Hi All - first post here, although I've been lurking for a while. I though I'd write an introduction and explain what I'm doing here ...
I've just turned 50, I'm very healthy - obsessively so my wife would say! I eat right and live in the gym, certainly no symptoms of anything. This summer I thought I'd have a heath check, as I hadn't seen a doctor for literally decades (other than vaccinations for holidays and the yearly flu jab). Well everything checked out perfectly and they said they'd send me the results of the blood test they did in a few days. However when I got those I was told my platelets were a little low and I should see my GP, probably nothing to worry about.
I made an appointment and my GP run a wider set of bloods. The following week she told me that although my platelets had now just bobbed into the normal range, my ALT and Bilirubin levels were elevated (not crazy, about twice the level they should be). She suspected some issue with my liver. This was at the beginning of August.
Now I used to drink quite a lot a few years ago, but for the past 3-4 years I'd stuck religiously to the government guidelines - 14 units a week. However on hearing the word 'liver' I cut out all alcohol immediately. I had some repeat tests a few weeks later showing no real difference. I went straight to a private clinic and had a fibroscan done which had a score of about 9.5 - clearly a problem, although the consultant couldn't see why my LFTs should still be elevated. I got a referral to a hepatology consultant and so began a barrage of tests. Numerous blood tests over the course of a couple of months, including laying off exercise for a few weeks (that was harder than giving up the booze!) and an Ultrasound. Everyone was still confused by the results. Finally we decided to have a biopsy which had given a tentative diagnosis of Nodular Regenerative Hyperplasia - pretty rare I understand, not curable and unless a cause is found progressive. Ultimately Portal Hypertension is the risk. I'm relieved to have some diagnosis, although it's not the result I wanted. Also relieved to be told it wasn't alcohol related, so not something I cold have done differently - I've been told I can drink a little but so far I can't bring myself to and remain tee total. I'm currently struggling over whether to allow myself a couple of glasses of wine on Christmas day - my consultant says it's fine, but I' note sure if I can bring myself to - we'll see how I feel on the day.
I've since had an endoscopy (currently no signs of hypertension). While he was down there, he took numerous biopsies and I'm waiting for those results. This week I also had an MRI scan. I asked for copies of the images which are fascinating, but I've no idea what I'm looking at and whether it's good or bad! I've got another appointment early January, so hopefully get some more news then.
Anyhow - sorry for the long post. No real questions, although I'd be interested to see if anyone else has NRH.
Wishing you all health and happiness