Hi, I was diagnosed with cirrhosis just over a year ago (thought to have been caused by alcohol). I also have portal hypertension which was mercifully noticed by damn good radiologist following an MRI for an unrelated issue.
Anyway, I'm now on propranolol to lower my blood pressure and having usual tests for oesophageal varices etc and so far so good. My consultant told me from the outset that I shouldn't fly, take exercise that increases my heart rate and generally take it easy, less a vein ruptures and the worst happens. I've since seen another consultant who is a specialist in portal hypertension and he says he has never heard of anyone having an incident flying, or whilst exercising....
It's difficult to know who's advice to take... Once someone tells you something could be life threatening, it's difficult to feel confident in these pursuits when someone else tells you it isn't
Has anyone else been given advice from their consultants about living with portal hypertension?