I have been diagnosed with Crohn's for just under a year. I have spent most of the year on steroids and I also take biological treatment Adalimumab and Pentasa. I managed to get off steroids a couple of months ago but started to have some flare symptoms. So my Adalimumab dose was increased. Although I am doing reasonably well in terms of day to day symptoms, I keep suffering from a bad fevers roughly once a week. The fever usually lasts 12~hours and is accompanied with an achy body and joints. Almost like the flu. I tend to also get a sore sharp stabbing pain\feeling on the left-hand side of my abdomen this can last a few days and usually starts happening with the fever. I occasionally also pass blood for a day or so during these episodes.
As it is only happening roughly once a week, I am unsure if this is something I just need to live with or if I need to try a new medication.
I am wondering if anyone else with Crohn's or Colitis has suffered a similar experience? Or if anyone has an opinion I would love to hear them
Thanks!
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Dotmatr1x
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I get a temperature rise when in flare with my Crohn's, I did have those pains in the Right side, concerned as still had my appendix, after much toing and froing was given a doughnut scan (with contrast) when they discovered my last section of small intestine (runs a bit down the right and has a valve near where appendix is) had active Crohn's, so I found it worth pushing to find out what was what. They got me back on steroids for a bit, to reduce the amount of narrowing I was getting.
I have had ulcerative colitis for a few years now and have been on adalimumab for a few months, I also take azathiopine. I also get lower abdominal pain occasionally it seems to happen with a flare up at first I thought it was appendix it was so sore. I get night sweats about once a week I don’t think it’s a fever. They do lessen but I haven’t got rid of them yet. Achy joints and tiredness are also part of the flare ups. Sorry not better news for you but you can manage it.
Hi Carolred, at least I am not the only one, and I am more convinced that it is IBD related and not anything else. Thank you for sharing. I will perhaps monitor and suggest different meds or investigation if they get worse.
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