Calprotectin levels

[Izzywizzy66]

I have had a stool test result of 275 been referred to see a nurse at the bowel disease clinic l have had no loose bowels or blood 3 weeks before the test over a ten day period I took 80 antibiotics for a flu bug and I’m on omniprozol and Cabergoline I have a pituatory cyst my anxiety is through the roof what should I expect from my hospital appointment

[willow24 Administrator]

Hi, is it omeprazole your on? This can raise your calprotectin levels a bit. What was reasoning for checking levels in first place x

[Izzywizzy66 in reply to willow24]

I had a pain in my side which has now gone so nurse practitioner did a load of bloods and urine which all came back ok just the stool test which she said showed inflammation I have panicked googled and terrified myself

[FRreedman]

I think that Nurse Google should be removed from the nursing register (she makes so many people worry unnecessarily). Although your reading is elevated, it is not massively high, and is only indicative of inflammation in the bowel/intestine area. It is probably the cheapest test for them to use, before they go on to the "oscopies", and therefore is not indicative of anything more than "needs further tests" at the reading you have given. I know it's easy to say, but, please, don't worry as that will make your calprotectin levels go higher.

[Izzywizzy66 in reply to FRreedman]

I think it’s the not knowing what to expect from the appointment it was a referral to gastro when letter came it says nurse ibd clinic

[Lanadc88]

Don’t panic honestly my calprotectin was 2228 off the charts basically and I was a anxiety ridden panicky mess and honestly I worried for nothing. The high levels meant I needed a colonoscopy which really isn’t as bad as you first think in fact it’s quite fascinating if your not too out of it on the sedatives that’s you can actually watch what’s happening, if you want to, my results showed ulceration which in turn I was diagnosed with ulcerative colitis prescribed medication and given loads of information and contact details for the inflammatory bowel disease nurses who are a god send! Any new symptoms and a simple phone call to them or email and they advice me right away ask questions and either prescribe necessary meds or call my doctor to book blood tests etc. It’s a scary process on the beginning but like you I was a panick ridden mess and realistically there was no need as although iv got a pretty shitty diagnosis there is a great team of people I can turn to who help when needed so don’t worry take each step as it comes

[Izzywizzy66]

Thank you my anxiety levels normally are not good due to my prolactin levels so everything is always bigger and blacker did you no you would have a colonoscopy immediately or did the nurse refer you

[Lanadc88 in reply to Izzywizzy66]

The gastroenterologist referred me but I’m sure in your case the nurse will if they feel that’s what you require you will have ample notice it won’t just happen straight away because you need to take some prep for a couple of days before to clean out your bowel

[Izzywizzy66]

Thank you x you have all been so kind xx