So after having a laparoscopy done in October ruled out endometriosis I was sent for a scope. I was told after this that I had ulcerative colitis. My symptoms had been passing blood and mucus for around 5 weeks which eventually stopped about 2-3 weeks before the scope was eventually done. I was started on asacol and referred to gastro with appointment 3 months later. At appointment they advised that the scope had shown ulcerative proctitis but that “the biopsies are not at this moment and time diagnostic of inflammatory bowel disease” and they sent away a stool sample.
Today I got a letter through saying that following from this appointment in February the faecal calprotectin sample was back and was negative at >30. The letter goes on to state that they now need to be cautious before labelling me as definitively having ibd and therefore think a period of observation in clinic is probably the best course of action. It ends with “ it may be that we trial you off asacol at some point in the future if your symptoms improve but I think we simply need to keep an open mind”
I don’t understand. I haven’t had terrible symptoms e.g blood and mucous since October (scope was in November) but I still have urgency and diarrhoea after meals etc. I can’t go out for a meal with my husband and children without having to rush to the toilet and at times leave them eating to come home and use the toilet.
Has anyone had anything similar or can anyone give me their opinion please?
Thanks in advance