Infiximab : I have infusions of... - Crohn's and Colit...

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Infiximab

webbs8 profile image
3 Replies

I have infusions of infliximab every 8 weeks the last 2 years with great success and last one only Friday just goneI now have a flare up and wondered if I could have any steroids to calm it down.

I can't get hold of consultant or IBD flare up team to find out.

Before my diagnosis it was only steroids that calmed it down

My doctor didn't know if I can and asked if I could ask my consultant. I have looked on Internet and says may cause serious infection! But not sure what else could have

Thanks

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webbs8
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3 Replies
Blinjo profile image
Blinjo

Hi thereI was on infliximab a couple years ago. I didn't have flare but built antibodies so now on Humira. Have you had antibody test as that will help make informed decision. I had steroids at beggining but made me feel ill.

webbs8 profile image
webbs8 in reply toBlinjo

Hi thanks for reply and that sounds good idea to have that if I can, will find out. I used to have steroids a lot before diagnosis and luckily I was ok with them as they were the only thing that would calm it down

Pte12 profile image
Pte12

I've been on and off steroidal for 20 years I'm not allowed anymore

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