Weird red Mark on my leg. : Weird red Mark on my... - CLL Support

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Weird red Mark on my leg.

Hoffy profile image
8 Replies

Weird red Mark on my leg.

I am on imbruvica plus Venetoclax clinical trial.

Is this something that happens with ibruvica ? Or V? Anything to be concerned about?

Trial has been going well. Blood levels are back to normal within four months of starting a trial. I feel good energy has gotten much better. My large Nodes went down within a week .

I had cellulitis about a year ago and had a big red spot on my leg 3" in diameter so that's the only reason I'm concerned with this. Then my nodes were big in itself painful. Overall I feel very good Now.

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Hoffy profile image
Hoffy
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8 Replies
Kevin54613 profile image
Kevin54613

I have been on Imbruvica for 16 months. Yes, I also get some skin marks/issues. Seems like skin is more sensitive to the sun also.

lankisterguy profile image
lankisterguyVolunteer

I've posted several times that each of my 4 treatments for CLL caused skin rashes, Imbruvica was the worst for me. I also believe that Imbruvica is known to affect blood clotting and I saw frequent and unusual bruises appear when I did not recall impacts in that location. Also several of the bruises stayed red and never turned purple or yellow. Skin biopsies found significant accumulations of T cells and B cells in a specific - deep skin layer.

Len

newyork8 profile image
newyork8

Thats great. Where is the trial may I ask?

Hoffy profile image
Hoffy in reply tonewyork8

UCSD in San Diego. It has been good so far. I take both In the evening and don't have many side effects.

Hopefully working while I sleep !!

BCTexas profile image
BCTexas

I occasionally get these red spots but I havent started treatment yet. Not sure what it is.

BC

Hoffy profile image
Hoffy

Thanks

kimiD profile image
kimiD

I'm on ibrutinib and get red marks on my skin fairly often. They seem to be lessening with time. Are you on the full dose of 3 capsules per day?

Hoffy profile image
Hoffy

Ok. Yes. 3 per day.

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