Hi fellow CLLsuffurers.
Reading your posts daily but newer did anything my self .
Now after 3 days in hospital want to shere my story.
All started in 2009. Diagnosed with stomach/oesophagus adeno carcinoma.
Started with chemo that went for 9 months. Surgery 01/2010. 1/3 of oesophagus and 2/3 of stomach removed. Together with 30 limf nodes.
Radiation for 10 sessions in 07/2010.
10/2011 second surgery after me insting on CT that has discovered one of limf nodes stil activ. Removed that and neighbouring organs: spleen, 1/3 pancreas and adrenaline glance.
2015 WBC started to rise. 2016 Diagnosed with CLL.
Newer tested for all those tests you guys are mentioning.
On w/w allthis time . Seen my hematologist month ago with 129.000.
He was not mentioning treatment "till CLL would not cose problems with other organs. "
Got in to emergency as I could not walk strait. Have lost hearing in my right ear and have constant pulsating sound, blocked nose on right side.
First day WBC was 145.000, second after 2 l of fluid by IV it came to 136.000.
Today's result was 153.000 .
It's weekend and they do not have clue what to do with me .
Unfortunately got in to different hospital, not where I was treated before.
From friend of mine who is professor of hematolgy got information that this kind of numbers of leukocyte is changing viscosity of blood. So this thicker blood is cousing possible problems in my brain circulation.
Except weakness, lost of hearing, balance and huge swelling under chin I do not have any other problems.
Any body have similar problems with CLL?
Second thing is that my understanding was that CLL is caused by my previous treatment. Reading your posts I can see that for majority CLL is first cancer.
PS appologies for mistakes as English is my second language.
Regards from Sydney where we have record temperature of 38 C