Update: Hi folks Just thought I'd post... - Colon Cancer Conn...

Colon Cancer Connected

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Update

Macjayne
Macjayne

Hi folks

Just thought I'd post an update on my colonoscopy today. I had double pain relief didn't work haha they only decsending colon managed to get so far up so classed as UNCOMPLETE because of uncontrollable loopingand unable to pass tight fixture despite positional changes. Colon appeared normal, small hemorrhoid which they say is more than likely from moviprep no concern at all took two biopsies, now waiting for a CTC and CT CAP. So so far so good. X

30 Replies
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Thats good to hear. What is CTC and CT CAP. Glad they didnt find nothing though xx

Macjayne
Macjayne in reply to Ejoejai20

Hi sorry for late reply it's a ct colonoscopy and a large xray from hips to neck they couldn't get passed the decsending colon because of uncontrollable looping she tried so hard bless her and pain was unbearable even with medication. Thankyou xx

Hi that’s good to hear did you go through NHS

Macjayne
Macjayne in reply to Iqbal1984

Thankyou yes it was NHS.

Hmm, well (same prep) maybe it would be worth a virtual version to catch the missed area.

Macjayne
Macjayne in reply to wbiC

Yerh that's what there doing and xrays from hips to chest 😕 decsending colon was looping.

Glad to hear that and please please update us on ur biopsy

Macjayne
Macjayne in reply to mondlee6248

Thankyou I will x

Hi how long did you have to wait for your appointment

Hi how long did you have to wait for your appointment

Macjayne
Macjayne in reply to Iqbal1984

2 weeks and I remain on urgent cancer screening programme untill all tests are completed

They are taking the piss with meI had a polyp removed from my anal canal in August I don’t think so they’re all the way with the camera and I’m still having bleeding when I go past Poo when they removed a polyp it was still having a lot of problems with it just can’t get no appointments from them they just playing about

Nicole_GCCA
Nicole_GCCAAdministrator in reply to Iqbal1984

Iqbal1984 , I'm so sorry to hear you are getting the run-around from your medical team.

Is it possible to contact another group of medical professionals separate from those who you are currently speaking with?

Hang in there, and I hope you get an appointment soon so you can get some answers!

~Nicole @ GCCA

The thing is I’ve been waiting since August and I’m still bleeding every day I just can’t believe it no ones contacted me they just letting me suffer

They are taking the piss with meI had a polyp removed from my anal canal in August I don’t think so they’re all the way with the camera and I’m still having bleeding when I go past Poo when they removed a polyp it was still having a lot of problems with it just can’t get no appointments from them they just playing about

Macjayne
Macjayne in reply to Iqbal1984

Sorry to hear that iqbal maybe just keep on at that I must just be one of the lucky ones I mean I can't fault my gps and hospital they've been amazing

Iqbal1984
Iqbal1984 in reply to Macjayne

If you don’t mind asking me whereabouts are you based what county I’m really struggling with my GPs and hospital

Nicole_GCCA
Nicole_GCCAAdministrator

Hi Macjayne ,Thank you so much for posting an update, we were wondering how it went and thinking of you.

I'm so sorry to hear about the pain you experienced. OUCH! I'm thankful for the technology of the CT Colonography and CT CAP so that the doctors can get clear images of your colon, even though they were unable to complete the colonoscopy.

I'm a little confused by the statement about the small hemorrhoid and them saying it was caused by moviprep? Are they saying that it was caused during your bowel preparation and repeated wiping the day/night before the procedure?

Glad they were able to take biopsies and that tissues appeared normal.

Do you have appointments set for the CT Colonography and CT CAP yet?

Hope you are able to rest and recover. Sounds like you were a good sport in a VERY painful situation!

~Nicole @ GCCA

Macjayne
Macjayne in reply to Nicole_GCCA

Thankyou Nicole.For the hemorrhoid she said it was small and wouldn't be the cause of the bleeding as in what they found in fit test then said it might of been the prep so I'm assuming the moviprep as I've had no visible blood in stool or on wiping. And I'm waiting on appointment and will of course keep yous informed.

If you don’t mind asking me whereabouts are you based what county I’m really struggling with my GPs and hospital

Macjayne
Macjayne in reply to Iqbal1984

I'm in the Northumberland area, what area are you from

I am from Peterborough for hospitals are got no good reputation here

I am from Peterborough for hospitals are got no good reputation here

Macjayne
Macjayne in reply to Iqbal1984

Sorry to hear that you feel your not getting the help you need I know how worring it can all be. I hope you get the answers and help you need. Take care Iqbal

Thank you good luck with your progress

Thank you good luck with your progress

The thing is I’ve been waiting since August and I’m still bleeding every day I just can’t believe it no ones contacted me they just letting me suffer

Nicole_GCCA
Nicole_GCCAAdministrator in reply to Iqbal1984

Dear Iqbal1984 ,I'm so sorry to hear about the struggle to get an appointment! Is it possible to contact another GP at the same hospital? Or try to contact the colorectal department directly?

Hospitals typically have a "patient advocate" - either a person or a department that is established to ensure patient needs are being met. Check the hospital website or call them and see if there is such a department?

Hang in there, I do hope your persistence in trying to get checked out will pay off soon. Don't give up! We're here for you.

~Nicole, GCCA Staff Member & Colon Cancer Connected Site Administrator

Just a reminder - this group is here to offer support, share experiences, and offer our thoughts - but this is not medical advice, and you should always consult your medical professional(s). Additionally, for all emergencies, seek urgent medical care, never delay.

I give up

Nicole_GCCA
Nicole_GCCAAdministrator in reply to Iqbal1984

Iqbal1984 , please don't give up. The stress of your physical condition sounds like it has taken a toll on you.

Please contact one of these organizations, I see there's a few that are specifically for Men's Health, they may be able to offer local assistance and help get you to be seen.

nhs.uk/conditions/stress-an...

Additionally, I found this site that has care navigators - I think that's what you need, someone who is trained in the UK to help you get the medical care you need: blackburnwithdarwenccg.nhs....

Rectal bleeding has many causes but always needs to be evaluated by a doctor. If your medical team is not taking your medical issues seriously, this is not a good situation and I'm so sorry for what you are going through.

Please give an update when you can. And if you can contact one of those helplines, I hope they can provide you support to get through this time while trying to get answers to your medical issues.

Thinking of you,

Nicole @ GCCA

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