CLL Support Association
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Road to a BMT... oops just got there (Day+26)

We were finally discharged today and very happy to be home.

Here are the details from our consultation with the Dr.:

1) BMT/blood work - very pleased with progress and counts are fantastic

2) liver function - all positive

3) kidney function - all positive

4) GVHD - no signs but may see activity once Mark stops taking CYCLOSPORINE which will be in about 4-6 weeks

5) mental/spiritual - Mark is very anxious and stressed about being home (very natural and only time will help to make him feel safe/secure)

6) Me - thrilled and looking forward to getting us settled

7) viral/bacterial/fungal infections - all clear (he is not on any antibiotics)

8) chest CT (we had one yesterday) - shows positive improvement from last week

We will be back on Friday for our 1st out patient clinic appointment - check blood counts and day to day challenges. The good thing is that clinic will be twice a week for a couple of months and the Team can be pro-active if we see any signs of challenges. This will really help in preventing Mark having to be re-admitted into hospital.

We are both looking forward to hiding away at home for a couple of days with no IV’s, no nurses, no Dr.’s, no isolation and no more hospital food!

Take care,

NMMP

15 Replies
oldestnewest

Fabulous! So happy for you both :)

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Great! Keep us posted.

Be well.

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🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Jeff

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What fabulous news! Mark will understandably be anxious but hopefully all will go smoothly now. What a relief to have him home!

Best wishes,

Newdawn

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Great news, NMMP! :-) So pleased for you both.

I can understand the ongoing anxiety as it's still early days, but it's such a relief that he's home. Enjoy your escape from nurses, doctors, infusions and hospital food! :-)

Paula

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This is amazing news for you and your family.

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Great to hear sending prayers your way.

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I am following your posts closely for reasons you well know.

I wish you and Mark all the best as he continues toward the

ultimate goal of what all us CLL patients desire, total eradication.

Mark is fortunate to have a wife and caregiver like you

as he goes through this arduous process which requires a great

deal of courage.

Nick,

Miami Beach

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Thank you Nick

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I am very happy to hear about the great progress your husband is making, but I also wanted to cheer YOU - wedged in there between "mental/spiritual" and "bacterial/viral/fungal infections". You, too, are being a hero in all of this!

Wishing you all the best!

Bettina

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Thank you - 🙂

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What fantastic news! May things continue to get better each day. Best wishes to you both!

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HI NMMP

A future beckons, you have been there throughout this trauma, your love and caring have been tried and not found wanting, a support which has been invaluable, and will continue to be.

Wishing you a happy life together.

Bubnjay1

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way to go -- both of you!

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Hurray!! So happy for you both.

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