I am looking for some guidance please. I have now been informed after a lymph node biopsy in March 17 that I have low grade CLL/SLL by my hematologist. It started with an enlarged lymph node to the side of my chest in Feb 17.
I had a biopsy undertaken 21st March 17.
20th April I was informed it was abnormal and was sent for further testing
24th April CT Scan
17th May finally told I had low grade CLL/SLL. ( a long wait to be finally told and confirmed my condition)
Since first noticing the swollen lymph node at the beginning of Feb the CT scan in April showed that I then had swollen lymph nodes above and below the diaphragm.
I had a bone marrow biopsy undertaken on the 9th June, arranged by my hematologist on the 17th May.
I did not receive to much information on my first visit, only to be told my condition and that the final test would be the bone marrow biopsy.
After the biopsy I meet with him again on the 22nd June. I had a concern I had raised previously about the dull ache I have had for a while to the flank of my right side. This is when I was informed about the extent of the swollen lymph nodes in my system. I have given a urine sample although I have no problems with passing urine etc
My confusion is that on both occasions I have never been told, or should I have been
1. What my blood counts are for white and red blood cells other than they are ok
2. The bone marrow biopsy was what to be expected
3. What are my markers "B" "T"
4. I did have to ask what stage was I at and the reply was 3
My lymph nodes are developing in different areas rapidly and the older ones are getting bigger. Another CT scan has been requested for the end of July to assess this. My fatigue is getting worse and my forearms are sore to touch when slightly pressed.
I guess I am looking for some assistance on how I should approach this when I next go back to see him at the start of August with some questions to help me get a better understanding of where I am at with it.
I am currently on watch and wait.
Age 49 male
thank you in advance,