My Dad was diagnosed about 30 years ago with Non alcoholic steatohepatitis. September 2016 had a massive bleed and been in hospital 4 times since. He is home and has been since Dec 2016. He does not want to go back into hospital, which I totally understand. He is not able to have a transplant and has a no resuscitation order in place. Because of his Dr asking questions he is now off rifaximin, still on lactulose. Since coming off rifaximin he is slowly going downhill. When I asked why he was taken off the rifaximin, my Dad said that his Dr had not ever prescribed it and it was very expensive. (My dad has since said he does not remember telling me that). Dr wrote to specialists and they said it was best for dad to stay on it. But for some reason still no prescription for it. I am worried and convinced my dad would be better of on it, and that the fatigue will get better again, as to me he started going downhill again once it was stopped. I have spoken to my dad, and he says he is happy to trust the doc. I am worried that dad is not quite himself and does not realise what is happening. And help or stories of your own experience would be gratefully received. I am thinking of talking to the palliative nurse about this, but Dont want to go behind my dads back.