NO LONGER SPILLING MY COFFEE...

[Gcf51]

NO LONGER SPILLING MY COFFEE...

- 5 months after starting TTFD, I finally gave up on TTFD because—I seemed to be in a never-ending cycle of return of symptoms and yet another dose reduction required. During that period, I did try sublingual, but I found letting a tab dissolve a hassle and it appeared I was going to need more than one.

- 2 weeks ago, I started B1 HCL at 1000mg a day. At 14 days first return of symptoms at HCL 1400mg—Improvements are numerous and the future is bright…

- Oh BTW—I am don’t have the patience to be a good follower of Protocol. It is entirely possible that I started at a too high of dose… Especially considering 33mg TTFD was my last return of symptoms. TTFD is thiamine tetrahydrofurfuryl disulfide. (I only took a 2 week break between changing types of B1.)

- I do not recommend TTFD—It is near impossible to divide doses, and it causes a garlic taste in your mouth. The smallest dose available (outside of Japan) is 50mg.

media.giphy.com/media/ntPpb...

[Gcf51]

This is a link to a post on Dap1948 's Facebook, page. I think all should be able to see, probably would need to join to comment.

facebook.com/groups/parkins...

[Dap1948]

I’ve been puzzling over your second paragraph. You say symptoms return, then you say they improve. Could you clarify?

[Gcf51 in reply to Dap1948]

Clarifying: Seeing improvement one day but could not sleep that night.

[Dap1948 in reply to Gcf51]

disturbed sleep suggests too high

[JayPwP in reply to Gcf51]

was it an evening dose? What is your dosing regimen? Any other supplements like b complex and magnesium? Are you taking L/C?

[Gcf51 in reply to JayPwP]

C/L 1-1/2 tab 4 times a day. Currently taking all B1 early morning.

I'm a supplement junkie, have been last 40 yrs.

[JayPwP in reply to Gcf51]

thanks

[ForViolet]

This sounds so hopeful! So, at 14 days, with increasing to 1400mg, you say you had a return of symptoms. But you were doing great before that last increase I guess. And now you can adjust the dose back to what helped and the road ahead is bright.

My husband is doing well on thiamine too. He uses Dr. Clark's and is finding 3000mg working pretty well. Says his nighttime drool has improved. And he has increased motivation. Best, Violet

[Gcf51 in reply to ForViolet]

I had improvements, but still had symptoms of PD. Return of symptoms refers to symptoms that became worst .

[ForViolet in reply to Gcf51]

I got that.

[Isotope]

Hi Gcf51

Sorry can you please clarify your message. What dose of B1 are you taking that has made a significant difference?

Tx

[Gcf51 in reply to Isotope]

Everybody will have their own sweet spot. I OD at 1400mg and I am now taking 1200mg of B1hcl.

[TL500 in reply to Gcf51]

So at 1200mg B1 HCL you have great improvement?

[Gcf51 in reply to TL500]

Improvements are numerous and the future is bright…

[TL500 in reply to Gcf51]

😊👍