blood test

[Jsk1950]

all good apart from one box === igG range meant to be 6 to 16 mine is 1

Anyone else had this

[Newdawn Administrator]

That’s an exceptionally low reading for what is an essential immunoglobulin Jsk. Have you had a number of serious infections and/or hospitalisations? If you’re in the U.K., you may be offered IVIG (immunoglobulin infusions in the day unit usually monthly). The criteria is a IgG 4 or below and a history of infections but your level is very low and your specialist may wish to address it.

Best wishes,

Newdawn

[Phil4-13 in reply to Newdawn]

I'm fortunate not to have infections and have not ever had treatment(4 years since diagnosis). I'm on one shingles tablet per day to keep that "monster" down. Next appointment in 3 months. I'm getting better at keeping the "stress monster" down, too. Holiday seasons are, for me bad, because of my loved ones who have passed on. To me, that's a hard part of growing older(74 yrs.). Arthritis, I can take a pill for, but not for that. My mind, my thoughts, I bring the happy, fun thoughts to the forefront of the sadness and can smile and laugh through the tears. Then I become thankful I had those times. It can be a fight sometimes, but I still have loved ones with me and wish to give them happy, fun thoughts for their memories. I want that for them and it's good for me, too. 🙂 Sandra

Recent labs

[lankisterguy Volunteer]

Hi Jsk1950,

If you want to read past discussions on low IGG, see this list:

healthunlocked.com/cllsuppo...

-

And BTW- the numbers are very different in other countries- here in the USA the normal range for Immunoglobulin G (IgG) levels in adults is 600–1600 mg/dL

vs. the UK Normal Ranges Adult: IgG 6.0 - 16.0g/L

Len

[Newdawn Administrator]

I have it tested every 4 months but only because my levels are depleted and always have been. I was told that it’s normally an annual test otherwise but each specialist may have a different criteria.

Newdawn

[PoisonDwarf in reply to Newdawn]

Hi Newdawn,

I am sorry to read about the challenges and frustrations you’ve been having with the NHS. It must be a time consuming and worrying nightmare.

Quick question. Are all your immunoglobulins low? My IgG, IgA & IgM are low. I call them the Goblins! Is it expected that all 3 are low do you know.

[Newdawn Administrator in reply to PoisonDwarf]

Yes my immunoglobulins are low across the board which is characteristic of hypogammaglobulinaemia. If I remember correctly, it was the IgM that demonstrated the earliest drop which I understand isn’t unusual in CLL. My immunoglobulins started to deplete very early into my diagnosis but thankfully my IgG seems to have levelled out a bit since treatment to average about 4.6. My IgA is .51 and IgM .48

Best wishes,

Newdawn

[PoisonDwarf in reply to Newdawn]

Thanks for the information. Fortunately, I’ve had no major infections, so no IgG infusions needed yet. I had 2 serum tests in a month due to a mix up between my doctor’s requisition & the testing the lab did. The 2nd test came back that the immunoglobulins remained low but stable. The gamma globulins had dropped though & the lab recommended a 3rd testing done with urine 🤦🏻‍♀️ I assume to check for malabsorption. No answers yet, just more questions.