CLL and related skin conditions: I am 73 and... - CLL Support

CLL Support

22,870 members39,243 posts

CLL and related skin conditions

plett1234 profile image
1 Reply

I am 73 and have had CLL for the last six years. I had FCR treatment some 5 years ago and more recently a milder form of FCR to keep the CLL at bay.

One of the apparent side effects from the CLL has been an increase in Keratosis and Squamus Cell Carcinoma which have been treated with liquid nitrogen and minor surgery. My Dermatologist recently attended a medical conference in Vienna where this very subject was discussed. A possible treatment for these skin conditions was presented by an Austrian Professor this being very small doses of Acitretin Neotigason where he had good results.

Has anyone had experience of this treatment for these skin conditions allied to CLL

Written by
plett1234 profile image
plett1234
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Newdawn profile image
NewdawnAdministrator

I’d never heard of this oral medicine but this link describes its use. I think I’d be concerned about the high incidence of very dry eye syndrome with it and suspect it’s something that would require very careful monitoring by a skilled dermatologist. I’m wary of additional meds during treatment and would probably prefer a topical treatment but it’s an interesting development. Best wishes with keeping these skin issues at bay plett.

netdoctor.co.uk/medicines/s...

Regards,

Newdawn

Not what you're looking for?

You may also like...

When We Have CLL, Why We Need Particularly need an Immunome. (Why neutrophil and immunoglobulin counts don't measure immunity all that well)

What if our doctors could recommend IgG replacement therapy (IGIV or subcutaneous IgG)...

travel insurance - treatmeny

I have had watch and wait CLL for eight years but now move to treatment. I guess this is going to...

Low blood platelets count..

I just been diagnosed with CLL, very curious about natural treatment options. My WBC count is...

Not officially diagnosed...in watch and wait

As the title says, I'm in the WW stage. I saw a hematologist 5 years ago about my lymphocytosis and...

VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)

This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It...