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Lupus and now possible BCell lymphoproliferative Lymphoma-extranodal in lungs
I want to know if anyone has had this and if getting off
cellcept
and/or tacrolimus reversed it?
I want to know if anyone has had this and if getting off
cellcept
and/or tacrolimus reversed it?
NewEngland3
in
LUPUS UK
3 months ago
Covid treatment with kidney transplant
She also said I should stop
Cellcept
temporarily. Now I feel a bit better, temp is 36C, but my throat still aches and body feels weak. Only partial tests ready up now, eosinophils are at 0. My two main concerns - do I need some antivirals? And I'm really terrified of stopping
Cellcept
.
She also said I should stop
Cellcept
temporarily. Now I feel a bit better, temp is 36C, but my throat still aches and body feels weak. Only partial tests ready up now, eosinophils are at 0. My two main concerns - do I need some antivirals? And I'm really terrified of stopping
Cellcept
.
TheLittleSquirrel
in
Kidney Transplant
3 months ago
cytoxan
has anyone declined cytoxan and had success with
cellcept
in treating kidney injury? My son has had Eculizumab and Rituximab with no success and is now declining rapidly with kidney function.
has anyone declined cytoxan and had success with
cellcept
in treating kidney injury? My son has had Eculizumab and Rituximab with no success and is now declining rapidly with kidney function.
Vegitarianmom
in
Parents of Children with Kidney Disease
4 months ago
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Cellcept vs Myfenax
They are refusing to prescribe me
CellCept
(been on it for 4 years)! But are supplying me Myfenax instead which is a generic. I thought that Mycophenolate brands were not interchangeable and you are advised to remain on the same brand? Is this correct?
They are refusing to prescribe me
CellCept
(been on it for 4 years)! But are supplying me Myfenax instead which is a generic. I thought that Mycophenolate brands were not interchangeable and you are advised to remain on the same brand? Is this correct?
eescvc
in
LUPUS UK
8 months ago
Continued Journey
Cellcept
had run its course on day 35. It is an effective medication with controlling GVHD (GraftVsHost Disease). I also had a switch from Tacrolimus to Sirolimus. Both of these meds help with the GVHD.
Cellcept
had run its course on day 35. It is an effective medication with controlling GVHD (GraftVsHost Disease). I also had a switch from Tacrolimus to Sirolimus. Both of these meds help with the GVHD.
FiArt12X
in
CLL Support
1 month ago
Skin Cancer Issues
I'm on 500mg
Cellcept
2x/day and 1mg Tacrolimus 2x/day. The tacro is the issue with skin cancers. They are suggesting Prednisone which I am very hesitant to switch to.
I'm on 500mg
Cellcept
2x/day and 1mg Tacrolimus 2x/day. The tacro is the issue with skin cancers. They are suggesting Prednisone which I am very hesitant to switch to.
KathleenMA
in
Kidney Transplant
9 months ago
Generic Cellcept.
After years of receiving my prescription of Roche MMF from my Doctor’s surgery, recently I have been switched to the hospital pharmacy & have been taking a version made in India by Ascend. I am hoping this has also happened to a few here & they could reassure me that they too have noticed the change
After years of receiving my prescription of Roche MMF from my Doctor’s surgery, recently I have been switched to the hospital pharmacy & have been taking a version made in India by Ascend. I am hoping this has also happened to a few here & they could reassure me that they too have noticed the change
Dodder2012
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
hrt/menopause and lupus
I'm on low dose prednisone, hydroxychloroquine, arcoxia,
cellcept
etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or so. My menopause symptoms have become so bad that I'm seriously considering hrt.
I'm on low dose prednisone, hydroxychloroquine, arcoxia,
cellcept
etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or so. My menopause symptoms have become so bad that I'm seriously considering hrt.
Babycakes1971
in
LUPUS UK
1 year ago
Post Transplant psoriatic arthritis treatment
I had never had any psoriasis that I knew of until around 3 months after I was switched from Tacrolimus/Envarsus and
Cellcept
to Belatacept infusions. I had a few spots on my arms that developed.
I had never had any psoriasis that I knew of until around 3 months after I was switched from Tacrolimus/Envarsus and
Cellcept
to Belatacept infusions. I had a few spots on my arms that developed.
PKDPostXplant2020
in
Kidney Transplant
11 months ago
Thank you and update 🙂
I’ve been taking
Cellcept
for 3 months now with no serious side effects and think I’m seeing benefits now. Hardly any pain which is something I never imagined saying!!
I’ve been taking
Cellcept
for 3 months now with no serious side effects and think I’m seeing benefits now. Hardly any pain which is something I never imagined saying!!
Beau2016
in
LUPUS UK
1 year ago
Experiencing Pain
I am on 5mg of Presidone, 1mg Tacrolimus am, .5 Tacrolimus pm and
Cellcept
daily and am experiencing pain in different parts of my body, ex. hand, fingers, feet, toes, arms, on a regular basis.
I am on 5mg of Presidone, 1mg Tacrolimus am, .5 Tacrolimus pm and
Cellcept
daily and am experiencing pain in different parts of my body, ex. hand, fingers, feet, toes, arms, on a regular basis.
LBatl
in
Kidney Transplant
1 year ago
Candida with Cellcept
Has anyone had oral thrush associated with taking
Cellcept
? I have been on
Cellcept
for three months and IVIG for 14 months. Today, the inside of my lower lip exploded with white bumps. My research indicates that Candida is common side effect of immune suppression.
Has anyone had oral thrush associated with taking
Cellcept
? I have been on
Cellcept
for three months and IVIG for 14 months. Today, the inside of my lower lip exploded with white bumps. My research indicates that Candida is common side effect of immune suppression.
HALNEUROPATHY
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Transplant Meds- Anti-rejection
I currently do
cellcept
500mg twice a day and beletacept infusion once a month. Please share with me your meds and how much. I am trying to gain full perspective on long term living. Thank you all so much. Much love ❤️
I currently do
cellcept
500mg twice a day and beletacept infusion once a month. Please share with me your meds and how much. I am trying to gain full perspective on long term living. Thank you all so much. Much love ❤️
danhtruitt
in
Kidney Transplant
1 year ago
Edema post transplant
was only a 60% when they harvested it.So switched me from tacro to beltacept but during the transition had me still on tacro for a month too,which in turn lowered my i.mune system so much that body one big bruise of red spots and bruises and also i picked because of being on the beltaceot,tacrolimus,
cellcept
was only a 60% when they harvested it.So switched me from tacro to beltacept but during the transition had me still on tacro for a month too,which in turn lowered my i.mune system so much that body one big bruise of red spots and bruises and also i picked because of being on the beltaceot,tacrolimus,
cellcept
Parkerbarker
in
Kidney Transplant
1 year ago
prednisolone how long before taper & stop
I’m on week 2 of
cellcept
up to 1000mg a day and so far side affects are not too bad, but too soon to notice improvements. my question is, should I contact rheumatologist and ask to stay on prednisolone for longer?
I’m on week 2 of
cellcept
up to 1000mg a day and so far side affects are not too bad, but too soon to notice improvements. my question is, should I contact rheumatologist and ask to stay on prednisolone for longer?
Beau2016
in
LUPUS UK
1 year ago
cellcept and nausea
has anyone had many difficulties with nausea while on
cellcept
? I seem to be struggling a bit and think
cellcept
may be the culprit. Thanks
has anyone had many difficulties with nausea while on
cellcept
? I seem to be struggling a bit and think
cellcept
may be the culprit. Thanks
Sawdust23
in
Myasthenia Gravis Association
2 years ago
treatment for Sheri for C3G
Now she is on
Cellcept
which she becomes nauseous from and is now in the hospital suffering from a bacterial infection. Maybe related to the
Cellcept
? What other treatments are available Dr.
Now she is on
Cellcept
which she becomes nauseous from and is now in the hospital suffering from a bacterial infection. Maybe related to the
Cellcept
? What other treatments are available Dr.
Chewiboy1
in
C3 Glomerulopathy
2 years ago
SLE patients may have reduced response to COVID-19 vaccination
A lower vaccine response also occurred in patients undergoing treatment with
CellCept
, tacrolimus, and Benlysta at the time of vaccination.
A lower vaccine response also occurred in patients undergoing treatment with
CellCept
, tacrolimus, and Benlysta at the time of vaccination.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
new myocarditis MRI results; what now?
doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or mycophenolate (also known in the US as
CellCept
doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or mycophenolate (also known in the US as
CellCept
Britomartis29
in
British Heart Foundation
1 year ago
cellcept tiredness or your side effects?
They have now put me on
cellcept
and had a depo steroid I’m so tired tho like more tired than I was before I started it I’m not sure if it’s that or I just need a good rest!! Has anyone else experienced this or what side effects did you get?
They have now put me on
cellcept
and had a depo steroid I’m so tired tho like more tired than I was before I started it I’m not sure if it’s that or I just need a good rest!! Has anyone else experienced this or what side effects did you get?
Sammymoat1986
in
LUPUS UK
2 years ago
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