Our Father has Alcoholic Liver Disease, Hep B and Hep C due to over 20 years of heroin and alcohol abuse. Three months ago he developed Gross Ascites and went to hospital for the paracentesis procedure. After a few days he felt better and against advice, discharged himself. He was prescribed diuretics, laxatives, co-codamol, vitamin B and also given a course of Fragmin for a Deep Vein Thrombosis in his left leg.
My sister and I met with his GP and then took him to see the Liver Specialist Nurse at Gloucester Royal Hospital. He was booked on for weekly outpatient paracentesis treatment, which require blood tests at the hospital the day before to ensure his blood would clot properly for the paracentesis to take place (also advised not to take the Fragmin for 24 hours before the paracentesis). I believe he is experiencing confusion and early stage dementia which means keeping appointments and remembering to take a complicated set of medications impossible.
Social services have told us that he is not likely to be under their jurisdiction as he is at liberty to make 'poor life decisions'. They suggested we contact the Gloucestershire Drugs and Alcohol Project who ought assign him a case worker to help with day to day appointments etc. Still waiting to hear about this. We have had some help from the district nurse team. They came over to give an incontinence assessment (he has also developed bowel incontinence). He refused this help. We also booked Hospital Transport for the weekly paracentesis appointment but they didn't show up.
It has been incredibly difficult to arrange anything. We thought we'd got it all in place and then he decided to go and live in London with out Grandfather. This did not work out as he is often rude and disruptive. He returned to Gloucester and we tried to put all the appointments back in place. Then he took off to London again last week. My Grandfather is 86 and can't cope with the incontinence. He managed to persuade him to go into hospital but he discharged himself after two nights. They argued and he stormed off. The hospital called the next day and said he'd been picked up by the police and bought in. He had been drinking. The next day he discharged himself again and my Grandfather called the police who took him back to hospital. They tested his mental capacity and it appears he is sane and they arranged Hospital Transport to his home in Gloucester.
I met him at the house and he was very lethargic and quite confused. I also found evidence of Heroin usage while I was there.
I just got a call from my Grandfather and he has turned up in London again despite being asked not to go back there until he is well.
So, after three months of trying to put things in place for his care we keep going around in circles. We understand that ultimately it's his choice but my Grandfather can't cope. We both have families and jobs and live in different cities. We are also aware that he is unlikely to get better.
Can anyone offer any advice or have a similar experience of trying to provide care for someone seemingly hell bent on this path of self destruction?