Hi, I've just been diagnosed with CLL/SLL. I am a 46 year old female otherwise fit and well. Last November I had a wisdom tooth removed. 2 weeks later felt lymph nodes up in back of head and felt like I was getting a cold. Went to GP who told me to go back to my dentist as it must be an infection (I knew it wasn't as my tooth had heeled fine). Dentist gave me antibiotics even though everything looked fine. Then over the next few weeks lymph nodes came up all in neck and under chin, armpits and groin. One side of neck and under chin is still swollen. Got an appointment to see my own GP just after Christmas (of course I couldn't get to see her any sooner!). She felt swollen node in my armpit and referred me.
I've had needle biopsy and PET scan which shows low-grade hot spots around swollen lymph nodes. Haematologist then did indepth blood tests to confirm CLL/SLL. I was expecting to be told which one I had - CLL or SLL. I know they are treated the same, but thought they could determine which one?
Next blood tests in 3 months.
Anyone else out there my age with CLL/SLL?
Has anyone seen a CLL/SLL specialist at The Nuffield Hospital in Guildford, Surrey?