I’m a B1er (one that has found success in B1), A few questions to others.

[Gcf51]

*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. ***

I’m a B1er (one that has found success in B1), A few questions to others.

1) Do you have a Boost in energy? (I do)

2) Do Mosquitoes avoid you? (Delighted)

3) Have most of your everyday aches and pains disappeared? (I have a bad neck, even that is now manageable, delighted)

4) Have you had a whole blood B1 test? (my test day 3, elevated, 260nmo1/L, normal range 8 to 30, mid range 23, 11.3 fold over mid range)

5) Do you feel there needs to be further research in to B1?

6) How long did it take for you to find your correct dose? (I am at 32 days, adjusting, current 16.65mg B1 as in TTDF [1/2 cap of 50mg TTDF])

7) Did you overdose? (Yes, I went mania, what were your overdose symptoms)

8) What form of B1? (B1 as in TTDF)

Let’s use this forum to fill in the gaps in research!!!! And possibility get the attention of some of the research community.

PTL…

[M-o-ggy]

Hi there , yes boostin energy, 2) mosquitos now avoid me. 3) Not all 4) no 5) No 6) still adjusting 7) jittery until I read Dr Lonsdale

[KERRINGTON in reply to M-o-ggy]

Hi ! What did Dr Lonsdale say about B1 and jitteriness ?

[M-o-ggy in reply to KERRINGTON]

That some people need other minerals for B1 to work properly. I did not understand what ‘gittery’ meant Until it happened to me. I had been taking B1 for a while and I began feeling jittery. Started a good quality multi mineral/ vitamin as well Gittery symptoms stopped.

All I can say is that it has and is working for me.

[Gcf51 in reply to M-o-ggy]

Great, I was having Charley-horse cramps in my thighs and upped my Mag.

[KERRINGTON in reply to M-o-ggy]

Thanks, that makes sense .

[Gcf51]

Edited added: 8) What form of B1? (B1 as in TTDF)

[Gioc]

1) yes

2) yes

3) no

4) no

5) no

6) I adjust my dose based on overdose symptoms

7) Lack of sleep in the evening, Desire for sweets.

8) b1 hcl

[Gcf51]

I do want any relevant comments. Fast walking does help, but I still had to increase my C/L with it, which was depressing because it meant by PD was getting worst.

[LindaP50]

Less rigid, helps with pain. Mosquitoes still like hubby. B1 HCL Good results within 1-2 weeks. After 3 months went off of B1 HCL for 2 weeks then back on. Periodically stop B1 HCL for 2 weeks and go back on with same dosage which is 2 B1 in morning and 2 B1 in afternoon before 2pm.

[Smittybear7 in reply to LindaP50]

What dosage?

[Gcf51 in reply to Smittybear7]

sent you a message

[KERRINGTON]

Hi, (1.) Yes, energy boost (2). IDK ( 3 ) All pain disappears ( 4 ) no ( 5 ) not sure ( 6.) 4 years ago started at 4 grams a day, now down to about 1 gram a week

(7) yes, have overdosed, --gradually balance deteriorates, rising from a seated position becomes difficult, and jitteriness ( 8 ) I'm on SolgarThiamine HCL

[slimweiss in reply to KERRINGTON]

I've been giving that to my husband who has PD. He takes the Solgar B1 HCL also - 500 mg. 1-2 times a day. I need to be better about logging his results. Should we be consistent in taking two a day one morning one night?

[KERRINGTON in reply to slimweiss]

As weird as this sounds, if he is feeling decent the way you're doing things now, just continue doing what you are doing till he starts feeling worse. I find the more I mess with things that don't need changing, the worse I feel with B1.

[HekateMoon]

1. Boost in energy? Yes2. Mosquitos/ mitges in Ireland seem to be all dead with the weather, anyhow...i have no bites this year...good sign

3. My balance was restored arm swing ok, drag foot restored...central pain still there. No depression.

4.No B1 test. Not available on my social insurance

5. Yes. Too many good reports so need to be researched.

6. I was a year on 3000mg hcl but very difficult and expensive to source

Then 6 mths on 100mg sublimgual again prices went up..

7. Then i tried TTFD...100mg day toooooo much 100mg every 2 days too much. All my pains and symptoms exacerbated...not sure now if it was Ttfd...cant split the capsules...figuring out how to restart

8. Last one was TTFD...tried them all

[Gcf51 in reply to HekateMoon]

My 50mg is fairly easy to split in 1/3rds. I cut a hole in one end of cap with an x-acto knife and pour by eyesight 1/3rd in 3 size 00 caps. Then adjust the lowest from the highest. My 50mg is much smaller than the 00cap so very little waste. I use walmart.com/ip/Allithiamine... I am currently at 1/2 of the 50mg. The size 00caps aren't expensive. My objective is to get pass taste buds (00 caps could hold much more). Pic at healthunlocked.com/cure-par...

[Smittybear7]

What those did you start at? And how did you adjust the dosage to what's working for you?

[Gcf51 in reply to Smittybear7]

About to send message

[GKSI]

I was taking care of my father who was diagnosed with PD. In India doctor took several years to identify the actual problem about 2-3 years. In the meantime the disease got worse. On this platform I got to know about using thiamine hydrochloride. Then I research it online, consulted here with my doctor who has no idea of it. Then I met with an Italian doctor who has a vast experience in this field and had a quite high success rate who advised me about correct dose to be taken. It was 2 ml IV per week and the condition started improving. He started eating food, his balance improved. But he was very weak due to continuous treatment of 4 years, may be he got fed up with all of this. Never saw him sick or taking a day off from his government job. Very brave. Last year I lost him due to covid-19.

[Gcf51 in reply to GKSI]

I liked your comment, but sad about your loss

[MBAnderson in reply to GKSI]

I am sorry for your loss.

[Gioc]

Gcf51,

The question “Do Mosquitoes avoid you? (Delighted) "…could be my" blood test "for the level of b1 .

Today a mosquito bite,

in fact yesterday I missed my dose of b1.

Available only in summer.

[Gcf51 in reply to Gioc]

Confused by "Available only in summer.:-)", What, mosquito bite? Here I have mosquitoes near all year around.

[Gioc in reply to Gcf51]

Here only in summer.

Greetings from Italy.Gio

Lago

[laglag in reply to Gioc]

Nice! 🥊

[ForViolet]

1)Do you have a Boost in energy? ... Increased energy with right dose,

2) Do Mosquitoes avoid you? .... Haven't noticed.

3) Have most of your everyday aches and pains disappeared? Not reported.

4) Have you had a whole blood B1 test? No. Following Costantini protocol.

5) Do you feel there needs to be further research in to B1?

6) How long did it take for you to find your correct dose? Many months.

7) Did you overdose? No overdose, just adjustments per symptoms.

8) What form of B1? Dr Clark Store B1 (Thiamine hydrochloride)

We've followed increases and decreases in nighttime drool and slurred speech, swallowing ability, sleep patterns, as well as tiredness and energy.

[Godiv]

I haven’t had great luck with B1, But as I mentioned I’m going to try the TTDF version. I just got it today so I should be able to compare soon I hope. 1. Yes. Not off the charts but definitely better.

2. That’s a good question. Maybe it has helped. I was out the other evening and didn’t get bitten. Normally I would’ve been covered with bites. In fact I wasdreading looking at myself when I went inside figuring I was going to be covered with bites but nothing. Could’ve been the timing or the B1!

3. No darn it.

4. No

5. I’m not sure if it’s an issue of further research or actual attention. Maybe further research in the form of clinical trials that are run exactly correctly etc. etc. something that will impress the medical establishment.

I’m convinced that it does work. And I’m so glad it’s helping people. Realistically it’s not going to help every single person perhaps but still the information out there is impressive.

But so many of the doctors are just not into it at all.

6. Still haven’t. I’ve tried to go higher and lower. And it’s possible another brand would work better or maybe the other kind.

7. No

8. Thiamine Hcl

😀