/groups/parkins... .
b) With B1 Therapy, the biggest improvements come with time. Find your sweet-spot and give it time.
c) Take note of symptoms. I wish I had kept a better daily log of them. You need to establish a good baseline to judge your improvements. While increasing B1 you should note any improvements. Some will be things you did not associate with Parkinson’s.
d) Start magnesium, B complex, etc. per book. Don’t take any other supplements until after few months at sweet-spot.
e) After noting symptoms, giving suggested supplements time to work, start High Dose Thiamine (HDT), re-noting symptoms.
f) Use updated symptoms to judge finding sweet-spot. The author is big on not trying different things while trying to find your sweet-spot.
g) My sweet-spot is 1000mg of B1 hcl oral, everybody requires a different dose, and there is no foolproof starting dose. On top of the Facebook page is files, there is a file in it with current recommendations.
h) I say don’t be overly concerned with staying away from taking B6 (P5P- B6 is only a concern if taking levodopa, which includes I believe mucuna pruriens). My current thinking is: I overreacted to the B6 issue, and it is completely possible that taking a B-complex may provide enough B6 to supply the B6 that my body needs.
i) I don’t recommend TTFD. I gave up on TTFD (thiamine tetrahydrofurfuryl disulfide - a B1 derivative) because: I would settle in on a sweet-spot, within a few weeks I would overdose, and I repeated again & again.
j) I do not like the term Overdose: to me it instills a fear of drug withdrawal and for me it is just return of symptoms from gained improvements (very rarely does anyone have a bad experience). You will find and updated list of recommended starting doses in files at top of Facebook page.
3) The only thing that I know of that has been proven to delay Parkinson’s is exercise. Start exercising - Walking helps me (I walk 3-4 times a day, approx. 1-1/2 miles (2.4km) less than 28 minutes, weather permitting).
4) I take a ton of supplements, I am not sure if any really help (I need to review what I take).
* healthunlocked.com/cure-par...
Not meant to be medical advice (consult your Doctor)!!!! I am not qualified.
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