Not very happy : The hospital suspended my... - COPD Friends

COPD Friends
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Not very happy

Maxiem
Maxiem

The hospital suspended my immunotherapy treatment 9 weeks ago which I was having for stage 4 lung cancer.

I also have ipf and at the moment my breathing is very poor indeed.

Spoke to oncologist 2 weeks ago who told me I will have a scan in July and see her in August!

Respiratory nurse is not coming till the end of June.

I am in some pain at present, though only mild, but do find it worrying.

I know the hospital and nurses are very busy at present but I don’t really know what to do, just grin and bear it till August and hope for the best?

No point contacting gp he’s useless.

Sorry to be such a moaner, just wanted to get it off my chest.

Max

8 Replies
oldestnewest

I'm sure if you contact your surgery again someone should be able to advise you. Have a good day and take care of yourself 😊 Bernadette xx xx 🌈

Dont get to bad with all this what is going on phone NHS help line they will help you I know it is worrying but try not to worry please stay safe

R2B_John
R2B_JohnModerator

Very sorry to hear. Did they mention why? I understand some non-serious procedures being put on hold.....but not a treatment for cancer.

Maxiem
Maxiem
in reply to R2B_John

Hi John

They said treatments were being put on hold because there was Covid in the hospital and my treatment was being put back 3 months .

I just feel a bit in limbo .

Max

R2B_John
R2B_JohnModerator
in reply to Maxiem

Ahhh... Very frustrating, indeed. Evidently, your physician felt the risk from COVID-19 outweighed the benefits of coming in for treatment. Wishing you the best possivle outcome.

wiserlady
wiserlady
in reply to R2B_John

or maybe the consultants simply refuse to work there at the moment for their own safety, it happens a lot now, I know of several cases where apointments have been cancelled and replaced with telephone consultations or put off till the virus is over

R2B_Michele_RRT
R2B_Michele_RRTAdministrator

Please keep us updated. I'm sure they will get you in when they feel it is safe to do so.

Am very sorry to hear this, lets hope they can re arrange it for soon. Hope you do not mind but have posted a prayer for you on the free prayer forum at accuratepsychicreadingsonli.... It must be very difficult for you, especially with this virus and lock down problem. Ive found that reading a lot helps to pass the time.

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