Ulcerative colitis

[DLGJ]

Hi guys I did a previous post about my calprotectin being off the scale past 2000. Just had my colonoscopy. They have done biopsies but are sure I have ulcerative colitis. I feel relieved to finally no what is wrong with me after 18months of symptoms. Any one in the same boat with any words of advice? X

[bantam12]

Well I've had UC for about 50 years 😞 If you can get on to the right meds then you may be lucky and go into remission for a good while 🤞but it's a life long condition with ups and downs, it's not easy !

[Avastu]

Hi there,

My husband has calprotecin 922, before a month ago when he has test,,and he was refered for urgent colonscopy.

But we visited private gastro specialist ,he said to do the stool test again, we did last week but dont know how much is it now the calprotecin level.

Today morning we got call from NHS for colonscopy date,which is on jan 6.

So hoping for best ..

[Javsy]

I am not on the same boat.. But knowing the cause is always good and a mental relief. I've had my colonoscopy and came out neg for UC and Crohns but still by calpro is high. So not sure what's causing the inflammation yet.. Know a few ppl with UC and it's very manageable with lifestyle changes.... Diet and meds

[NL88]

My Research for UC: Causes

1. Stress

2. Trigger Food

3. Dysbiosis

4. Parasites

The problem is GI do not address the problem itself.

For example if it is Dysbiosis get the strongest probiotics, kefir, breast milk or FMT.

If it is a Stress, add some mind changing techniques:

energy psychology” programs to re- program a chronic state of disease

Like this:

Energy Psychology

PSYCH K

Holographic Repatterning

Body Talk

EMDR

EFT

15-20 min to reprogram entire life.

If it is wrong food then go to SCD diet for a year to restore your gut flora completely. No cheating.

If It is Parasites, get the most accurate PCR Parasites Test to find and kill them with specific antibiotics and then go to SCD diet to heal your gut flora.

It is not one treatment helps all.

[bantam12 in reply to NL88]

You have missed out autoimmune disease being a cause.

[NL88 in reply to bantam12]

I did not. I digged to the roots for Autoimmune disease.

[bantam12 in reply to NL88]

Scientists don't know the cause of autoimmune diseases, there are many theories but genetics also has an impact as in my case.

[Javsy in reply to NL88]

Interesting you mention stress... I've been in constant stress and been diagnosed with non specific colitis. Even after colonoscopy and biopsy, they can't determine what's causing the inflammation. The biopsy are not clear for UC or Crohns.

But reading your post about the causes.. How do you really manage stress?

Also what is SCD diet?

[NL88 in reply to Javsy]

SCD diet was created specifically for IBD and Autism. It is a strict diet without grains, sugar, starches, limited dairy and no any chemicals.

Specific Carbohydrated Diet videos with Elaine and websites will explain it better.

Stress- you can just change your set of mind. Joe Dispenza video and books are helpful.

[DLGJ]

Thanks for the replies. The meds I have been given are steroids, Mesazaline and adcal. I’m worried about the side effects of the steroids. When they take the biopsies what do they actually check from them? So they’ve already said I have UC, what else will they gain from the biopsies?

[NL88 in reply to DLGJ]

Biopsies will show chronic or active colitis.

The interesting thing is that biopsy for Infection Colitis and UC look identical

[Javsy in reply to NL88]

Appreciate the feedback. They are still leaning towards infection colitis for my case... Post infectious to be precise.

The only reason it's post infectious because no granulomas are present in the current biopsy.

It's confusing because the crypt architecture disturbance is present, yet they say fresh colitis... Which is contradictory on its own

[nieldy]

Hi what were your symptoms of having a UC????