Hello,
I just can’t get over it that some of you had 7 COVID vaccinations!
I know only about the first 2 and then 2 (maybe 3) boosters = 5 vaccines. Where are the other 2 are coming from?
Or is this only in the UK? Just wondering because even my oncologist seemed to be surprised he only told me there will be a new one coming this fall (that would make 8 vacs for some).?
Thank you and lots of good wishes to all my fellow CLLer.
We didn’t necessarily have 7 different types of Covid vaccinations. I have had 6 so far but the first five were all the same type. I just had them at 5 or 6 month intervals. The last one was the bivalent one from Moderna.
Immune compromised in UK had a 3 dose regime for primary vaccine - all 3 shots the same vaccine. That was done shortly after roll out of vaccines in 2021. The normal population got 2.
Then there were 2 boosters in 2022, spring and winter, this was usually a different vaccine to the primary. The winter one they also had a flu jab at the vaccination station. That was whacked in the other arm while one was still thinking about it! err "it roughed my mate up last year worse than the flu" ... oh!
Historic diagnosed before 2021, immune compromised in UK have had 5 before the current spring booster, which is number 6 for them.
I wasn't diagnosed until late 2022 (WBC 86), before that I was "normal" and apparently (according to NHS and GP) not immune compromised, so I have only had 4. My primary two dose vaccine was AZ, last dose of AZ in UK was bought and used about 3 months before I was diagnosed. It's not effective to give a third primary dose after this length of time anyway, a 3 dose primary vaccine has to be done in a limited span of time to build the response. But of course I have had this for maybe 10 years as I went straight to therapy (WBC 125), just as fast as they could get me though the work-up. So it's very questionable if any of the shots have been really effective.
Spring booster booked for 14th June, 1st day of week 3 cycle 3 V+O. That puts it 2 weeks after 5th and before 6th IV of Obinutuzumab.
Around March my consultant thought some patients have had 6 shots before the spring boosters were rolled out. But when discussing vaccines he wasn't able to tell me that I should have "childhood" Prevenar13 as well as Pneumovax23 and the GP didn't know, so all I got was Pneumovax23.
The only other vaccines I know I've had are TB booster age 12 at school and mum told me I had polio on a sugar cube as a small child. I had chicken pox and measles as child. Being '59 vintage and the combined vaccines for babies didn't start until '61 I don't think I've had any other vaccines.
Who's on the list?
digital.nhs.uk/dashboards/g...
3 dose primary before boosters.
I’m about to have my second bivalient this coming week. First was in early December. I was considering skipping it because it’s such a milder infection now and also because my CLL specialist said he didn’t think it was important for me any longer. But my sister flew home from France with 103 fever and a whopping case of Covid. Three others I know caught it last week and one is probably heading to hospital tomorrow. So no downside to playing it safe and having another.
Best to play it safe. My husband is immunosuppressed due to a kidney transplant and has taken every vaccine that he could. He is in a study being done by Johns Hopkins and it shows that people that are immunosuppressed to build up as much immunity after the vaccine. He even made sure he got the Shingrix vaccines and got shingles anyway...was a disaster. Doctors told him it would have been worse had he not had the vaccines. Do not think COVID is going away...will be like the flue, new vaccine every year.
I was diagnosed stage 4 NOV 2020 and to date have had 7 jabs and 3 covid infections.
It is indeed in the UK - two primary jabs in 2021 (full population) plus an extra primary for those "at risk" then a booster (which I had in Jan 2022) - spring and autumn boosters in 2022 and just recently the spring 2023 booster - so a total of 7. I've been fortunate that, apart from a stiff/sore shoulder I haven't had any side effects. Had a mix of different vaccines - the most recent couple were the Pfizer (Comirnaty) - but I think that is mainly dependent on the location of the vaccine centre and what they have available.
The downside is that since my treatment is a BTKi the likely benefit from the vaccine is minimal to none. Still - as Sunfishjoy said there seems to be no downside to playing it safe.
The NHS send me regular follow-ups to get my autumn booster and more recently my spring booster. Oddly, I have had Oxford/AstraZeneca, Pfizer/BioNTech, Moderna and now Sanofi/Pasteur. Whether any or all have given me any protection we will never know for certain but I have been SARSCov2 free or is that just post hoc ergo propter hoc? When they offer me an autumn booster later this year, I shall go and get it. That'll be 8.
Here in Canada, immunocompromised individuals got 3 primary doses, then 2 boosters, then the (Omicron) bivalent booster, then the updated (B4/B5) bivalent booster (=7). At the end of next month, I will be heading to the pharmacy to get another bivalent booster as we become eligible for this six months after our last one (or most recent Covid infection) Thus far, I have not had Covid - likely through a combination of vaccination, ring vaccination and masking at populous indoor settings. My hemo-oncologist said that my antibody response (I paid for a blood test to measure them) is still pretty good, and guesstimated that I am still a few years out from needing treatment. Number 8 here I come!
Hello. Yes, my husband (the one with CLL) has had 7 Covid jabs.
The next one will probably be in the autumn, I think. We are in the U.K.
Take care,
Fran 😉
In the US. I had 3 primary vaccinations (as recommended for high risk), 2 boosters (August 2021 and Feb 2022) and then the first bivalent (July 2022). I plan to get my 2nd bivalent in mid June.
Lock your post for more responses.
I had 3 before starting treatment. During my 2 year treatment, since my B cells were being actively suppressed, my specialist felt that the risk-benefit skewed towards "don't get the vaccine" for me personally, with my life situation. I am not planning at getting any more vaccines until my specialist thinks I have "recovered enough" post treatment. I am still masking.
Post Covid Vaccinations
CLL and vaccinations
Covid freak out
Vaccinations 
