Blood test results: Newly diagnosed with CLL... - CLL Support

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Blood test results

Clllady profile image
13 Replies

Newly diagnosed with CLL. What should I be looking for in my blood test results.

Thanks

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Clllady profile image
Clllady
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13 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

I might suggest you read the folowing NCCN Patient Guide it gives a great deal of information on the various blood tests. You can download this PDF to read off line.

nccn.org/patients/guideline...

~chris

Clllady profile image
Clllady in reply toCllcanada

Thanks very much. I’ll take a look

AussieNeil profile image
AussieNeilPartnerAdministrator

If you'd like to track your blood test results and look for trends, the first post below explains where to obtain spreadsheet templates you can use. It's a good way to become more knowledgeable about how your CLL is affecting you, as we are all different. The spreadsheets also contain information on the relevance of the different tests you'll find in your results. The second post outlines similar information. Check out Dr Susan Leclair's Patient Power videos also referenced below:

healthunlocked.com/cllsuppo...

cllsupport.org.uk/cll-sll/s...

Neil

Clllady profile image
Clllady in reply toAussieNeil

Thanks so much Neil that’s really helpful and exactly what I was looking for

Cheers

thb4747 profile image
thb4747

Hi,

As Neil says trends are important. Keep track of results on a spreadsheet and be prepared for spikes along the way. Stay focussed on the trends. Wishing you well.

Rob

Clllady profile image
Clllady in reply tothb4747

Thanks so much for your help

thb4747 profile image
thb4747 in reply toClllady

No problem. This is very helpful also.

patientpower.info/video/und...

Bubnojay profile image
Bubnojay

Hi Clllady

If doing all the above while trying to come to terms with your diagnosis gets hard as it’s a lot of information to assimilate, Initially watch for lymphocyte count which is referred to as ALC (Absolute Lymphocyte Count)

Welcome to our cll community, always someone here to help or just listen.

Best wishes

Bubnjay1

DMF_online profile image
DMF_online

Can I just add my thanks, too. I've been diagnosed for around four years, and haven't paid much attention to the results I keep getting. Really useful stuff.

Hoffy profile image
Hoffy

Great that you found this site,

Make sure you get a 2nd opinion from a CLL specialist before any treatment.

Cllsociety.org is a great side,

Be well,

Hoffy

Clllady profile image
Clllady in reply toHoffy

Thank you. Re 2nd opinion...can you do that on the NHS (UK) or are you in USA ?

Tks

Hoffy profile image
Hoffy

I am in the USA. People from the UK will have to advise.

thanks,

Hoffy

Clllady profile image
Clllady

Thanks Hoffy

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