Search
Search
About
Log in
Join
Experiences with
CellCept
Posts
Communities
241 public posts
Filter results
new myocarditis MRI results; what now?
doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or mycophenolate (also known in the US as
CellCept
doctor who ordered the followup cMRI wrote me in the patient portal and said that he wanted to see another cMRI in three months, and at that time if it is not completely cleared, he wants to give me one of two drugs: Azathioprine (known in the US also as Imuran) or mycophenolate (also known in the US as
CellCept
Britomartis29
in
British Heart Foundation
11 months ago
Hair loss after transplant
She is taking tacrolimus,
cellcept
, prednisone , acyclovir, and K-phos. Her hair has been falling out a lot since then. I realize that compared to many of the side effects, this is not as bad. So her doctors are not bothered by it.
She is taking tacrolimus,
cellcept
, prednisone , acyclovir, and K-phos. Her hair has been falling out a lot since then. I realize that compared to many of the side effects, this is not as bad. So her doctors are not bothered by it.
SujaA
in
Kidney Transplant
2 years ago
Alirocumab (Pralient) anti PCSK9
Hi I have NIMN caused by taking statins, that is more or less under control with
CellCept
but the Prednilisone (Cortisone) that I am now down to 10mg messed up my type two diabetes and at my last stress ECG I was told I needed an Angiogram and then three stents.
Hi I have NIMN caused by taking statins, that is more or less under control with
CellCept
but the Prednilisone (Cortisone) that I am now down to 10mg messed up my type two diabetes and at my last stress ECG I was told I needed an Angiogram and then three stents.
Nearness
in
Myositis UK
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
School with prednisone and Cellcept
Hello, my daughter (19 years old)has DDD and will need to start winter Prednisone and
Cellcept
. Currently she only takes Ramipril. Will she be able to continue to work and go to college with this treatment. Testimonials please.
Hello, my daughter (19 years old)has DDD and will need to start winter Prednisone and
Cellcept
. Currently she only takes Ramipril. Will she be able to continue to work and go to college with this treatment. Testimonials please.
Sibane
in
C3 Glomerulopathy
2 years ago
Swollen lymph nodes
I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my immunosuppressants briefly and then changed me from Neoral to
Cellcept
thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.
I have a history of PTLD but that was years ago (It was spurred by mono and they took me off my immunosuppressants briefly and then changed me from Neoral to
Cellcept
thereafter). I told my primary care who ordered a CT scan but insurance wouldn’t cover it.
SOct91
in
Kidney Transplant
2 years ago
Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome
[u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran - liver damage
Cellcept
- unsuccessful Plasmapheresis - unsuccessful IVIG- unsuccessful SFEMG- abnormal Prednisone in high dosage that is then tapered down to 5mg has relieved the double vision.
[u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran - liver damage
Cellcept
- unsuccessful Plasmapheresis - unsuccessful IVIG- unsuccessful SFEMG- abnormal Prednisone in high dosage that is then tapered down to 5mg has relieved the double vision.
Jen2803
in
Myasthenia Gravis Association
2 years ago
Prednisolone, can it be down to 3/4 of 5mg?
(Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening, 500mg
Cellcept
morning and evening)
(Normal scheme for me: 1 tab Prednisolone at morning, 1mg Prograf morning and evening, 500mg
Cellcept
morning and evening)
Lily2019
in
Kidney Transplant
2 years ago
Is rituximab safe? Thoughts on second opinions?
As well as high doses of
cellcept
and prednisone to try and moderate his immune system. Based in his recent biopsy there are no signs of remission although his disease hasn’t progressed very much. His doctor wants to do a round of Rituximab infusion.
As well as high doses of
cellcept
and prednisone to try and moderate his immune system. Based in his recent biopsy there are no signs of remission although his disease hasn’t progressed very much. His doctor wants to do a round of Rituximab infusion.
Hopeforc3g
in
C3 Glomerulopathy
2 years ago
Are antibodies still a thing?
[for reference I’m only on
Cellcept
]. My questions are, 1, has anybody been told anything about antibody levels meaning anything?
[for reference I’m only on
Cellcept
]. My questions are, 1, has anybody been told anything about antibody levels meaning anything?
SOct91
in
Kidney Transplant
2 years ago
Update on my phone appt. with Neph. last Wed.
But the Neph said stay on Pred. and urgently see a Rheumatologist to get on
CellCept
. He said that without the Pred masking my eGFR it is really down to 20. He's a very nice and funny guy, I told him I didn't like that "new math" he was using.
But the Neph said stay on Pred. and urgently see a Rheumatologist to get on
CellCept
. He said that without the Pred masking my eGFR it is really down to 20. He's a very nice and funny guy, I told him I didn't like that "new math" he was using.
Sophiebun11
in
Kidney Disease
3 years ago
Aches and pains!
I am on the following meds
Cellcept
, prograf tacrolimus, pravastatin 20mg, lanzoprazol 60mg, Trimethoprim 100mg, famotidine 20 mg Thanks char
I am on the following meds
Cellcept
, prograf tacrolimus, pravastatin 20mg, lanzoprazol 60mg, Trimethoprim 100mg, famotidine 20 mg Thanks char
Thanksnhs
in
British Heart Foundation
3 years ago
Finally some good news!!!
The Neph may also start me on
CellCept
, maybe my eGFR will go up to 90 on that LOL : )
The Neph may also start me on
CellCept
, maybe my eGFR will go up to 90 on that LOL : )
Sophiebun11
in
Kidney Disease
3 years ago
Anyone take CellCept for CKD Stage 4 and autoimmune disease?
His theory is that the
CellCept
might slow down my immune system's destruction of my kidneys. I wondered if anyone else takes
CellCept
, and what do you all do about shoes? Do you buy some medium width and some wide width? So many things to learn.
His theory is that the
CellCept
might slow down my immune system's destruction of my kidneys. I wondered if anyone else takes
CellCept
, and what do you all do about shoes? Do you buy some medium width and some wide width? So many things to learn.
Sophiebun11
in
Kidney Disease
3 years ago
BK virus and Low WBC
First they lowered his
CellCept
dose and two weeks later the virus had increased. So they removed
CellCept
completely and his virus levels were coming down. However, his creatinine increased from 1.2 to 1.6 so they decided to start him on IVIG which he currently is at the hospital doing.
First they lowered his
CellCept
dose and two weeks later the virus had increased. So they removed
CellCept
completely and his virus levels were coming down. However, his creatinine increased from 1.2 to 1.6 so they decided to start him on IVIG which he currently is at the hospital doing.
Nyc147
in
Kidney Transplant
3 years ago
Baricitinib??
This was prescribed as I have exhausted methotraxte, rituximab,
cellcept
treatments. I’m also on steroids (deltacortril 7.5mg) for the past 26yr and plaquenil. Many thanks
This was prescribed as I have exhausted methotraxte, rituximab,
cellcept
treatments. I’m also on steroids (deltacortril 7.5mg) for the past 26yr and plaquenil. Many thanks
Carbar
in
LUPUS UK
3 years ago
autoimmune issues related to Keytruda
I have been struggling with autoimmune hepatitis related to Keytruda for 1 1/2 years and being treated with Prednisone and
Cellcept
. I have had numerous spikes and we have found it difficult to get medication regulated and optimally to put an end to this episode of my cancer journey.
I have been struggling with autoimmune hepatitis related to Keytruda for 1 1/2 years and being treated with Prednisone and
Cellcept
. I have had numerous spikes and we have found it difficult to get medication regulated and optimally to put an end to this episode of my cancer journey.
4yearsnow
in
SHARE Ovarian Cancer Support
3 years ago
Newby hi
Hi everyone I was recently diagnosed with IPF but now after some consultation with other my consultant has told me I have fibrotic nsip i am getting very frustrated with so many questions and no one to ask have been given
cellcept
250mg started yesterday has anyone got any information?
Hi everyone I was recently diagnosed with IPF but now after some consultation with other my consultant has told me I have fibrotic nsip i am getting very frustrated with so many questions and no one to ask have been given
cellcept
250mg started yesterday has anyone got any information?
Knitmum
in
Lung Conditions Community Forum
3 years ago
How are you living life with spouses both Vaccinated against Covid but one has a kidney transplant and one is healthy?
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on
Cellcept
antirejection med mainly.
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on
Cellcept
antirejection med mainly.
Gardner-NY
in
Kidney Transplant
3 years ago
Anyone with these neurological issues and health complications?
The rheumatologist has me on
CellCept
and Rituxan, and will be adding Actemra next week. My question is this, has anyone else experience similar rapidly progressing neuromuscular/neurological symptoms in a similar context? If so, what was the outcome?
The rheumatologist has me on
CellCept
and Rituxan, and will be adding Actemra next week. My question is this, has anyone else experience similar rapidly progressing neuromuscular/neurological symptoms in a similar context? If so, what was the outcome?
TiredNerd
in
NRAS
3 years ago
Upcoming transplant seeking advice
Cellcept
? Also - anything you wish you'd known or done before, during and/or after transplant?
Cellcept
? Also - anything you wish you'd known or done before, during and/or after transplant?
Bax509
in
Kidney Transplant
3 years ago
1
2
3
...
13
Next page
10
Filter results
Clear filters
Posted in
All communities
LUPUS UK
78 results
Kidney Transplant
34 results
Vasculitis UK
26 results
View top 10 communities
Sort by
Most Relevant
Newest