CLL and Long Covid

[plutogame]

I’ve had CLL for about 5 years, diagnosed 3 years ago, On watch and wait. Fatigue has been an issue since the beginning, though my hematologist/oncologist has been dismissive of it. In October I had covid, which I recovered from quickly and was doing well, slowly though I started to get worse with fatigue that severely reduced what I could do and brain fog. Prior to covid, I had new swollen lymph nodes and my oncologist was going to do a CT scan. Once I had covid though he kept putting it off. More swollen lymph nodes have now too and he’s finally agreed to do CT scan. They are also reluctantly discussing treatment as I have asked if the fatigue would improve with treatment given that some of it is because of the CLL. Any thoughts, recommendations are appreciated. Thanks.

[AussieNeil]

I recommend you join and post in the far more active CLL Support community healthunlocked.com/cllsupport , where you'll find close to 1,900 posts about fatigue, compared to just 30 in this community

See healthunlocked.com/cllsuppo...

Neil

[plutogame in reply to AussieNeil]

Thank you, I did that