COVID mortality rate

[skipro]

Does anyone know what the current mortality rate is for CLL patients on V + O who get COVID?

Thx

[AussieNeil Partner Administrator]

It's a bit hard to get current data, but per my reply here healthunlocked.com/cllsuppo... while the general population did better on Omicron (up to May 2022), those with cancer, particularly a blood cancer, did worse.

Also later, from the ASCO® 2023 Insights: "Results of A041702, an Alliance Phase 3 Study of IVO vs. IO for Previously Untreated Older Patients With CLL and Impact of COVID-19"

healthunlocked.com/cllsuppo...

13% of those on IVO had COVID-19 stage 3, 4 or 5 (i.e. death) compared to 7% on IO.

Neil

[jonathan7176 in reply to AussieNeil]

I have to say that I am seriously concerned I will not be able to avoid COVID or some other respiratory infection this winter. I am working remotely (thereby avoiding infection-ridden students), but my wife returned to office-working in March. I support her fully in that. She has to live. It isn't practical for her to wear a mask, but I suppose the upside is that it isn't that crowded.

[skipro in reply to AussieNeil]

Thank you

[Splash24]

On W & W, I had Cvd., I had no issue at all, I am in touch with several others in a similar situation same thing, I know of 2 people who had treatment and then had Cvd, all had no issues. Good Luck!

[Thundercat2]

skipro,

I'm just one person, but I tested positive for Covid last October. I had finished Obin in July and was on 400mg of Venetoclax. I called and received Beblitovomab infusion and barely felt a symptom at all. In January I got a random sinus infection and that was awful. These days I actually feel better about illnesses that can be treated than the viral ones that can't.

[skipro]

thank you

[BgChiLL]

But no-one who died from COVID can reply to your question.

[skipro in reply to BgChiLL]

Good point

[jonathan7176 in reply to BgChiLL]

They'd only be bitter, so probs best that they can't. 😁

[Gradyboy]

I had COVID last February and my only symptom was mild chills prior to testing positive. I was getting the Gazyva infusions at that time and taking Venetoclax. I took Plaxlovid and cut my Venetoclax in half while on Plaxlovid. No symptoms. Then I got rebound COVID and was taken off Venetoclax for 10 days. No symptoms except loss of smell for about a week. I was scared to death but never even felt bad. My healthy husband didn't feel so hot. He had bad headache, chills and fatigue for a few days and body aches.

[skipro in reply to Gradyboy]

Thx

[Newdawn Administrator]

I had an extremely mild reaction to Covid whilst on Venetoclax and didn’t cease treatment for the duration.

Newdawn

[skipro in reply to Newdawn]

Thx

[Eirinik]

My mom has gotten Covid twice the first time she was watch and wait and got the Covid antibiotics and was fine, she got it again on therapy with very low whites and was fine while she had it after she turned negative she was extremely weak and had some weird issues ( according to her doctor probably long covid) today is her first day of normalcy and started therapy again

[skipro in reply to Eirinik]

Awe sorry about the weakness

Which treatment is she on?

[Eirinik in reply to skipro]

Hello Skipro

Now she’s on ibruvica and venetoclax treatment

Her weekness is better but she feels no hunger what so ever !!