Hi guys.
Does anyone struggle with shocking pain in their groin or nerve pain down their leg??
I have Cll but have also had back surgery and groin surgery in the past but these feel different.
My lymph nodes have been swollen for a couple of months now and I wonder if one in my groin could press on a nerve.
I would appreciate any help.
Many thanks
Chuckybuttty.
I have read several medical articles describe Cll nodes as painless, which I think is generally true. But I had a painful Cll neck node pop up and I always thought it had found a nerve somewhere to impinge. It was transient pain.
The chronic radiating leg pain you describe does not sound like Cll node related pain to me. It sounds much more disc related, even though you describe that it feels different than past disc pain you have had.
Radiating pain down the leg sounds like such a classic symptom of a herniated disc my first thought would be to get an mri or ct scan to see how your back is doing. Any prior lumbar surgery can put added load at the discs above and below the level of the operated disc.
And while I suppose a Cll node in your groin pushing on a nerve is a plausible explanation for referred pain, I wouldn’t think it would cause the chronic pain you describe. The prime suspect for me would be a disc problem. If your doctor has ruled that out, then I would look elsewhere.
Thanks for your reply Jeff..
I have had the misfortune to suffer from 5 herniated disc at different levels of my lower back and all 5 had to be operated on as well as two bulging disc in my neck that they don't want to touch.
Its the groin pain that's stumping me because if I didn't have that then I would certainly describe it as a disc issue... (knowing my luck I probably have two separate issues) the pain starts in my groin then burns down my leg.
I have been trying to avoid the doctors for obvious reasons, but I'd hate it if they told me I had another disc prolapse because I have already been told my spine can't be operated on again, a condition called FBSS Failed back surgery syndrome...
I was kind of hoping someone had suffered something similar as I'd much rather cope with swollen nodes than the alternative..
Thanks again for your reply Jeff, I really appreciate it.
Wow Chucky, you have had a bad run with your back for sure. Groin pain can be referred from the L 4-5 disc and the fact it radiates is what would make me suspect a back issue over a node issue. The nerve impingement would be taking place in the back, not the groin.
Of course we do get nodes in our groin and it certainly seems plausible a node could get in a funny position and pinch a nerve. I would think if that was the case the pain would mostly be local and not radiating. I would not think it would be chronic either. I had a very uncomfortable node in my neck, but the pain was localized and it was not chronic.
I hope someone else can weigh in and have some more helpful information for you. Despite the literature describing cll nodes as painless, we have had many posters on here describe pain with some of their nodes.
I do hope your pain improves.
Thanks once more for your detailed response Jeff.
Im going to arrange an appointment with my GP first see if we can get to the bottom of it.
When I find out what the nasty culprit is I will let you know, but something tells me Its going to require a nice visit to the MRI machine.
Thanks again 👍 👍
This could be a 'way out there' response, but in my career as a paramedic I occasionally had a patient present with groin or testicular pain related to abdominal aneurysm. Probably not related in your case -- but years ago I lost my father-in-law to undiagnosed AAA that ruptured (the inexperienced ER doc thought he was presenting with kidney stones).
Thanks for replying MN1999
No offence intended but I do really hope your response is way way way out there and wrong!!!!! 😂
When I find out I will let you know.
Thanks again for you time.
MN1999,
This is more common than what is generally known. Males are also prone to mild inguinal hernias that exists from birth. These can go un-noticed until there is a compromise in the area of the inguinal ligament and a scan is performed. Consequently, there are lymph nodes in the inguinal area that can influence inflammation and inguinal discomfort.
ChuckyB,
I had significant pain and tissue aggravation in nodal areas prior to treatment, including the groin and abdomen. Mysteriously most of the pain and aggravation disappeared after 3 - 4 infusions of obinutuzumab, as did the nodal swelling.
I could not get either my GP or the first oncologist that I was seeing prior to treatment to address the issue. The treating oncologist did not need to address the problem, for obvious reasons. I believe that some physicians expect that patients can endure the aggravations and discomfort until treatment is required.
I am 7 months post treatment, and I still have no pain in the areas that were previously causing problems.
This does not mean that the cause of your pain is the same as mine. You should still work with your doctors to find the cause and resolve. It can be complicated and may require a series of scans and comparisons.
Hopefully your doctors are smart, assertive, compassionate, have organizational support, and resources.
JM
Bad hip, bone on bone, generally hurts most as pain in the groin. I have been dealing with hip/groin pain for 4 years. It is surprising how it hurts in the groin and when you get a shot into the joint they go in through the groin.
Mine is related to too many marathons and the hip should be replaced but I am reluctant to get into bone marrow that is already abnormal.
Dennis, 73, Venetoclax
I had the same experience in 2009. It was an S1-L5 issue. Unfortunately, after 8 months of extreme pain, I had to have surgery. No problem since.
Hi. I recently had issues with this. I had a swelling in my right groin, this was operated on a year or so age to drain fluid off. At first it was diagnosed as a inguinal hernia. I had two types of antibiotic prescribed which eased it a little. My haematologist said it was basically a sac of pus and spoke with the surgical team and they decided not to operate due to infection and haemorrhaging risk. I have increased my daily water intake and this seems to have cleared it. I originally found the pain unbearable, even pressing my foot lightly against anything was excruciating. I do hope that you can find a solution to this. Best wishes.
