Anyone's iron level low?: I had a blood... - British Liver Trust

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Anyone's iron level low?

ElviralovesFashion profile image

I had a blood test last week and apparently my iron is low. I have a doctors appointment next week .

I'm currently on Urso twice a day for PBC

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ElviralovesFashion
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6 Replies
JennerLayne profile image
JennerLayne

Hello!

I just went through a period of low iron and I found it very challenging. My oxygen levels were low which limited physical movement, I was fatigued and sleeping a lot, and generally experienced brain fog. My iron Saturation was a 5. The hematologist put me on high dosage Integra (brand) Iron pills which were slow but helpful. After 6 weeks, I begged to try infusions and received two Injectifer infusions 8 days apart.

I didn't feel too much of a difference physically after the first, but finally felt validated that he listened to me about severe fatigue which helped me mentally and emotionally. It took some days after the 2nd infusion, but my energy has returned. His nurse practitioner will now examine bloods every 6 weeks and we'll go the infusion route when iron levels drop again.

Hope your iron levels bounce back soon!

ElviralovesFashion profile image
ElviralovesFashion in reply to JennerLayne

I spoke to the doctor this morning and he has advised me to take iron tablets for a month

sammy23 profile image
sammy23 in reply to ElviralovesFashion

I get full blood test done every 3 months with my liver test and I go through bouts of low iron, GP just prescribes iron tablets for a month and its fine. GP thinks the low iron is to do with the approach of menopause.

Abby14 profile image
Abby14

Yes, I have recurrent iron deficiency.

ElviralovesFashion profile image
ElviralovesFashion in reply to Abby14

Do you take iron tabs all the time?

tinypixie profile image
tinypixie

I've been on Urso a good 5 years but have not had problems with low iron.

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