My doctor called yesterday and confirmed my PET from last week shows definite transformation and the PA called today to say it’s likely Richter’s (forgot to ask if confirmed by the biopsy - still shock) and they want to start treatment this week. I’m headed back to Houston for consult and planning. Meeting with the transplant team, too.
Options so far appear to be RChop or some version, or Nivolumab with Ibrutinib to prep for an allogenic transplant, or possibly a Cart T transplant (still in trails) at MDA.
Are there other options to consider?
Can’t deny I’m worried about: prognosis, missing work, taking care of my elderly mom, holidays with my family and how do I explain this all to family, clients, people at work and friends. Most have no idea I’ve had CLL for 18 years. My best guess is to just jump in and deal with it. Advice appreciated.