colitis

[Bluegirl1948]

I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then suddenly a couple of weeks ago i started seeing bloody mucus around my first stool of the day going on an average 3 time a day . I have no fever no diarrhoea no abdominal cramps etc. I’ve tried phoning my IBD nurse, but unlike when I first had this disease you could speak to someone straight away. Now it takes a few days for them to get back to you. My question to anyone is . Anyone been on Vedo infusions and this has happened. I did start to take 3 prednisone for 7days and it seem to help a lot went down to to and it’s all back. Anyone with UC could you please get back to me. Being fine for one and half years I feel like I am back to square one . Lynda Thankyou.

[Hidden]

Hello I don't take medication as I had a one of ulcerative colitis episode lasted about 3 months it went away by diet I stopped eating almost my colon left side was badly ulcerated bleeding it got less the less I eat had time to heel, the specialist who gave me the colonoscopy said extra mature cheese can cause the immune system to attack itself, I have been ok for 9 years I'm not sure if I have cause for worry now but I'm pretty much as you say but some cramps after eating,so maby it's a flare up, try soluble fibre which is mash fish chicken easy to digest stuff no seeds nuts no cheese, chamomile tea is a heeler too but we're all different I read the Gillian mckeith book she lives with chrome's and controls it by diet, I have to wait for a telephone call on the 29th I wish you luck in sorting this, you could maby try ringing the emergency number if the bleeding continues 🤗

[Bluegirl1948 in reply to Hidden]

Thankyou for replying I have ring them still waiting for them to get back to me keep well xxx