Road to a BMT... oops just got there (Day+2)

[NMMP]

Day +2 has been a challenge, Mark spiked a fever in the night and was very nauseous. The fever came on rather quick and the Dr.'s were surprised but I found it amusing that the nurses didn't, I have no doubt the nurses see a great deal more than the Dr.'s.

The team decided to take some preventive steps and started antibiotics, 2 different types and Mark has not been able to stay awake and in and out of consciousness. They pumped him with IV fluids for hydration and are doing blood cultures just in case.

The cultures came back with an infection and now they can administer the correct antibiotic to fight the infection.

We know the next 7 days are extremely critical and hopefully the fever will get under control. Again, blood counts are steady but we should start seeing a significant drop in the next week.

On a side note, Mark was awake enough to ask me to "be quite" - he's lucky I like him. 😀

Today has been a much better day and as we all know with this process we can only take one day at time.

THANK YOU for all the kind words and messages that you have sent to us.

Take Care,

NMMP

DISCLAIMER - we use humour as a coping mechanism.

[Newdawn Administrator]

Thanks for the update NMMP and here’s hoping the infection is under control very soon. It must be a tense and worrying time for you all...you use humour and whatever means you need to get through this!

Best wishes,

Newdawn

[Hoffy]

Our thoughts are with you both. Be well.

[ygtgo]

Doctors go by the book ... Nurses go by experience.

Why is it that the person who is ill is called patient ?

... when surely, thats the job for our cares.

Oh, and I keep telling Mrs ygtgo to be quiet ( or words to that effect )

... and one of these days, I'm going to get up the courage to say it to her face.

Still, It is important to laugh at yourself .... even if it is only hysteria !!!

Hope things keep improving

ygtgo

[PaulaS Volunteer]

So sorry to hear about this latest "challenge", NMMP.

Thinking of you and wishing/praying for healing for Mark,

Paula

[UK-Sparky]

Keeping you both in my thoughts and prayers

Sparky

[Name-1]

Be well!

[Jm954 Administrator]

These things are almost to be expected and, thankfully, it sounds as though he is in good hands with vigilant staff. The old saying 'If I didn't laugh, I'd cry' is never truer than in hospitals.

Sending you and your husband every best wish for a good speedy recovery.

[sumok]

bless the nurses! they really are the best. literally life-savers!

hang in there. miraculous things are happening.

(and: zazzle.com/humerus_medical_... )

[W00dfin]

6 years ago I was in a similar situation with sepsis except that I remained conscious. They had difficulty getting the right antibiotic going. They had me on a cooling pad to keep the fever down. The nurses were the heroes 🌞

After discharge and FCR I was able to return to work in 3 months and stayed in remission until this year. Now on Ibrutinib and making progress.

Hoping for similar positive outcomes for you and yours.

Woodfin

[sumok]

fever tip: sometimes the person taking my husband's temperature didn't realise he had been sipping ice water or chewing ice chips and didn't realise they weren't getting a good oral reading. or tried under-arm when he had recently had ice packs all around him. that's where the caregiver comes in handy; the nurses are awesome but not *quite* psychic

[MsLockYourPosts Passed Volunteer]

I'm so glad that your husband has a team that is so on top of things.Doing cultures right away is so important. Hopefully the new cells are doing a fast and efficient job of bearing up the old ones and your husband starts to feel the improvement soon.